Starting Chemotherapy March 2018
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Kanona- I hear ya. My long hair has always made me feel feminine.. So this is quite the change... But I feel like quite the BAD A** now!! Breast cancer... WATCH OUT!!
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Bec-Ky - You look amazing and a total bad ass!! You rock that cut!
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Chemo treatment 2 on Wednesday. Just cut off my hair and am ready to move forward. You ladies are beautiful.
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Feeling Great Today...My hair is finially shorter, probably allot easier to care for as well on my icky days.. i updated my profile pic with the shorter cut.. my hair dresser always want to trim more than I allow with long hair.. I walk in she usually demenstraights holding her fingers spread apart and inche or so..I always squeeze her inche closer together,LOL..needless to say she finally got her way with my hair..lol she's the Best!! we went today and looked for wigs! Its kind of hard to feel like ur self with dangling hair on u.. thats not yours..
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ladies,
Everyone is different about hair. My last DD taxol was 06/26/17 yes I was bald.
The below is me loving chemo curls.
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Loving everyones pictures!! ❤️
Does anyone experience neuropathy? I don't think I have it but my feet feel like in certain positions they lose circulation faster. Is that what it is? But it goes away when I move... Or reposition.
Just seems to be more noticeable I guess. So... just curious about everyone else.
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Bec-ky - I had some neuropathy in my right hand. It lasted about half a day. Have you checked your blood pressure? Low BP can cause that as well. Perhaps you should hydrate.
Man, some of y'all's pre-shed haircuts are awesome. If I lose my hair no way will I post a pic. I'm not going to be a pretty bald lady like the rest of you. My head is round and weird! Hence the cold-capping.
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bec-ky I had some Pain in my middle fingertip on my left hand when i pressed on it and then i had some sand paper feeling in that finger and my pointer finger or a feeling of hyper sensitivity in the second week after infusionbut it seemed to go away.
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I haven't checked my blood pressure... But I will on Monday when I get to work. I feel like I drink about 70oz of water a day. Perhaps I need more.
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New SE: cankles!
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hello ladies,
Woke up today to a mishapped expander!? I was so worried I emailed my PS and he said it looks like it rotated and that it can happen sometimes ...so now I have to stay like this until my exchange in August! I’m just relieved it’s not an infection. Just another day in the world of breast cancer.
Hapa - I know what you mean, I probably couldn’t pull off the crew cuts look like these ladies, that’s why I always had long hair,hoping the cold capping works!!
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May-is it possible to rotate it back on your own?
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that's an great question I was thinking same, maybe some massage? Idk Im going to ask the PS...I'm going to see him this week so i can ask all the questions I have and so he can see it in person.
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Hi ladies,
Day 3 post round 3 (3 of8). Not bad generally. Just tired. Had great news from my onco this week. My one lymph node had totally disappeared and he figures that the tumour has now shrunk 30%... That's after 2 treatments. Feels good after going through all of this (although,again not that bad) it's working. I am a candidate for lumpectomy. Here is my question to you guys... I am waiting for my genetic testing, has anyone done that yet and know how they do it, how long it takes to get the results? I don't want to get excited about a lumpectomy yet. Hope you are all doing well! The haircuts look awesome :-)
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That's good to hear May07 I hope next week chemo will be smooth
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Tlow —I had the genetic testing done and it took 7 business days for the results to come in. And that's great news about the lymph node and tumor shrinking
Hope everyone has a great week.. gearing up for my treatment on Thursday! My kids so lovingly shared their colds with me so I have been dealing with that the past few days.. hopefully all will be fine by Thursday.
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Urdrago71
My cycle is
Doxoubicin ,Cyclophosphamide and Nasea
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Tlow990 My clinic did the genetic testing through a 3rd party called Invitae and it took almost 4 weeks to get the results.
May07 Have you had your "big" shed yet? I swear I went from only losing 10% to probably 50% now between weeks 3 and 4. I washed this morning and it seems to have slowed way down, but I'm hoping that was the last of the major shedding and the caps continue to work. My husband still says he can't tell the difference, but it feels so much thinner to me.
I am Day 12 past Cycle 2 and really feeling pretty good today, I can really feel a rebound in my energy levels this morning. I am still having major issues with the Big D and I'm so tired of dealing with it. I tried to take a break from the Immodium yesterday while I was home because it seems to be driving my heart rate up, but I had to give in last night and take a couple doses to get things under control again.
I'm looking forward to a little weekend getaway with the kids this weekend and hoping I continue to feel good. My baby girl is turning 7 next week so we will be celebrating her with lots of unicorns
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Bec-ky
Wow! You Rock you look great on that !,I hope that hair style will fit me too..
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Sidalee,
I started shedding a few hairs a day on day 18...today is day 21 and I had a ton of hair come out...I think I’m in the midst of the big shed.my part at the crown of my head is starting to get bigger and I have a little bald spot there. I’m hoping this shedding will slow down and I can just move my part to cover that spot. I’m thinning all over...I have my next chemo on Thursday...idk what will happen with my hair but I’m hoping for the best...how long did your big shed last?
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Sidalee, May07 - I'm at day 20 and losing tons of hair. Started at day 17 and still going as of this morning. Feels a lot thinner but I wouldn't say I've lost 50%. Does this happen every cycle, or just the first one? I don't see how I'll have anything left if it happens every cycle.
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hapa - my thoughts exactly
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May, Hapa,
My onco nurse that has been helping me with my caps told me the first shed is the worst and I really hope she's right or I too will have nothing left. I would say I started shedding around day 18 and it was a lot every day for about 10 days and now it has slowed down a lot. Most of mine seems to coming from around my ears and underneath sort of all over. I haven't noticed any bald spots yet on top.
I am having 6 rounds of TCHP, but it seems like a lot of people are only having 4. I guess it's because my tumor is big.
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I have a smidge of neuropathy in my right leg/foot and it's driving me crazy... I hope this isn't going to get worse.
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Bec-Ky, I also am having way more nerve activity all down my right arm and hand since starting chemo, but they have speculated it's more the nerves healing from surgery than from chemo. I can empathize that it is incredibly annoying! It keeps waking me up at night too.
Re: hair loss, my onco nurse said thinning should taper off over the 6 months of treatment I'm scheduled for. I've done 2 rounds of CMF which is supposed to have hair thinning but not total loss. Feels noticeably thinner to me already but they say other people can't tell, which may be true.The first round I had a very tingly scalp on day 3 or 4, and then it started. I haven't had that yet, I'm at day 3. Seems like some SEs might be a little different each time?
Steph74 - I can relate to the kids and the colds! Woke up to my oldest (5 yo) vomiting in his bed this morning, and yes his dad definitely got to clean up that one, poor guy.
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I just showered and washed my hair... (last time I washed it was Friday after I shaved it to my mowhawk) and Holy Mother of hair. Even though I just have a small patch of hair on top.... You would think I shed enough to make another Mohawk. It's considerably thinner now, even blotchy in some areas. But I just have 1 more day of work before I have a leave if absence.. And I really do not want to wear my wig for the first time ever... At work. I need time to adjust before I hustle around work with a wig on my head.
I have my next chemo on Wednesday.... Im sooooo excited to be able to Soon say I have half of them done!
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bec-ky- the sensations I was feeling in my left hand went away...I think the pain in the fingertip may have been from the ice? But I did feel a little sensitivity in 3 of my fingertips and it subsided ..hang in there
Sidalee- 10 days!? I shed so much today, and that spot in the top of my head ...I hope this doesn’t last very much longer. I am covering it by combing hair over it...
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Sidalee - it seems like we're on the same treatment plan. Also using dignicap.
Bec-Ky - Neuropathy is the worst. I'm fearful that it will be permenant, especially since mine showed up after the very first infusion. My nurse at Mayo said to try B6 and B12 for neuropathy. I didn't get any dosing info but I'll ask when I see her Wednesday. You should ask your onc about it.
I'm happy to report that after a 2 mile run, a night in compression socks, and sleeping with my feet on pillows, my ankles have reappeared!. Still wearing the compression socks.
I had lots of anxiety this weekend for some reason. My BP was even up (to ~130, but that's high for me). I think I need to leave work early and go for a trail run this evening. I'd been just running in my neighborhood after dark to avoid the sun but that isn't cutting it.
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After researching this site... For neuropathy...i have come to this final list that most say is generally accepted and recommended. Now, did I research for a long time? No... But I did read quite a bit and here's my final plan. I will of course ask my onc on Wednesday.. But im pretty sure I'll take it anyways... 😉
I have just placed an Amazon order for :
B-12 (methylcolbalmin form)
Vitamin E
Fish oil (this one was the questionable one)
Powdered l-glutamine
🔥😀🔥
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By they way... Are any of you on Facebook.. And are you posting your journey there? I wouldn't mind following you all there as well ❤️ everyone here is so wonderful to me. If anyone would like to connect on fb, I am there as "Bec-ky" lol
I'm wondering where quiltingnut is... I haven't seen her in some time. ☹️
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