2017 Diagnosed-- A Place To Share "Whats Next"
Comments
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Damn it, that sucks DodgersGirl :-(. I guess it's good that your MO seems pretty proactive and the ball is already rolling with the RO. Were you waiting to start the ibrance until your spine rads were done? Or can you start that even if you need more rads to your hip? I have heard some really good success stories about ibrance being very effective. I'm praying you're the next success story I hear! Good idea to use the cane just in case until you find out all the details. I have osteoporosis already so I know it's going to be mess if/whenI get bone mets. It's scary.
I know it's hard to interpret feelings on a discussion board but you seem like you are rolling with the punches as best you can. I hope I seem that strong when I'm faced with the same situation. This is such a difficult thing for anyone to go through and I appreciate you sharing your experience and for the opportunity to help you face these challenges with the support of friends (even if it's just through the internet).
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Scrafgal, thank you for that. I do not have a cardiologist; family doctors do almost everything here and things have to come back super wonky on tests for them to refer.
I am the same age as you. Before cancer my RHR was in the mid 60s, during I was trending as high as 80 but then gradually when I finished I went back down to high 60s/low 70s. I figured the caffeine + stress of nursing school was going to just keep it there. But since Sept 2019 I've kept climbing up and now I'm regularly hitting 80, 81
I do not like it. But to be fair, I've also gradually been doing less aerobics. Nursing school is study/clinical/stress/sleep repeat. I know our textbooks say 60-100 is normal but this is not MY normal. Anyhow, thank you, I will discuss with my doctor and at the very least ask for a repeat echo as we never checked the LVEF post chemo, just beforehand... thx again
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DodgersGirl, well that sucks about your hip. You're right that the last thing you need is for it to break. I hope the ortho can evaluate the risks properly and guide you in a reasonable & effective treatment plan.
this just *all* sucks - i know you know it but still, it needs to be said. this cancer thing is fucking bullshit. I'm particularly angry about it all today
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DodgersGirl-
Oh no! It stinks that you have more pain, just when things were improving. I’m hoping with you that they get all of this quickly under control. You do seem to be handling it very well, thank you for keeping us updated. Sending a hug and good thoughts your way.
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Thank you to all who are still here. It is truly great to have this place to talk about what’s happening. I do keep my dh and dad updated but can see the pain in their expressions so I don’t like talking about anything other than what is a fact.
You guys build me up more than you could know.
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DodgersGirl, praying that relief for you is right around the corner.
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Also sending good wishes your way DodgersGirl. Thinking of you daily and if I could bring a milkshake to your yard I would! (Sorry Runor!)
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HersheyKiss — thank you!
Georgia1– still no milkshake but right now it is cold cold cold outside so settled (twist my arm, ha ha ha) for hot chocolate with whipped cream!!
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Just wanted to add my voice, because I've been quiet for a few days, DodgersGirl. I'm sure I'm not the only one who goes directly to our 2017 board when I get on BCO.org - which remains part of my daily routine. You are doing an amazing job of taking all these twists and turns in stride, but the physical pain must be so frustrating. Here's hoping that your team [and those who are being added to the mix] will get to the bottom of this ASAP, and get you on the path to stabilizing things. And it certainly goes without saying [but I will anyways] this just SUCKS!!!
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dodgers girl I am thinking of you everyday. Hoping for pain relief for you. Been staying away a bit. I found a lump on my my incision scar a while back. Getting it looked at tomorrow with the breast surgeon. My head says it is nothing but the rest of me is worried. Third time getting a lump or area checked out in a year. Does not get easier. Hope you are enjoying hot chocialte and whip cream.
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hugs Annbee. best wishes for your appointment tomorrow
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Annbee— in your pocket for your appointment tomorrow with BS. Hoping for B9 results. Keep us posted.
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thank you so much Moth and Dodgergirls. It has already helped to just share.
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I don’t think I mentioned it yet, I got my bone biopsy results back Friday. Bone mets are from my breast cancer. The cancer has changed slightly. Mets are now ER+ but now PR - and still HER2 negative.
Wondering if having a total hysterectomy caused the change???
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I don’t have any answer for your wonderings. I am curious though.
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I don't know either DodgersGirl - and I can see why you are wondering. I am hoping the steroids are still helping and that the remaining radiation treatments go well for you.
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home from rads #7.
Saw the RO today. The plan is to start another rads treatment TOMORROW for left and right acetabulum areas. So did simulation for that after rads #7. I now have more rads tattoos.
The new rads tx will be 5 sessions.
SE for the new tx are diarrhea (oh boy) and pain when urinating. Fun fun.
RO showed me the MRI. The bone mets look much smaller than my mind imagined. And if all goes well, they will be dead and gone in a week.
I left RO’s office feeling pretty upbeat. Kill those bad cancer spots and move on to a systematic treatment. Let’s do this!!!
ps - turned down a milkshake this afternoon. It’s still pretty cold here. Brrrrr
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That's great - well not the SEs, but the proactive treatment plan and the tiny spots. Go get that hot chocolate, curl up in the recliner, and plan that beach vacation!
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I hope today went well Annbee. New lumps are scary. I hope it is just fat necrosis or scar tissue. I have a peas size lump under my nipple that was determined to be scar tissue. Hard to biopsy after a mastectomy but I'm grateful that it tested negative.
Glad your mets are tiny DG. IZap them and let the healing begin
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I hope today went well Annbee. New lumps are scary. I hope it is just fat necrosis or scar tissue. I have a pea size lump under my nipple that was determined to be scar tissue. Hard to biopsy after a mastectomy but I'm grateful that it tested negative.
Glad your mets are tiny DG. Zap them and let the healing begin!
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I watched Beachfront Bargain Hunt during the weekend. They were in Myrle Beach. Each condo had great ocean views.
Love the warm waters of the Gulf Stream along the grand strand. Sure could do a week on a balcony there, if my body could handle to travel needed.
Does anyone watch those shows and wonder how they are doing after hurricanes??
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thank you everyone for the well wishes. It was nothing but scar tissue. BS did an ultrasound in the office. I am relieved. I will sleep tonight
I love those shows and always wonder about the hurricanes. I always think that their home insurance must be high too. I know mine is because of hurricanes.0 -
DodgersGirl, Loved your "let's do this!" comment - I remember so well when I started chemo [three years ago this week] thinking "let's get this party started". Every one of us in your 2017 posse knows exactly what you mean. Amazing to me that a course of rads will target and kill your bone mets - and the SEs are only temporary [another mantra, but it worked for me...]. And Annbee, hope all is well.
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Annbee—. So happy with your results!!!!
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Great news Annbee! Sleep well my friend.
DG- I watch HGTV a lot especially at night when I can't sleep. I love Beachfront, International House Hunters, and seeing homes from all over the the place and how much they cost.
Maybe you can keep those travel ideas as a goal and treat yourself after these next treatments? A week on the beach sounds great. We are going to Disney in a couple months to see my niece march in the parade. I'm looking forward to sunshine and warmth.
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Legomaster225–. WDW is my home away from home. Not sure I will ever get back but hoping to make a trip in 2021 as Magic Kingdom will turn 50. How exciting that you will be there to see your niece march in the parade. Share pics!!
Scottie719– RO told me today that in the “olden day’s” radiation was used to treat arthritis... so maybe while my rads are killing cancer, it will also help my arthritis... win-win
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Dodger, when I was having radiation I met a man who had a very rare disorder that caused his hands to contract and fingers curl. Not arthritis, but something like that. He was having radiation treatments as one of the only known solutions to his problem. Reminded me when you said radiation had been used to treat arthritis.
Thinking of you. Groaning and cheering and praying. Hugs.
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Runor— interesting. I had just assumed that rads were for cancer only. Learned something new.
Had Rads #8 for thoracic spine. Two more to go
Started rads to the left and right acetabulum today. Treatment # 1 of 5. Started feeling nauseous on the drive home. Feel like the stomach flu has hit me tonight. Very queezy and freezing. Having soup for dinner. Eating it slowly.
Dr told me this 2nd treatment would be harder as he has to go thru art of my bowel to reach the target
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Ugh, DodgersGirl, what a pain. I'm glad it's only 2 + 4 more treatments for you so you are close. Maybe try eating easy-to-digest foods for a while? And do remember you need tons of protein right now -- Odwalla or Naked protein shakes in a boring flavor like vanilla might be good the next few days. Thinking of you!
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Hoping quick relief for you Dodgers!
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