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Pneumonitis

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Comments

  • karpc
    karpc Member Posts: 192

    flying kites - I am so glad you have more help now! I understand how scary this is and maddening when you are ignored. Hopefully the ball is now rolling and you will get treated much better!

  • ninaca
    ninaca Member Posts: 232

    Glad to find this link (didn't pop up at first because I spelled pneumonitis wrong). Easier to write ILD (interstitial lung disease). I am lucky that they saw ILD on a PET scan the day before I was having an infusion with Enhertu, they stopped me from going in- said it would have worsened the problem. Lucky it was Grade 1 and I did not have symptoms yet but scary that it could have developed into something way worse. Prednisone, 20 mg a day for a month cleared things up the CT scan so I can start chemo again in two weeks while I taper off of the prednisone. Just wondering if it did come back from anyone after starting chemo again? I will try the same chemo at a reduced dose since it's such a good chemo for me. Thanks everyone for your comments and thoughts.

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