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Chemo Starting September 2018

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  • M-and-M37
    M-and-M37 Member Posts: 43
    edited October 2018

    hi ladies,

    Been out of the loop for a minute. Trying to keep up with side effects, as well as work, elderly mother, lazy siblings , – you know that life we lived before cancer land is still going on.

    Just had my third round of a/C yesterday. One more round to go and I can’t wait. My worst side effect is honestly been the constipation and this weird thing that’s going on with my eyes- yeah that got so bad this week that I couldn’t wear anymore Ieye make up- my eyes were super puffy and crows Was wearing these giant Jackie O sunglasses to work. The mouth stuff seems to be in hand with the the disgusting but effective swish and swallow. Gross but works. I’m going proactive on the constipation it’s bizarre how many products there are out there but I’m hoping to get a handle on it this time. The Eye thang may have more to do with the steroids. The MO tweaked my AC cocktail yesterday and cut my after treatment steroids in half. We’ll see how this goes. I’m going to go see the ophthalmologist this week anyway. I had some very dense reports to do at work this week and it really kicked my ass vision wise. Fighting valiantly to keep my eyebrows.

    Finally got my prescription for my prosthetic breast. I went in and I guess I never really realized that I have such Ginormous breasts whoops breast. The bra that she had in stock fits really well but my god it’s so much bigger than what I ever wore before. I was always a 36 or a 38 double D and now she’s got me wearing and 40 triple D. I don’t really mind but i feel whistful for those days of fun push up bras of the many colors. I mean the bra and the off-the-shelf prosthetic are way more comfortable than what I ordered online and they look good too, just a little too 1950s lift and separate.

    That’s all for me. Reading back your posts makes me realize what good and courageous company I’m in.

    Best to everyone. Here’s hoping that week ahead is gentle



  • brinkofeternity
    brinkofeternity Member Posts: 181
    edited October 2018

    HeatherPsalm34-4 - Mine started falling out too and my eyebrows started to show some gap already. But the hair on my arms and legs are holding on just fine. Oh well. The only pigment change I see is on the 1 mole on my thigh. Honestly I saw more pigment change from when I was pregnant than now.

    M-andM37 - I've been told prune juice helps with constipation. Hope it can help you.

    The acupuncture didn't seem to help with my neuropathy that much. I'll probably try icing my fingers during infusionagain next week. The nurse would just fold an ice pack in half, tape it, then have me put my fingers inside.

  • JNKK
    JNKK Member Posts: 68
    edited October 2018
  • asknomore2
    asknomore2 Member Posts: 43
    edited October 2018

    Hi Heather

    Now that you mention it, I notice some skin pigmentation changes around my surgical sites which wasn’t there until a couple weeks ago. I had my 4 th dose of Taxol and Herceptin yesterday. I have notice losing a few pubic hairs this week. I have already buzz cut my head. I stopped and brought a couple wigs. As usual my grandson doesn’t like the long sexy looking wig. LOL. He says it doesn’t make me look like a Nana. I said. I know.. wait til I go blonde.😂

  • piksie
    piksie Member Posts: 132
    edited October 2018

    Day 10 of AC #3 today. Similar to #1&2, just a bit more. Day 3 is the hit-by-a-bus day that I tried to sleep through. The upper half of my body is sore to touch, like a giant bruise. Does that happen to any of you? I mostly recovered after that, just a lingering low-level nausea that has persisted this time. Nothing to keep me at home, just enough to be aware of. I think it's better when I keep food in my stomach, so I've been doing so. Some of my pants are a wee bit snug… Oh well… Other than during the infusion, I skipped the steroids and associated SEs, and Claritin did its job on the bone pain. I felt a little anemic days 4-9 so ate all the red meat and spinach I could get my hands on, and I feel like it helped. This last bit of coarse stubble on my head isn't budging, but fortunately, my brows and some lashes are still intact, too.

    In general, I've just been schlepping along, giving most things a half-assed effort. I've kind of been living like "F&*k Cancer. I'm not changing my lifestyle just because of you!" And then I have a moment of clarity. "Umm… get over yourself, Sheri. No more ice cream for dinner; drink more water and less vodka; no sushi for a reason, stupid!" etc… Kind of weird because my lifestyle has never included ice cream for dinner, but now I just don't seem to give a damn sometimes.

    So tomorrow I run the Spartan race after a week of ice cream and vodka, and low-grade nausea that is probably because of the ice cream and vodka. I think chemo brain is kicking in because I failed to request renewal of my epilepsy med, so I will be without this weekend. I'm sure I'll be fine, but just another reason to snap out of it and get my sh*t together. Rules DO apply to me, and I am NOT invincible. Ugh!

    Anywhooo, enough griping. I am packing up to make the three hour drive to the Spartan race and looking forward to both; I'm way better off than I thought I would be two months ago; Everyone else in my life is happy and healthy; and I know I'm loved. I just need to find that place in me that wants to give 100%. Or even >80%. :)

    Hope you're all thriving! xoxo

  • Tigerlily318
    Tigerlily318 Member Posts: 115
    edited October 2018

    Hi all! Gosh, a lot has happened since I wrote. 

    @Fairchild, congrats on the shrinkage! That is awesome! 

    @Heather, I had vein issues on my hands (from the IV) and as the topical bruises fade I have white spots. Meanwhile the brown spot on my face continues to fade. That one is good, but not sure if it is the chemo or products or both or permanent. 

    I am 11 days post TC round 3. More tired this time, the sickly chemo feeling that I can't describe to anyone else comes and goes. But as of about Wednesday started to feel decent. Went to some client meetings on Thursday and today did Zumba, a Target run, and yard work. My thighs are killing me (as if I did a hike up a mountain) and I was extremely hungry all week, but that is starting to get better. 

    We are trying a CBD balm experiment on my husband's neck starting today. I bought some to help with the bone pain but it did not. He has an old neck injury that acts up this time of year, so we'll see! 

    I am losing clumps of eyelashes, but the ones left are super long from the revitalash. Up top, I look like Golum but have some regrowth already. No idea if it'll stay.

    Hang in there all and hope you are all having a nice weekend. 

  • dolceb70
    dolceb70 Member Posts: 6
    edited October 2018

    So relieved to have found this thread. I find so much inspiration and comfort from all that I have read. Just about to embark on the first part of my treatment journey with Chemotherapy. One day at a time.

  • SuefromSydney
    SuefromSydney Member Posts: 111
    edited October 2018

    Piksie you’re doing the Spartan race. And you’re not talking about the kids’ one, are you? Wow..Enjoy

  • Tigerlily318
    Tigerlily318 Member Posts: 115
    edited October 2018

    Welcome Dolceb70! And go Piksie! That's amazing and good luck and let us know how you do! And enjoy the vodka. 

    Not sure about the rest of you, but I have been voraciously reading, studying about this disease. My best friend is now making me read non-cancer books as well. 1 for 1, lol. I suppose that is healthy! I do want to recommend the following though, I read it in 2 days and is the best account I have read so far. So relatable! 

    https://www.amazon.com/Flat-Reclaiming-Body-Breast-Cancer/dp/1510732918/ref=sr_1_1?ie=UTF8&qid=1540149560&sr=8-1&keywords=flat+catherine+guthrie


  • wanderweg
    wanderweg Member Posts: 487
    edited October 2018

    Dolceb70 - Welcome. It can be really helpful to hear from folks who are just ahead on the chemo path. I know it helped me to know what was headed my way and how others dealt with it. I'm doing TC also.

    Similar to Piksie, I've let everything slide in term eating and activity, feeling just like it didn't matter while I was in chemo. But a few days ago, I had a change of heart. I think it helps to be seeing light at the end of the tunnel. I can't be as active as I'd like until I get my ankle operated on end of November, but I have started walking short distances again and doing some arm weights. Not a lot, but it's a start. And I've been seriously rethinking how I've been eating, trying to move toward more veggies, fruits, whole grains and cutting out processed foods. I'll cut myself a ton of slack the week after chemo, but then get back on track again. I want to start feeling like there will be health after cancer.

    Tigerlily, I've been reading voraciously, period. Lots more time to read with the time off work. Lots of books about cancer and about health/nutrition, but also lots of novels. I'll have a look at that book.

    So, I'm on Day 10 after my 3rd TC and thought I was done with all the symptoms (other than general fatigue and bleckiness). I had a brutal mouth sore on my tongue for a couple of days, but that had resolved Yesterday, though, I noticed in the shower that when I rub a washcloth on my skin, it kind of sloughs off. Like I've just done some big exfoliation treatment or something. And last night, I had the worst dry mouth out of the blue. Bad enough that it kept me awake. And here's the weirdest thing: My sister texted me to say she was finally watching the Flight of the Conchords London special on Netflix. I responded that I'd have to find it and watch it, too. I mentioned it to my husband and he stared at me as if I'd lost my mind. He said, "But we did watch it about a week or so ago! The whole thing! You said you liked it, but not as much as their old stuff!" I had zero memory of that. I scrolled back through texts to my sister, and saw that on the evening of my last chemo, I had told her we were watching it. And still, it didn't ring a bell. A total memory wipe from that evening. Talk about chemo brain!

  • kk2018
    kk2018 Member Posts: 54
    edited October 2018

    4th and final AC done!!!

    Didn’t bounce back quite as well after #3. I kept up with things last week and enjoyed a couple meals out with friends but it wasn’t as “good” as my 2 previous off-weeks. Knowing it was the last one helped me maintain my mental health this past week as well, but it was a struggle. Talked about clinical trials with my MO today. He said he was going to do some research for me to see what the closest big cancer centers have to offer as far as the cdk 4/6’s opening up to early stage since my regional hospital doesn’t host any for those particular drugs. Not thrilled about 90 minutes in hellish traffic (which can easily double with a wreck) but I’m obviously willing to make it work if I am part of some treatment arm of a trial!

    Trying not to be anxious about Taxol-it seems that most women say AC is harder, but the devil you know and all that. Started stalking that weekly page a bit more on here, too.

    Eyebrows and lashes and patches of buzzed hair are holding steady. I joked before I buzzed that I would be like my tortoise shell cat-my scalp would look multi colored since my hair was blonde/brown/red, and while my skin is all one color I do look moth-eaten with what appears to be patches of different color hair all over my scalp. Maybe it is just baby hair that is blonde and my old hair is brown. If I pinch the dark hair it comes out, but not if I don’t give a tug. I’m sure taxol will do in the remainder 😫

    Before cancer I l.o.v.e.d wine. Like maybe too much. But I have had no taste for it whatsoever since chemo started. I miss having something soften the edges a bit after a long day. We do have medical mj here and I got a card recently but I just haven’t gotten around to a dispensary. In my travels I have enjoyed getting dosed ediblesI don’t want to get wasted-just want the “2-3glasses of wine” buzz I miss while cooking dinner and chatting with my husband!

    I think of you all often and wonder about everyone spread out all over the globe walking through this-It is truly an unexpected positive part of this experience. I remember when I was pregnant with my first and anxious about birth that I imagined myself as part of this whole ancestry of women who had done this before and the power that had been passed on from generation to generation. This has illicited similar feelings.

    I’m sorry this is long. I find this more satisfying than journaling but then I take it too far! Strength and manageable SEs to all ❤️

  • Elizabeth9
    Elizabeth9 Member Posts: 31
    edited October 2018

    KK2018...you sound similar to me. I love(d) my white wine--Pinot Grigio for me...but cannot tolerate it anymore. I had one glass the night before bloodwork and my liver enzymes spiked. Given how hard chemo is on the liver anyway, I think it is good if I abstain. Dr said abstain for the next session and lets see if its the wine or the chemo spiking the enzymes...I did, and it is definitely the wine..good thing I feel unwell so don't really miss it... But I still miss it for the same reasons as you...chatting with my husband, while cooking dinner...etc

    I am about to have A/C #4. I am still struggling with my #3, have not bounced back. Very fatiqued, cold clammy alternating with hot flashes, diarrhea, restless nights, up early... Worried about the Taxol start...some say it is easier, some say more difficult. It seems everyone's reactions are so widely varied, it is impossible to know.

    I feel like I might be battling a small depression...find myself weepy at random times, and so very very tired.

    In my mind I know it is all a phase, and I will come out the other side in April 2019...but it's hard to keep positive when feeling so crummy, physically and emotionally. I value these forums because we are all in this together.

  • fairchild
    fairchild Member Posts: 149
    edited October 2018

    Hi, y'all! I hope everyone is hanging in there! You are a great group of people, and it always makes me feel better to come here and read your posts. I've been really down and out after this 3rd chemo...just feeling like I have a really bad flu...unable to move from the couch much, and basic self-care seems really hard this time. And continuously soooo nauseated! I had to go see my plastic surgeon yesterday, and something about it just got to me...I started crying and couldn't stop. I HATE crying, but there wasn't exactly anything I could do about it. I'm so DONE with these TE that do not look remotely like real bosoms. One is much larger than the other, and they hang in weird positions that real ones would never have. The scar on the left one hasn't healed...it is knit enough that my tissue is covered, but the scab comes off periodically and then reforms...over and over and over. She says it's because of the chemo, and she's leaving it alone until I finish chemo in January. At least she is having me come in to check it, which is responsible, I guess. I suspect this is all getting to be a bit much...missing the wedding I wanted to go to, the frankenboobs, constant nausea. Most days I can manage, but this week I've just lost control of crying. Sigh.

    I'm worried about having to take Herceptin and Perjeta for a year. I had thought it would just be the Hereceptin. I looked up the SE of Perjeta, which were so discouraging: hair loss and nausea. I don't think I can take another six months of this. And I've been consulting a bit with my students, and I notice how severely chemo-brain has affected my ability to work. Like some others have said, I've lost whole conversations with no recall at all. I don't see how I can teach effectively next spring if this persists.

    Of course, it may not persist. It may be fine. I just need to get through this week, so I don't think anymore about the fun I'm missing, and be grateful that I have such support from people around me. I was really afraid when I was diagnosed b/c I am divorced and all my friends work and have other responsibilities. But my cleaning company, bless them, have stepped up to bring soup, and the church has been there for me, and my blessed adult kids call just when I start feeling blue. This will pass.....These things will pass......

  • pcranky
    pcranky Member Posts: 81
    edited October 2018

    Elizabeth - Don't worry! everyone is different and ymmv, but I've started with Taxol and even having a way worse time than a lot of people, i still find it doable. I just need a lot of rest and some side effect mitigtion but its manageable.

  • Tigerlily318
    Tigerlily318 Member Posts: 115
    edited October 2018

    Good afternoon......congrats KK! A phase of treatment done! Heather and Elizabeth, I've been a bit weepy this week too. I'm now 14 days post Round 3 of 4 of TC and CANNOT WAIT for next Wednesday. I don't know if the weepiness is because I'm tired, menopause stuff happening, or because my husband, who has been great, was a dickhead the other night. He's not an apologizer, he just does better. So he is, but it sure set me off towards the weepiness. I've always had control over my emotions for the most part and don't at the moment. This round has been harder. I have that almost but not quite sick feeling, the icky feeling that I can't describe to anyone. I also, have not been wearing my reading glasses because I don't like wearing them with my chemo beanies at work. I'm working from home tomorrow and Friday. I'm sucking it up today at work and the next two days can wear my classes without a hat. 

    Speaking of hair, my chin length straggling hair is getting thinner and thinner. I think I'm going to schedule an apt in the next couple of weeks to get myself a balding pixie. It's not going to happen where I can keep the length and regrowth and the hair sticking out of the baseball hat or beanie is getting less and less. I plan to go with wet hair and not blow it dry. My stylist knows what's up and has worked with others in this situation. There is so little to cut I don't care what the cold capping people say - it's all about my scalp at this point there. 

    On a positive note, we're going to see Hamilton on Sunday (can't wait!) and my beloved Red Sox are in the World Series. So working hard to stay up late for those. And my brain seems to be working ok cognitively. So far....


  • monlee
    monlee Member Posts: 5
    edited October 2018

    Hi ladies. I will be starting hormonal therapy end of next month. I see some are going on Femera and some Tamoxifen. Could you please tell me how they decide what we go on? Don they make sure we are pre or post menopausal? Thank you. My head is always in overload it seems. I am 54 not sure if that matters!

  • JNKK
    JNKK Member Posts: 68
    edited October 2018

    Congrats KK on finishing all 4 of the AC.

    Fairchild, I am sorry that you had to miss the wedding, but I really think that you made the right decision.

    As for the wine, I am not missing it so far on day 10 of my third round of TC. I actually have different reactions to chemo this last round. I am more tired, and on day 9 (yesterday), I started having heartburn and rashes! I have never had heartburn before so it took me awhile to figure out what was going on with me. I thought I was having a heart attack! It is so bad that I didn't get a decent sleep last night. I am taking Zantac, but I am not sure if it is helping me at all. I contacted my MO about the rashes and was told to take Benadryl twice a day; but I also told not to drive while taking it?! Anyway, she ended up telling me that I can just take it once at night, so that I can drive my kids to their after school activities. The rashes got so bad that they were swollen to a point that they hurt... On one hand, I am so ready to put this chemo behind, but on the other hand, I want to just stop! I don't feel like myself.. I hate feeling like this. Yes, this too shall pass, but it truly sucks A--!

  • Elizabeth9
    Elizabeth9 Member Posts: 31
    edited October 2018

    Hi TigerLily..I am much like you...weepy, tho not a crier either, except maybe when alone. MY husband was a dickhead last night! Still mad, I know it's hard on him too, really I do, but he needs to remember every ounce of me appearing normal is an effort to me and exhausting. In my case, he was a dickhead when he said, "Why are you so tired. All you did was go to an appointment today" Yes, but the previous two days I was in bed all day with nausea, diarrhea, bone pain and exhaustion. Did he really ask me why I was so tired? Still fuming. It's really the first time his stress / exhaustion has come through. :( . I have never had diarrhea before with threatment, always struggled with a bit of constipation for Rounds 1 and 2...this time I have the trots all day. Probably adding to my exhaustion. I have Parent teacher interviews tonight and just don't want to face the world of people I know looking and feeling like this. I am so tired of it all, but know I have lots to be grateful for. I will be finished everything by April 2019, which is also when my grandbaby is due so I have that to look forward to. Sigh, sorry for sounding negative but it's been a bedridden, bathroom filled, exhausting week topped off with the " Why are you so tired?" comment.

  • Tigerlily318
    Tigerlily318 Member Posts: 115
    edited October 2018

    I have a bump on my tongue 🙄and my throat feels a bit off, swollen, etc. so maybe there are more bumps? Chemo related? A few years ago I had a bump removed from my tongue. They suspected scar tissue from a cut. But now I am a bit worried, and hoping it goes as fast it appeared. Any thoughts?

  • BT39
    BT39 Member Posts: 24
    edited October 2018

    I'm sure you have, but have you tried gargling and rinsing with 1 tsp of salt water and 1 tsp of baking soda in like 6-8oz of water several times a day / after meals? I have been doing that 4-5x a day. I know, things just sometimes pop up - so frustrating!

  • kk2018
    kk2018 Member Posts: 54
    edited October 2018

    Tigerlily - Hamilton was so freakin' enjoyable - I loved it. I would see it again in a heartbeat, well, maybe only if I won a daily drawing free pair of tickets, because it did cost a fortune, lol! But I loved everything about it, and I generally don't get excited about musicals!

    My mouth is weird all the time, I brush multiple times a day and try to do whatever I can to make it feel less gross but no luck. No sores or bumps though, so no advice there.

    My husband has been generally good. We own our own business that has had a bit of a rough patch since my diagnosis - we kind of left things to be run by his business partner and our staff and it is noticeable when we are not actively participating in the day to day - I personally find it a decent distraction but I think my husband is buckling a bit over trying to shore up our only form of income, having to reinvest personal money back into the business and trying to help run our household with me not firing on all cylinders. But hearing both he and his business partner complain about their workload and everything is sometimes hard for me to stomach. I want to say that I have to listen to their shit AND feel like shit and still get shit done so a little less whining and sighing and little bit more positivity would go a long way! The house isn't quite falling down around us but I find that I am more irritated that it isn't clean bc I am staring at it all constantly, too tired to really dig into any of it. I finally changed out some decorations that said "Spring" on it. Clearly that is where time stopped this year.

    I'm on day 5 which has generally been a crap day post-infusion. I'm also due for MY cycle but who knows if that will happen this month. Watching a handful of friends celebrating their 40th birthdays via facebook and trying not to get depressed about it since my 40th was 2 weeks before my bmx and I felt like my world was coming to an end. I look like hell, I don't feel great and am struggling to find things to look forward to. While this 8 weeks was manageable I feel this heavy weight when I think of the next 12. Maybe food and drink won't taste as terrible on Taxol. That would be nice. Thankful for the weekend and for the promise of rain - it will be nice to have no excuse but to stay inside.

  • JNKK
    JNKK Member Posts: 68
    edited October 2018

    At this point, I will say all the weird feelings that you have with your body is all due to chemo!! So the rashes that I have is just not that simple.. The rashes are actually due to medication allergic reaction. My Dermotologist told me before that she will see me anytime I need to be seen by her, so I called on Thursday morning and was able to be seen by her that same morning. She determined that I have Erythema Multiforme, but just to make sure, she did a biopsy. She also knows some Dermotologists at my cancer center, thanks to her, I was able to get an appointment with a Dermotologist the next day (otherwise it takes at least 2 months to get an appointment!). I was told by the Dermotologist at my cancer center that I will need to talk to my MO about my next round. While it is unlikely my allergic reaction is from chemo, but if it is, it will be deadly next time this happens again. At this point, I am not sure what I should do. On one hand, I am ready to quit, but on the other hand, I am only one round from completion. I want to ring that bell I so deserve. I won’t hear from my MO until Monday, I just have to be patient. Meanwhile, I am covered with itching and burning rashes all over me including my face.

  • wanderweg
    wanderweg Member Posts: 487
    edited October 2018

    JNKK - Yikes, that’s a scary decision. I guess you’ll see the MO immediately before your last infusion and won’t know until the last minute?

    I haven’t had a rash, per se, but my skin, especially on my face, has gotten super dry and rough. I’ve never had skin issues before so it has to be the chemo. My nose is all dry, too. Anyone else having problems with skin (it feels grainy, like I’m having a mild contact dermatitis reaction) and what do you use for it

  • JNKK
    JNKK Member Posts: 68
    edited October 2018

    Wanderweg - there is a post on here that is from a girl named Tiffany who had left a few tips to others that are on TC. One of her tips is: “MOISTURIZE like crazy. After every shower, cover yourself in a high quality, paraben free, hypoallergenic moisturizer from head to toe. Moisturize your hands and feet every night, and wear cotton gloves to bed.” I have been using Cerave, but I don’t wear gloves to bed. I hope you find some relieve soon.

    Rashes have gone down quite a bit this morning, but now I am coughing a bit. I am a mess....

    Here is the link to Tiffany’s tips for anyone interested in reading. https://community.breastcancer.org/forum/69/topics/839070?page=2#idx_54

  • beeline
    beeline Member Posts: 193
    edited October 2018

    JNKK - that sounds miserable and scary. I hope it’s not the chemo and that you have a satisfactory resolution. As you said inyour earlier post, this sucks a$$!

    Wanderweg - my skin has been terribly dry, too, after having been oily my whole life. I have mostly been using coconut oil from the supermarket (just get the stuff that doesn’t smell like you’re sautéing yourself).

    KK - congrats on finishing AC!

    I’ve had a very rough time emotionally on what is usually my “good week” in the run up to AC #3. Like others have mentioned, I’ve felt quite depressed and alone watching friends celebrate normal milestones. We went to a bbq with friends last weekend and I came home and unexpectedly sobbed. I’m not a crier and it’s not like me to feel sorry for myself, so I wonder if it’s chemopause setting in. I did get a period (my second since starting treatment) this week, but it was not normal — 3 days of a light flow but with bad cramps throughout. Whatever is causing the emotional side, I hope it’s temporary.

    Piksie - let us know how your race went!

    Hope everyone is hanging in there!

  • fairchild
    fairchild Member Posts: 149
    edited October 2018

    Ladies, it sounds like we are going through remarkably the same symptoms this round...weepiness, rashes, fatigue, etc. I'm not normally an emotional person, but I am right now. I hate it. But it makes sense. My oncologist said that chemo cummulates in your tissues, so that later infusions can cause more s.e. That seems to be what's happening. And somehow I didn't expect it, so experiencing it is very confusing. Oh, well...I ask myself if it's just me 100 times a day, and y'all help me realize no, it's the chemo. Just ride it out. I have 3 more infusions, but if my mood doesn't improve, this is gonna be really hard. It turns out I've been really anemic, too, so they gave me an infusion of iron last week, and I get another one on Wednesday. It'll take a while for me to feel better, they said. Meanwhile, I'm breathless walking from one room to another. I'm so glad I'm not working now and honestly, that I'm divorced with grown kids. My ex left me the last time I had cancer, so this experience is calling up bad memories (he literally said he didn't sign on for this, which is funny, in light of our vows!). But at least this time I can decide who I choose to be around. Not surprisingly, I guess, I'm choosing not to be around anyone for about 2 weeks after each infusion...I'm so tired and nauseated that I just can't do it. So I have 1 good week every 3 weeks when I can at least have visitors. Meanwhile I read a lot and try to work at home as I can. I'm praying for you all....I think most of you are younger than I am and it makes me mad that this disease should disrupt your childrearing years. Hang in there!


  • piksie
    piksie Member Posts: 132
    edited October 2018

    Good morning, Warriors. Day 5 of AC#4 (the last AC!!!). Overall, I'm doing very well. I had the weird full body bruised feeling days 3 and 4, but it seems to have subsided. Now I'm just drained with a cold that is threatening to become a sinus infection. Counting on Neulasta to kick up the WBCs! My boys aren't necessarily helpful, but they do let me sneak away for naps when I need to. As for other SEs, my face is very dry, but adamia therapeutic repair lotion seems to help. The base of my nailbeds are darkening, but I think I'm just going to have to wait that one out. The plucked chicken near death look remains on my head. Constipation has been manageable with Senokot and coffee. Night sweats and hot flashes are unrelenting. I feel very fortunate to only have the SEs that I do. I know that some of you are having a very hard time, and it seems like luck is the biggest factor.

    I did run the spartan race. It was amazing to be out there in the dirt, scaling obstacles like nothing is wrong with me. I didn't want it to end. I went as incognito as possible with the dark do rag under my number and headband so it kind of looked like hair. My team had shirts made that I was initially reluctant to wear, but it was a very sweet gesture and meant a lot to them. And the part referencing me was small enough that only a few people commented. And those were “my mom/sister/aunt etc....." I love being out there so much that I'm doing another one in November. I signed up for these in May when I was on top of the world. I'll be on day 12 of Taxol #1 and not exactly at the top, but that's okay.

    Happy Sunday to all of you. I hope you're making the best of it. imageimage

  • umakemehappy
    umakemehappy Member Posts: 28
    edited October 2018

    Holy crap, Piksie.. you are AMAZING!!!!!!!

  • MtKushmore
    MtKushmore Member Posts: 29
    edited October 2018

    @Piksie Bad-ass!!! You're amazing!! And those pictures look wonderful.

    @Wanderweg My face is a mess too. It feels really scaly, although when I probe further, it's this wild mix of super dry and super greasy (I guess? Since there seems to be endless sebum. Gross.). My first round I had a bout of acne, but that hasn't really happened since. I've been using a clarifying toner after washing, and moisturizer.

    I'm on Day 6 of 3/6 and I feel pretty crappy. Days 5-8 are always junky for me so I sort of expect it, but it doesn't make me feel any better!!! Everyone on my Facebook feed is out at Halloween parties, and I can barely do anything for more than 20 minutes without losing energy. I definitely go through a lot of emotions too— these days it's a lot of anger, like "Why is this happening to me??!", especially being in my 30s. Everyone else around me seems to just be living normal lives, with their normal problems. I find myself getting annoyed when my friends (who don't know what I'm going through) complain about really trivial problems. I guess this whole thing has taught me to put things in perspective....... but I'd rather be ignorant!

    Hot flashes started last week, thanks to the Lupron, I guess? So fun!Bonus is I’ve so far managed to not get my period this month, so I guess the shot is doing its job as promised- ha!

    Sending my good wishes to everyone!

  • dolceb70
    dolceb70 Member Posts: 6
    edited October 2018

    Round one of four of TC for me tomorrow. Reading all your posts and finding strength. The fear is beginning to subside and now I just want to get this all started. Hope I can sleep tonight. I feel so good right now and cannot imagine feeling like crap for the next twelve weeks. I know I can do it after seeing all the support and strength on this page.