Normal cells a surprise so they want to do surgery
Hi everyone. I am going for a second opinion next week but was hoping to "speak" to someone who has had a similar experience. An area of architectural distortion was found on mammo and I was called in for a repeat followed by an ultrasound. I was told that I needed a vacuum assisted biopsy. I was warned that it was possible that they may find non-malignant cells - either a radial scar or sclerosing lesion - and that would mean that surgery would be required even though actual cancer was not present. But when my PCP got the path report first and called with the news that it was totally normal stromal fibrosis and fibrocystic changes I was quite relieved. I have had fibrocystic condition forever (age 53) and have had yearly mammos since I was 25 as a result with never any issues.
However, the pathologist called 15 minutes later and said that they were certain from the ultrasound and mammo that they would have found something NOT normal and therefore he did not believe the results. He recommended that I have the entire site removed which, because they could not get a good view due to the distortion, he was "guessing" would be "somewhat larger than a golfball." Oh, and it is at the top of my breast so that is going to look just lovely, huh? When I suggested waiting 6 months and doing a repeat mammo and ultrasound he insisted that surgery was absolutely necessary because cancer in middle-aged women tended to be aggressive. I tried asking more questions because this was making NO sense and he got very impatient, said this simply had to be done, and handed the phone to the nurse to schedule the surgery. Frankly, he was a jerk and a bully and I do not respond well to that.
I did research on "discordant" findings between what they expect to find from the imaging and what they actually find on biopsy. Apparently there is a false negative rate but it is very low. I just can't see disfiguring myself when there is no basis. I have absolutely no risk factors other than being unable to carry a child to term and having 3 miscarriages as a result. Other than that, nothing. I am seeing another breast surgeon next week who will have all of my films, ultrasounds, and biopsy.
Can anyone relate? I am worried but trying to keep my head and make sense of all of this. Any thoughts or personal experiences would be greatly appreciated!