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Zoom Meet-up for Those With MBC: Place to keep chatting

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Comments

  • moderators
    moderators Posts: 9,253

    This is great news @seeq and @going2beatthis !!! 😍

  • going2beatthis
    going2beatthis Posts: 254

    Thank you. It does mean that I am more than likely going to need to have more radiation to both my skull and 2 areas of my thoracic spine (T10 met on anterior side of spinal cord and T12 met to bone). Hope to know more on Tuesday or Wednesday next week.

  • going2beatthis
    going2beatthis Posts: 254
  • seeq
    seeq Posts: 1,219

    @going2beatthis - that's great news! What a relief!

  • kbl
    kbl Posts: 3,134
    edited May 9

    @seeq Yay! That’s awesome. Now for the baby to stay put until delivery. 💕

    @going2beatthis Great news for you too. Love to hear it. Sorry you have to get more radiation.

  • rlschaller
    rlschaller Posts: 592

    @going2beatthis just catching up tonight on the different threads, been off for a week. That’s great news. I’m so glad for your results and there is a plan for you . I’m glad radiation is an option for you, if you find it to be ok. I just finished a month of it for my new Mets. Mostly disappeared , though sun burned.. on this journey of treatments radiation is always easier to take for me. I know there is more to be clarified, in your pockets for your meetings next week.

    @seeq whew… that’s great to read about your daughter and granddaughter to be ..yeah ❤️ I gather there had been concern, glad it seems to have turned around now.

  • Rosebessie
    Rosebessie Posts: 130

    @seeq that's wonderful news, she's in my prayers for an easy delivery 🙏🏻

    @going2beatthis Awesome!! I'm very happy for you ❤️.

    Love and hugs to all for a Happy Mother's day and a lovely weekend 💕🫂

  • kbl
    kbl Posts: 3,134

    @Rosebessie Happy Mother’s Day to you too, Rose. Hugs to you.

  • kbl
    kbl Posts: 3,134

    Well, I got to have a new experience today, my first earthquake. It was about 60 miles away but a 4.1. I was sitting in the RV. Thankfully, it was only about 15 seconds.

  • threetree
    threetree Posts: 2,212

    I've been through 2 very notable ones, and then some barely noticeable ones too. They are really something to experience - mostly because you have no idea how they will go while you're in the middle of it all. You just figuratively and sometimes literally hold on for dear life and hope for the best. So far, I've come through them all unscathed, and so have my personal effects. Glad it was short and that you got through it OK.

  • kbl
    kbl Posts: 3,134

    @threetree Interesting to say the least. Who knew, being from Florida. I’m glad you’ve never had issues with the ones you’ve experienced.

  • rlschaller
    rlschaller Posts: 592

    @kbl - omg , so glad you came through without harm or damage. It’s a very strange experience, and thankfully for the mild ones not harmful. Sounds disorienting nonetheless.

    @threetree - I’ve been through only a mild one, and I sat there as the ceiling shook, while on a work zoom call, and thinking this is an earthquake … in NJ? And my colleagues all were… is your house shaking too ? My mind could not take it in and then it stopped.

    And then my mom passed later in the afternoon, and my sister joked that god was calling Gloria home, and the earth shook .
    I will forever associate earthquakes with her leaving her body behind. It’s actually a fond memory in a way, she was ready to leave the body. Mother’s Day brings many memories for me, as others as well I’m sure.

    Sending hugs and wishing everyone a Happy Mother’s Day, whether your mothering is for yourself, friends, plants,, animals or your children.

    I will not be on zoom tomorrow, Dr appt to check my skin and wound care after radiation. Looking forward to it, as it’s sensitive and sunburned. So many appts ! But all is well , hugs and much love ❤️ to everyone.

  • threetree
    threetree Posts: 2,212

    Kbl and Rhonda - Yes, I live in Seattle, so they do happen a bit. When I was real young, I can remember my mother saying we were having a small one now and then, but I didn't connect. The biggest one I remember was 60 years ago. I was in the 6th grade and had gotten to my classroom early in the morning before anyone else was there, so I decided to draw on the chalkboard. As my hand started moving up and down with the chalk, the whole room started moving up and down too. I was totally freaked out and had no idea what was happening. The ceiling and walls of the classroom were shaking unbelievably and I thought everything was going to come collapsing in on me, so I ran outside to an open air area, just instinctively. Then a teacher appeared, along with a student from another classroom (she'd been in the bathroom apparently). The lone teacher who was there had gone knocking on all classroom and bathroom doors and ran everybody else out - only about 2 more students than me; including the one who'd been in the bathroom. We stayed outside in the open air until it was all over. Gradually then, other students and teachers started arriving, and of course it was the talk of the day. It's one of the biggest ones in history here now from what I know. The other bad one was in the early 2000's and I was substitute teaching a college class of ESL students. All the same shaking and thinking the roof and walls were going to come in, except I was "kinda/sorta" in charge and terrified. The students were from all over the world and didn't know what to think or do. I told the class that we were experiencing an earthquake (that time I knew) and were all leaving for the outside open area. We all went outside and stayed together until everything calmed down. I had one young Asian student though who was so terrified he followed me everywhere I went, wouldn't leave my side, and asked me if I thought he ought to call his mother in his home country. He did, and between his mother and me, and the shaking stopping, he calmed down a bit, but he stayed very upset for several days after, and I'm sure he'll never, ever forget it. I just felt so bad for him, because he was absolutely mortified and felt so helpless. All my other experiences have been rare and mild; just "of note".

    Rhonda - What a story about your earthquake and your mother's passing. I can see where it could be deeply meaningful and you could think the two events might be connected. You just never know. Thanks for sharing that story.

    KBL - Again, I am just so glad yours was an "easy" one. Let's hope you don't have to experience any more! (Not any of us.)

  • rlschaller
    rlschaller Posts: 592

    @threetree I love the vividness of your story telling. I could feel myself there with you. They might have been rare and mild, but wow! ❤️

  • threetree
    threetree Posts: 2,212

    Thanks Rhonda. Those two I described were the "big" ones we've had. Many of the others aren't really even noticeable.

  • kbl
    kbl Posts: 3,134

    @seeq Congratulations. I hope you get to see them soon. So exciting.

  • rlschaller
    rlschaller Posts: 592

    @seeq fabulous news ! So exciting. ❤️❤️🥳💐

  • going2beatthis
    going2beatthis Posts: 254

    @seeq - congratulations on your new bundle of joy!!! Hope you get to see your daughter and new grandson real soon.

  • kbl
    kbl Posts: 3,134

    Here is Evelyn’s obituary as well.

    https://www.trinitymemorial.com/obituaries/evelyn-morales-2/obituary

  • rlschaller
    rlschaller Posts: 592

    Thank you @kbl for sharing this heartbreaking news. ❤️🙏💐. I feel so sad, my heart hurts too.

  • moderators
    moderators Posts: 9,253

    Thank you, @kbl for sharing the heartbreaking news about Teresa. We have added her to our In Memoriam list. 💔

  • kbl
    kbl Posts: 3,134

    Remembering Debbie D. on this first anniversary. So unbelievable how fast a year goes.

  • seeq
    seeq Posts: 1,219

    @kbl - I can't believe it's been a year already. Really feeling the weight of losses this week.

  • kbl
    kbl Posts: 3,134

    @seeq Yes. It’s been a tough year already. I hope Legina is okay.

  • seeq
    seeq Posts: 1,219

    @kbl - yes. A hard year. The news of SondraF passing , even though I suspected it, was still hard. So many from my early days here are gone now. 😥

  • kbl
    kbl Posts: 3,134

    @seeq I have a list of how many have gone since Donna. It’s a lot. I sit here every day being appreciative that I’m not on meds and still here. I don’t understand it, but I guess that’s the way life works. I hope many others can have so much more time and that we don’t lose any others anytime soon. 💕

  • Rosebessie
    Rosebessie Posts: 130
    edited May 24

    @kbl thanks for keeping us abreast about each other's situations. You're a real blessing ❤️❤️👏

    It's really heartbreaking to lose Teresa so soon after Evelyn. They're both at peace in the heavenly kingdom with no more pain. God bless their departed souls.

    I'm sending lots of love, hugs and blessings to everyone, as we continue walking on this road together.

  • kbl
    kbl Posts: 3,134

    @Rosebessie Thank you, Rose. I feel knowing is closure, as much as it hurts. My heart hurts either way, but not knowing hurts a lot.

    I will miss you all tomorrow. See you next Monday. 💕