Intramedullary metastatic disease?
Hi, I need some support. I was just diagnosed in October and I thought I had all the mets - brain/bones/liver/lungs. Then I was diagnosed with leptomeningeal disease one month ago. (Did whole brain radiation and am now on Xeloda/Tuksya for that.) And now, I just got MRI results that say this:
"New 3 mm nodule of enhancement within the right aspect of the cervical spinal cord at the C7 level suggestive of intramedullary metastatic disease."
I googled intramedullary disease and see that it is even rarer than leptomeningeal disease and also carries a poor prognosis. Of course now it's the weekend so I can't ask my doctor. I have an appointment with my MO on Tuesday.
I really wish I didn't read the results. My youngest daughter's 3rd birthday is tomorrow, I have been in such good spirts and so excited to celebrate with her. I'm going to do my best to enjoy the moment and not let this ruin her birthday weekend for me.
This sucks. Does anybody have anything hopeful for me? Anyone experienced something similar? Thanks.