Treatment Zoom Meetup (Tuesdays) place to keep chatting
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This sounds pretty darn good to me. I've been drinking aloe juice and eating fresh figs while they are still in season. A few prunes here and there but they add wind to my sails if I eat too many
I always keep the SmoothMove tea handy, especially when I go on vacation. When we would on girls trips and everyone would eat poorly and get bound up, they'd be begging me for the "poop tea" they were teasing me about days before! Its made with senna but tastes good and is gentle. This combines all of those so I'm sure its a winner. thx0 -
Hello lovely ladies~~~ Nicole checking in here to say hello!
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Hey Girls, it's Julie here. I am so glad to have found the support of you all. Sleep is eluding me yet again. I fall asleep fast and hard then wake up and just toss. Anyway...
Nicole? Where do you get the Aloe Juice? A heath food store? Amazon? We have a Nutrition shop that adds a shot to tea and I love the way it makes me feel. Energized. Of course that could change with chemo.
The Fruit Paste sounds like something to try. I'm already constipated just from eating anything and everything. I usually eat healthy but not this past month!.
Listening to the talk of missing work hit home with me. I work for a family owned business. They are great saying do whatever you need to, take the time you need blah blah blah but what about the money I don't have when doing that? My last check was about a third short for just taking off for appointments and tests this month. I can work anytime of day or night as we have been remote since Covid started but sometimes my anxiety is too high for that right now. Plus they have been on a training frenzy trying to learn all my tasks. I swear they are preparing for replacement. They even hired the gal back who I replaced 10 years ago to " fill in" Do I just bite the bullet and accept this and ease into retirement? I've been thinking of it anyway. I am 61. My hubs is quite a bit older and been retired for over 25 years.
Gosh! Late night, early morning rambling. Have a beautiful Wednesday my fearless pink sisters! I will be thinking of you.
Chemo starts tomorrow! When previewing this and seeing my signature, at my appointment last week he said the tumor is actually almost 3 cm, not 1. The radiologist read it wrong????
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Hello Carolyn! Yes this is the place where we can keep chatting! Positive vibes and karma sent for you and your hubby.
Nicole - I totally forgot about Aloe Juice of course I have the polar opposite of constipation. I have been taking aloe tablets for my issue and it did help. I got mine from my acupuncturist office.
Julie - I'm sorry to hear about this, sounds like easing into retirement might help with your anxiety ...if you can afford it...I say go for it. I'm in my 50s, so like Nicole I need to keep on working. Thankfully, I work for a larger corporation and they have been really supportive.
I have an update! After emailing the nurse liaison Wednesday, calling the Seattle Campus for another surgeon referral and getting quite testy (not my proudest moment), scheduling finally called! I will have surgery Friday the 3rd. What a relief, just one day outside the five week window. I'm busy doing some online grocery shopping for that - need to quarantine as I had my pre-op physical as well as my COVID swab - I think they got some brain tissue. LOL.
I plan on seeing everyone Tuesday providing all goes well with surgery. Fingers crossed for clear margins!
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GREAT NEWS, MimiArmani! So very glad they can get you in! Sending good wishes for a successful surgery and speedy recovery!
Hope to see you Tuesday!
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Glad they could fit you in! Good luck
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That is great news Mimiarmani! Sometimes we must advocate for ourselves in a very not nice way! Aloe pills? Hmmmm.
Had my first chemo today. Here's the update from my blog journal.
Started Chemo today. It was supposed to be last week and he delayed it to biopsy some lymph nodes. They was a possibility he thought maybe they had no cancer. He was wrong. Didn't change the chemo part. Just what would happen with surgery later. My treatment is TCHP. Every 21 days, for 6 treatments with some continued drugs for a bit after that. I have Invasive Ductal Carcinoma. T2 tumor. Her2/ER+.All went good with the chemo. I had a wonderful nap there and another at home. Drug induced naps rock!
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Julllyn - one chemo down! Love that you are journaling. Thanks TXLorelei! Me too, glad that part is over now. Onward to radiation.
Surgery went well. I was out walking the dog today. The doctors encourage walking and also arm exercises due to the lymph node dissection. Now just hope/pray for clear margins!
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So good to see everyone here. See you on Tuesday!
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MimiArmani, glad to hear surgery went well and you were able to get out and walk. That's great. I hope you are feeling well today.
I've been doing some reading and research on surgery. Pretty sure I will go ahead with a double mastectomy. My oncologist says its my choice.
Everyone else doing ok this week? I am day 5 after chemo and feeling yucky. Ive made myself eat and drink what little i can tolerate. See you all Tuesday!
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Hello lovely ladies. I'm still feeling well. Been walking each day. Jullyn - interesting my surgeon wouldn't let me even entertain a double mastectomy. Said it wasn't warranted. I think you should do whatever will give you most peace of mind. As far as chemo making you feel yucky - I bought Chimes - they are a ginger candy ype that seemed to help me. I liked the orange and mango flavors. I also drank lots of water to help flush it out quicker - not sure this will help you or not, just suggestions. I also made ginger water - boiled chopped ginger root and strained to drink. Hope this weeks chemo treats you a bit better.
I promised to post the scar meds my paperwork talked about...
Scarrid Natural Scar Formula
Dermatix Silicone Gel
Revitol Scar Cream
Mederma PM Intensive Overnight Scar Cream
I'm sure there are more on the market and Carolyn shared one as well. I will be reviewing these and purchasing this week.
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Hi Ladies,
I so enjoy our weekly meetings. It is a bright spot in an otherwise sad time. I had a rough time with chemo effects starting Tuesday night and all day yesterday. Just extreme nausea. I couldn't entertain the thought of eating or drinking anything. It was all I could do do eat ice chips. It eased up a little yesterday afternoon. Seriously though, if that's the worst I think it will be ok. I had been taking my anti nausea meds but not Imodium. I think I might start it a little sooner next round. I am not sleeping, days and nights are all messed up. Going to try a light breakfast in a bit and maybe work some today. My next chemo isn't until the 23rd so hopefully I will be back to a semi normal state by them. I am a baby not used to being ill or taking g meds!
Cleaning lady coming today to give me an estimate. She will probably charge double when she sees the state it is in!
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Sorry you are feeling so lousy and I do hope that the worst is over for this round. I hired a cleaning lady too for support through this all. I hope she is affordable as it is one less thing to worry about. Hang in there!
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MimiArmani - I had two offers to pay for a cleaning lady so thought why not? I'll take you up on that! I was afraid when company owner came to look Friday she would see all the cat hair, dust and all that and bolt or charge double. Instead, when cats came up she said she had 4 inside. So, my two are nothing. Lol. I finally felt like eating last night .
I didn't eat or drink much for two days. Forced small amounts of water. Today, however I'm waiting on my daughter to bring burgers. Of course, my taste is all messed up and everything feels like chalk in my mouth. I am upright,dressed and sitting on the porch.
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Hello ladies, I decided to share a recipe that I ate quite often during chemo.
CLOUD CAKES
3 large eggs, separated
1/2 cup small curd cottage cheese
1/4 cup flour (you can use Almond if gluten intolerant)
1/4 tsp salt
1/3 cup milk (almond milk if you prefer)
In a medium bowl, whisk together egg yolks and cottage cheese. Mix salt into flour and gradually whisk into egg mixture. After flour has been incorporated, gradually whisk in milk until smoothly blended. In a separate bowl which is dry and free of any oil, beat egg whites just until stiff. Gently fold into yolk-flour mixture until evenly blended. Let batter stand 5 minutes.
Cook in 1/4 cup portions on a hot, greased griddle...like pancakes. Cook until lightly browned on each side. Divided among 4 plates and serve immediately. These are delicious topped with fresh fruit or fruit compote (many doctors encourage cooking our fruits).
Cheat: I put the whole batch into a cast iron skillet and bake like a frittata, 375 for about 15 minutes. Then slice it like a pie and have it several days in a row. High protein food that is rather bland in taste.
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Sound interesting Mimiarmani. I might just make these after my next treatment.
Well, yesterday was the day. I got my hair all cut off as it was clumping out.
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So sorry my computer was freaking out today. VPN issues. I'm sorry I didn't catch everyone's updates. If you feel like posting an update here I would love to catch up. I think I was able to give my update today, but feel free to ask any questions.
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Looking forward to today! I've had zero ambition since my treatment Thursday so am glad to have something to look forward to.
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Jullyn and MimiArmani, hope to see you next Tuesday!
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Hopefully, seeing you today!
TODAY: Zoom virtual meet-up for people going through chemotherapy (caregivers welcome)Tuesdays 1:00-2:00 PM Eastern Time (US and Canada)
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Hi Ladies! I was going to say Happy Friday but realized it is Thursday.
I have a question. What was the supplement you were talking about in the last Zoom? 0 -
Hello! I took Glutemine (THORNE brand) to prevent neuropathy. I also took a probiotic for tummy issues and Arthroben for the muscle joint paint I got from the chemo.
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Glutemine! That's the one. Thanks
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these sound fabulous!!!
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I also take the glutamine by Thorne to prevent neuropathy, but it should be noted that it also is used to support guy health, liver detox and immune support- all of which we could use right now!!
The PROBIOTIC I take is called VISBIOME. It was recommended to me from my Functional Medicine Dr and it has 113 billion per capsule!! Waaay more than anything you can find in stores and it’s been highly studied and tested. It’s definitely worth the money for me and my guts have been pretty normal throughout chemo- which I’d consider an absolute miracle. DO NOT BUY ON AMAZON! get it directly from the company at Visbiome.com as it will come packed cold with a temperature indicator on it. It has to stay refrigerated. It is the real deal and if you can afford to buy a few bottles at once, they are cheaper. I will stay on it after surgery especially bc when taking antibiotics that will wipe out all your good bacteria- so this will help your body rebuild the micro biome. Hope this helps! Love you ladies!
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Hi All! I hope you are all having a great weekend. Thanks Sunbunny for the heads up on the probiotic.
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Hello ladies, I got a new cream from the naturopath for the radiation burns/pain. It is called Manuka and it has been incredible! I do not like the smell at all, but this is all temporary and it is working! Today finished 12/25. Hope everyone has a great weekend.
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Great to hear, Mimi! Thanks for sharing.
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MimiArmani you are in my thoughts today.
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Good zoom yesterday. I go tomorrow for my 4th of 6 TCHP. I hope this round is as good to me as 3 was. Heading out later to do a grocery pickup so I'll be ready with the few things I'm able to eat those first few days. Hubby still in rehab so I will be alone this time. Not that he does much for me, but he's around. Its weird now with him not here. Since Clovid and I started working from home we are together constantly.
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