Chemo Starting August 2018
Comments
-
Hello All, I have been out of the loop a few days trying to read back and catch up with everyone. I had third round of TCHP on Friday, SE have not been to bad yet, been well enough to go to work. I talked to my MO yesterday to find out that my MRI shows my tumor to be larger than orig. scans which was about 2.50cm. Now after him reading though it said to be about 3.5cm. I do think it is breaking up some, it does not feel as protruding as it did. I have an appointment with the Surgeon on the 2nd of Oct, and I have a referral to the plastic surgeon. Last round of Chemo is Nov. 16th, and I am going to push for surgery by middle of Dec.2018. I want to get this show on the road. I
0 -
Hughope1, the same thing happened to me, the MRI showed my tumors were bigger than the Ultra sound and mammo, in addition they found addition questionable areas that I get biopsies on tomorrow. It seems like every time I have a new image the size is different. I have read other posts and this seems to be typical although I’m not sure which is more precise. Are you doing lumpectomy? I’m glad you are doing well after your third infusion, my second is Thursday so I’m hoping SE are better this time
0 -
Smansmom I will tell you I feel the same at times, I just want to be left alone. I am of the older persuasion with less on my plate and find it hard at times to deal with all that comes at us. I will tell you how impressed I’m with you and the younger women on this site, the responsibilities you all manage in addition to dealing with all that comes with a BC diagnosis is inspiring. Take care and lots of hugs and good thoughts coming your way.
0 -
Mactaz and hughope1 my tumor was also bigger on the MRI just days apart, my ultrasound said 2.3 the MRI said 2.9 and my double mastectomy just 3 weeks later said it was 3.5. Imagining is a wonderful thing but sometimes it can be off especially if you have a fast growing cance like I did. I don’t know what would make me feel better to know that it was very fast growing or that the Imagining was w
0 -
mactaz it’s good to know I’m not alone in feeling this way. Some days I just want to shut the phone off and cuddle my baby and pretend this isn’t real. I never got to experience motherhood without this and I’m so jaded about it.
0 -
smansmom—I had that insane crushing bone pain from the Neulasta AC#3. However, AC#4 was a breeze. That was so strange. But, a pleasant surprise.
I’m supposed to start every other week Taxol x4 on Monday and got a call from the billing office that I was now on weekly Taxol! Wtf? Weekly is fine but I would have loved a convo with the onc or at least a nurse to call and tell me know that my chemo has increased to 12 weeks. Plus, I have a vaycay planned for my off week that I planned prior to CA. I asked the billing dept to have a nurse call me to let me know the changes to the treatment plan. Grrrrr
0 -
moongirljess wow that is so weird that the billing dept would tell you and not the doctor! Very frustrating! Taxol every other week for 4x and once a week for 12 weeks I was told are the same but weekly is supposed to be easier on your body. If you end up doing it 4x we’ll have to compare notes ! I start taxol next week too! And not to sound dramatic but that bone pain was OUT OF THIS WORLD! I though someone took a hammer to my head and then ran my body over. Hopefully that’s the last of that feeling!
0 -
Mactaz hope the week is ok so far and wishing you a very happy birthday tomorrow! 💕
Hughope glad to see you back and you are feeling ok!
Smansmom most days the only time I feel like I can catch my breathe and try and deal with all of this is when my kiddos go school. Of course you feel like you need alone time -new moms do with or without breast cancer. I am sending you some good mommy vibes!
You are all in my thoughts and prayers this evening!
0 -
SarahNola, bloodwork was good so I'm ok,d for treatment, and today is biopsy, I'm much more prepared this time for infusion on Thursday and my discussion with BS on Friday. I'm staying positive. Thanks so much, cheers
0 -
Originally that was the plan lumpectomy, then they said the MRI and ultrasound took that option off the table. But I told MO yesterday that it is getting smaller in size. He gave me a list of questions for my surgeon on the 2nd. Good lucky girl and stay positive, we are all in this mess together. xoxo
You have already had surgery?
0 -
HAPPY BIRTHDAY MACTAZ!!!! Hope you get great news today!!!!!!!!
0 -
Sarahnola I can hear that! It’s a lot with a newborn at home, getting rest is hard to do around here. Even when he’s sleeping I have a million others things to do on top of everyone wanting to chat and catch up and know everything. I love that everyone cares just wish I could shut down for an hour or two, I hate saying that it makes me sound so selfish.
Mactaz yes I had a double mastectomy 4 weeks before I started chemo. And HAPPY BIRTHDAY!!
0 -
hughope1 yes I had a double mastectomy 4 weeks before I started chemo.
0 -
MACTAZ : Happy Birthday to you!!
Smansmom : I’m with SarahNola! being a new mom is TOUGH stuff; let alone throwing a bc dx into the mix. Take your time, you’re NOT selfish; not one bit.
Platelets and Hemoglobin we’re back to acceptable levels, had AC#3 yesterday; it knocked me on my a$$! A bit better today; thank goodness!
I can’t remember who asked for the level where they won’t do it. My platelets were at 85 (accepted range 140-440). Hemoglobin at 70 (accepted range 120-160). Not sure if all labs use the same numbers, and I live in Canada...
I’m sending everyone lots of positivity and hope; sunshine and rainbows! X
0 -
thanks to everyone for birthday wishes, I’m glad the biopsy is done. I have to say the MRI guided biopsy was much more complicated then the ultrasound guided biopsy. BUT I MADE IT....
KWilli, I’m glad you are doing better today, I hope you continue to feel better.
Take care all, I will update once I find out my results, off to second round of TCHP tomorrow
0 -
smansmom, it’s important to have great support team!!!
I will pray - they are wrong , did she palpated the lymph node under your armpit? So sorry ... hoping it’s a mistake...🙏🙏🙏
I Also didn’t have much time to process everything , didn’t have time to cry, with 3 kids... taking care of everyone ! But I hear you!!
Cdmd bs k from my #3 infusion ...
Sunshine, how you doing?
How everybody is going?
0 -
Hello Bostoniangle25, i am doing great...living quite normal life..:) how are you ?
I have noticed that my hands are becoming dark ... did anybody else experienced same ?
@MACTAZ Happy Birthday
0 -
yey, Sunshine!!! Good good good!!! Happy for you!!!
I didn’t have any problem with darkening skin, show it to your doc , please
I had my third TC yesterday will see about my SE
0 -
Mactaz happy beloved birthday!!!🎉🎈🎊🎂🎁
Smansmom, I try to drink lemon and ginger water I just add some lemon slices and ginger slice. Aldo I m buying frozen cherries, blackberries and put warm water and crush with a spoon add done honey dnd drink/ better than water. Or try smoothies!
0 -
Hello ladies.. just checking in! I've been absent and will have to go back and catch up on everybody's posts. But first I want to update you all!
So, the reason I haven't been checking in is because I have been completely disgusted with anything and everything that has to do with chemo. I've been so sick and dehydrated. Oncologist offered for me to come in for IV, but I refused because I couldn't even stomach the thought of going to that room and sitting in that chair. Just seeing the words, perjeta, carboplatin etc, make my stomach turn. I was avoiding anything that remotely made me think of anything involving anyof it. I texted my onc nurse and told her I thought I was done. I couldn't handle it anymore...
But then, today I had my follow-up ultrasound with BS. In just 2 treatments my tumor has gone from the size of a lime to practically non-existent. All he can see is just a tiny bit around the titanium clip. I still have to finish all 6 treatments and have the year of herceptin. But now it feels so worth it. I just have to give in to the fact that I will be miserably sick and in bed and unable to eat for the first 10 days after treatment. Days 11 and 12 are functional, but still miserable. Day 13 I feel almost normal and day 14 I feel 100%. If I can just keep reminding myself that every time, and just push through it, I'll be good to go.
Hang in there ladies! It is all worth it in the end!
0 -
Anyone else not sleeping? I'm miserable! I lay awake for hours. No racing thoughts—just awake. The onc prescribed Ativan 0.5 twice a day. What a joke. I honestly don't even feel any relief from those. Plus, the night sweats are ridiculous and disgusting. I soaked 3 pillows and my fitted sheet. Welcome to menopause like a brick to the face. If anyone has any ideas on how to mitigate these menopause symptoms I'm game.
Smansmom—I think I might pass on next Monday for Taxol. I'm going to Hawaii the Saturday after and don't want to ruin it for my very overstressed husband. I know that SE are unpredictable at best and never having had Taxol I would fear something crappy could happen. At this point, I don't care if the onc doesn't like it. I will absolutely do the weekly Taxol x12 when I get back. I certainly need not repeat my AC miseries with Taxol, I will take the longer course of treatment.
Jess
0 -
Hi. Just dropping by from June group. Sunshine 89 it’s a side effect from taxotere. I have them. I just finished my chemo so I am hoping it will go away. I had them on part of my face too like a huge malasma but that’s already getting better.0
-
J-bluesky -- that is AWESOME NEWS!!!! Congratulations!!!!!! That helps me as well get through the infusions -- knowing that day 10 is my finish line for feeling like crap -- then eventually I feel better every day until the GLORIOUS day 15 when I get most of my taste back!! Of course, T/C #3 is next Wednesday, but I'll live it up until then.
SO excited for you.
0 -
J-Bluesky - first let me say THAT IS GREAT NEWS! When I started to read your post I was feeling so sad and by the end my spirits are high and I'm glad you will be continuing with your treatment. You go girl!
Today I completed my 2nd TCHP treatment, went well, got home and felt tired but if things go like last time I will be good until Saturday afternoon. I think I have my bowel issue under control so I'm hoping the SE's this time will be better.
I did get the results back today from my biopsy yesterday, news is some good, some bad. The one lesion was a benign fibroadenoma. I only had a chance to do some minor research, but doesn't look like this will turn cancerous. The other lesion was DCIS, I had suspected this since it was in the same general area as my other two tumors. I should find out more tomorrow on what this means, but in my head it shouldn't really change my course treatment (6 Chemo + HP), 1 full year of HP, surgery, possible radiation, and reconstruction. The only thing that might are my surgery options, but if the tumors shrink, like J_Bluesky
, I would think lumpectomy is still a viable option.Oh yeah, and today my hair and I had a falling out --
, this is the second time - I think the next time they act out I will kick the remaining to the curb.Thinking of everyone, stay strong,
0 -
j_bluesky ! You’re giving us all hope! Gotta love the good news! Congratulations!
MACTAZ : I’m sorry to hear about the DCIS. That stinks. Loving your positive outlook.
We’re in it together; let’s keep fighting!
0 -
Bostoniangle25, i hope you feel much better this time...i am so happy for you, you are almost done with chemo...one more and life back to normal yehh.
j_bluesky, i am so sorry about your SE but see the motivation...just 2 3 hard months and you will be back to normal cancer free
hang in there.timetobebrace70, thanks for your reply
much relieved 😌 @MACTAZ i am so happy for you
DCIS must not be a big problem.. 0 -
Dear bluesky, you don’t have right to quit now- stupid tumor shrank- chemo is working, you have amazing daughter and everything you do - you are going for her!!!! Doc should tell you how better manage SE - it’s important to keep it at bay!!!
And you are star, hero- strong woman 🎊🎉🎈🙏!!! You can do it!! Absolutely!!! Hugs to you!!
Mactaz do you have idc and dcis , of just dcis- the last one is not invasive, better than other
Sundhine , thsnk you!!! I’m looki forward to the finish line. But not looking forward for hormonal therapy , it in my case it’s the best tamoxifen to keep low estrogen level !
0 -
hi Bostoniangirl, I now have DCIS and 2 IDC tumors, I believe it is considered multifocal. One tumor was grade 3, the other Grade two. My DX is below. While might alter some decisions I’m optimistic on my outcome. I do believe multi-focal has a slightly larger risk factor for recur but all early stage so that I should good. I will learn more today with breast surgeon. Wish me luck, and all best wishes to everyone. In this thread.
0 -
mactaz good luck today! ❤️
Happy Friday ladies! Hope everyone is feeling ok today!
0
