OSTEO NECROSIS due to bone meds?
I've posted several times in the past using ZOMETA as a subject. I am stage 4, still on chemo and ARIMIDEX every three weeks. Since 2009, I was receiving an infusion of ZOMETA every 12 weeks. I began having "problems" in my mouth shortly after. I complained to my ONCOLOGIST and she wanted me to stay on it. Due to the side effects, I was told not to have dental work because the jaw would break down or collapse. I stopped the Z August 2019.
Years ago, I came down with an ulcer on the roof of the mouth. I could not find a dental surgeon who would touch me. I still have the ulcer. In 2019, my left lower jaw was in pain and eventually I saw an Infectious Disease specialist, the only medical person who would treat me. I could no longer see her after March 2020 because she was needed by the CDC for COVID. She prescribed AUGMENTIN and I was on it over a year. My rear lower jaw was breaking down and I was in a lot of pain and on A continuously for more than a year. I have bones growing out of my gums on that side.
I finally found dental surgeons at a major medical facility 2020. They pulled my wisdom tooth but they cannot remove the bones in my gums because of the fragile situation of my jaw. Since the small bones stick out near my tongue, the side of my tongue feels like I have razor cuts on it and I've had ulcers on and off. I'm still in a lot of pain to this day and back on Augmentin. I've been told this will be ongoing, no end in sight.
My ONCOLOGIST told me that no one has been on ZOMETA long term so she didn't know what to expect. This is only a short version of what has happened to me because of Z. Please be careful.