2017 Diagnosed-- A Place To Share "Whats Next"
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Georgia1– Thanks!
Tomorrow is MO visit and next XGEVA shot.
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DodgersGirl — I'm well, thank you for asking.
Pain manageable with medication.Several doctor's appointments first week of March. Orthopedic follow up for acetabulum fracture/radiation AND medical oncologist Treatment Plan. I'm struggling with decisions about what to do. Before radiation, MO said he probably would recommend Tamoxifen, Herceptin, and iBrance. Also have a consult scheduled with a cardiac oncologist to evaluate the Treatment Plan. When BC was diagnosed, it was discovered my pulmonary arteries were enlarged. In the last three years, they have tripled in size. No one can determine the cause
Hope all is good news at your MO visit today. Does the XGEVA shot hurt?
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ByHisGraceTwice- this will be my 2nd XGEVA shot. There was no pain or SE from the first shot last month. Hoping for same toda
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Ladies, I have been down and out for over a week with a sinus infection and work piling on. I've been trying to follow the thread, but just now able to hop on before I head out to teach a night class.
DodgersGirl--stable is good and hoping for continued success with the treatment (and that the the remaining pain goes away).
Pink_ as for mammos, I get the diagnostic every time now, since diagnosis. It seems like maybe that one should become standard, given how many women have dense breasts and the rate of breast cancer. I know itis more expensive, but still cheaper than breast cancer treatment. I feel like I get better exams now that I've had cancer.
Moth, glad that you have folks that are helping you these days. I don't know whether I've seen another posting since my last one. Hope you are doing okay.
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scrafgal— hope you are feeling better. Sinus infections are no fun.
My big accomplishment tonight was fixing dinner. Since the battle with big D, I haven’t been able to do much of anything. Poor DH had to step up and do everything. Tonight I decided it was time to start contributing again so I fixed dinner—. Well actually I microwaved an entree and a veggie but it still required me to be on my feet in the kitchen for 20 mins which I couldn’t have done last week.
It wasn’t easy. Legs hurt. But I got it done.
Gotta celebrate even the small victories!!
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Cheering for you, Dodgers. Nuke those veggies! Go girl! (hugging you)
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File that under major accomplishments, DodgersGirl! You got this. Always encouraging for me to stop and think 'I couldn't do this [whatever 'THIS' is] a day/week/month/year/whatever ago. It took a long while after my ANLD to fully extend my arm up alongside a kitchen cabinet that I used to crawl with my fingers. Every now and again I'll high-five that cabinet these days just because I can. And it cracks me up. You really do have to experience this shit to get it.
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Scrafgal - hope your sinuses are being kinder to you.
DodgersGirl - it doesn’t matter what you cooked, your DH is thrilled you felt up to doing it. Hope you’re continuing to build strength.
moth - thinking of you.
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Thanks for understanding that small steps are victories!
Been nauseous since receiving XGEVA shot Wednesday. Trying to ignore the sensation but not very successful so far.
Have started walking around the house without my cane as swelling is gone from legs. Taking pain meds every four hours to numb the hip pain. Feeling more normal today than i have in weeks. Woot woot!!!!
I keep reading posts where bone meds pain has improved from treatments so hoping for similar experiences.
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I'm hoping the same for you DG! Nausea just makes you feel miserable though. Hope that subsides soon. Could it be triggered from your pain meds? Kudos for walking around the house cane free. It may seem slow but you do seem to be improving let's keep that rilling
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Saw my orthopedic doctor this morning. He wanted to view my latest scans to check my hip bones. Outcome today same as it was in January— hip bones do not look at risk for fractures!!! Next appointment 3-4 months from now.
Tomorrow is blood work to see what ANC is after finishing first cycle of Ibrance. You take Ibrance for 21 days, daily, then take a 7 day break. ANC has to be at a certain level before you can start the next cycle
Also have a follow up with RO tomorrow. Sure are a lot of medical appointments when Stage 4.
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Fingers crossed for you DG. Hi to all.
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DodgersGirl — terrific news.
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Will be thinking of you DodgersGirl! And isn't it nice to feel Spring coming? We had zero snow but man has it been gray. A little sun really lightens my mood.
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great news about your hip bones, DG!
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Positive news DG! Praying for good bloodwork tomorrow too! It does seem like you have a lot going on but your team sounds good and treatment plan seems to be falling into place. Stay strong. (Insert strong arm emoji)
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Progress, DG! That's great news that your hips are stable - We're all rooting for you and continued positive momentum. Just feeling better has to feel like a victory!
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I passed my blood test today and been cleared to start cycle 2 of Ibrance next week.
Met with RO today who said if I want to try rads for left shoulder pain, he believes I would need just 1 treatment. For now, I want to get Ibrance working on all my bone mets so will pass on more rads for niw
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DodgersGirl — know you’re happy with the bloodwork and ready to get back to the iBrance. Grateful you’re feeling better
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ByHisGraceTwice—. Yep. Know I have to take Ibrance in order for it to work!
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Three years ago today I got the call that I had cancer. Seems like way more than 3 years.
I start Cycle 2 Ibrance today as my ANC was high enough to continue.
MO called yesterday to tell me my tumor markers have dropped since the last test. Sure hope this trend continues!
Next week is amammogram.
I am staying home as much as possible to avoid a flu/cold. Found a new to me home renovation show on HGTV (Home Town) so have been watching that while home bound.
Waving hello to everyone. Hoping you guys are all doing well.
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Hoping for good outcomes for you, Dodge. Big hug.
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Runor- thanks!!
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DodgersGirl — Happy Anniversary and Best Wishes for many, many more! I’m 3 years and 4 months from initial Dx and 4 months from MBC Dx, same date just three years apart. Next November I get to celebrate twice as much.
I had bloodwork last Weds when I saw onc and a CA 27-29 test was done. The result was 13. I looked back and it had been done twice before. My first visit to onc in 2017 and at one year follow up visit. Both times it was 15. I’m thinking it is a good sign as post surgery I hope I didn’t have any cancer left and now post rad I hope I don’t have any left. Will find out more after tomorrow’s PET.
Onc treatment plan is Tamoxifen and Herceptin. I go to cardio oncologist on Thursday for consult for my ever increasingly dilating pulmonary arteries. They’ve tripled in size since initial Dx workup discovered the right main pulmonary artery problem. Since then the left and the main have enlarged also
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Good news on the tumor markers DG. I'm glad things are looking a little brighter. I wish you well with the pet scan tomorrow. Let's keep these anniversary's coming for many, many more years!
I recently had a birthday and received many comments about getting old. Are you kidding, I would love nothing more than to grow old! Every birthday, anniversary, cancerversary or whatever is a blessing I will take every time!!
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Legomaster225– happy belated birthday to you.
I recently had a birthday, too. Put another candle on my birthday cake, for sure that’s a good thing!
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DodgersGirl — hope your PET scan went well, When will you get results?
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Well Damn
Friday the 13th brought news from Wednesday’s PET. Good news — nothing from the melanoma excised in December and no trace of metastasis in left acetabulum after radiation. Bad news — new mets at top of left iliac crest and L-2.
Not coping well with these new developments, especially with doctors cancelling appointments because of Coronavirus. Could y’all please share your experiences about ports, Herceptin and lumbar radiation Thank you.
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ByHisGraceTwice—. Sorry to here about progression to L-2 and left iliac crest. I haven’t had Rads to lumbar nor am I HER2 + so no info on herceptin. I do have a port which was installed in March 2017. I use the port for blood work, scans, and chemo. Oh and while in hospital, used port for IV fluids. I get port flushed every 6 weeks, IF it hasn’t been accessed. Since starting Ibrance, I get blood drawn each month so no port flush visits needed right now.
What port questions do you have? Will answer if I can
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Sorry to hear of the progression ByHisGraceTwice. Good news on the other two though. I can only comment on the port as well but I was very happy with mine. It seemed to make things easier for me as I have tiny veins. I had twilight sedation to put it in. It was not painful; a bit achy the first day. After that, although I could see it because I'm really thin, I never really knew it was there. It made the chemo infusion pretty easy. I had mine removed afterwards but could have kept it in and flushed every 6 weeks if I chose. I would have it reinstalled if I were to go through chemo again.
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