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In Treatment for Early Stage Disease (I-III)? Join us on Zoom, Tues & Thurs weekly!
Join our weekly virtual support group for all who are planning or going through active treatment for early stage disease (I-III). If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
Connect with others by creating your profile! Here's how.
We know this community is so important, so we’ve made it even easier for you to connect with others. With this update, you can: ✅ Share more about yourself so others can get to know you ✅ Find members with similar experiences using profile searches ✅ Get personalized support and resources from our community team How to…
How to use member profile search to find others like you
Using the information you and others share, you can find others based on: 📍Location (ex: lives in Philadelphia, Pennsylvania) 🌍Demographic (ex. is Black or African-American) 🧬Diagnosis (ex: diagnosed in the last year with stage II, ER+, PR+, HER2- breast cancer) 💊Treatment (ex: has been treated with a unilateral…
Were you diagnosed young (under 45) with breast cancer? We'd love to hear from you!
Were you diagnosed with breast cancer at age 45 or younger? Or are you caring for someone who was? Navigating this experience can be lonely — it can sometimes feel like no one gets it. What do you wish others knew about having breast cancer at a young age? What do you wish you had known? Your answers may help others. Click…
How has a nurse helped you through breast cancer?
At Breastcancer.org, we often hear how much nurses mean to people going through breast cancer. It’s the nurse who often explains the diagnosis and treatments to you in simple language, helps manage your side effects, offers you reassurance, and connects you with the care you need. Nurses are also a source of emotional…
What topics/experts would you like to see on The Breastcancer.org Podcast?
Hello, I'm Jamie, senior editor at Breastcancer.org and host of The Breastcancer.org Podcast. I'd like to make sure the podcast is answering questions that Community members have. Are there topics you'd like to see covered? Experts you think I should talk to? Do you want to share your story? Questions you want answered?…
Poll: What's the one piece of advice you'd give to someone newly diagnosed with breast cancer?
Getting diagnosed with breast cancer can be scary. If you had a chance to share with a newbie one piece of advice to get them through, what would it be? Choose from the options below or add your own in the discussion to give new folks a sense of calm and understanding.
Your Voice Can Shape Clinical Trials | Participate for $100 gift card!
Researchers at Mass General Brigham, Dana-Farber, and Harvard Medical School are exploring how AI chatbots can make clinical trial consent easier to understand. They’re inviting adult cancer patients across the U.S. to join a virtual focus group and share their ideas. Participants will receive a $100 gift card. Spots are…
Managing the Holidays and Breast Cancer - how are you coping?
The holidays can bring lots of emotions — and lots of people. How do you handle gatherings, conversations, ongoing check-ins, or expectations from loved ones this time of year?
Poll: This time of year, what are you prioritizing?
The holidays can be overwhelming — what matters the most to you this year? Take a moment to answer our poll and elaborate in the thread below. Happy holidays to you each, no matter what or how you decide to celebrate!

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Active topics

Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
Very ill newbie asks about long term use of perjeta
Hi, first I'm very sorry that these things might have been adressed already, but I am very ill with ME and after had perjeta/herceptin treatment for more than 9 years now, my body and brain feels like it is breaking down and I have a hard time thinking, searching for info etc. I'm bed bound from ME, and have been so prior…
De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
How Will Health Insurance Changes Affect People With Metastatic Breast Cancer?
How Will Health Insurance Changes Affect People With Metastatic Breast Cancer? February 3, 2026 Triage Cancer CEO Joanna Doran answers questions about Medicare, Medicaid, and metastatic breast cancer. Float RightMediumAccessibilityDelete The changes to federal- and state-run health insurance programs can be confusing,…
Stage 1a to Stage 4 in 6 years. 39 yo. Mets to liver & bone. Chek2+
Hi everyone, my first dx was in 2018 (age 32) after self discovery. I had a Bi-lat mastectomy and had been on tamoxifen. Oncotype 11 so no chemo recommended. ER+/PR+. Chek2 positive. Feeling great with no symptoms, I did a Galleri test this October 2024, which came back with positive breast signal. CT scan w contrast…
Multiple skeletal Mets Strongly ER positive BC originally now showing as TNBC
originally diagnosed IDC grade 2 , stage 3A HR+ with Allred score 8/8 and HER2- at the age of 46, 10 years back . Surgery, chemo and radiation therapy done as part of treatment followed by 5 years of tamoxifen followed by 5 years of letrozole and Zolenic acid. Now got bone pain few months back. When done pet scan and MRI…
Adding Tukysa to First Treatments Delays Growth of Metastatic HER2-Positive Breast Cancer
Adding Tukysa to First Treatments Delays Growth of Metastatic HER2-Positive Breast Cancer Dec 22, 2025 Delaying cancer growth may keep people out of the chemo chair. Read more…
Proton Therapy Better Than Traditional Radiation for Leptomeningeal Disease
Proton Therapy Better Than Traditional Radiation for Leptomeningeal Disease Jan 6, 2026 When treating breast cancer that’s spread to the cerebrospinal fluid, proton therapy controlled the cancer better than traditional X-ray radiation. Read more…
Now Enrolling: Cognitive Outcomes & Partner Engagement in Metastatic Breast Cancer Study
Enrollment for Cognitive Outcomes & Partner Engagement in Metastatic Breast Cancer Study at the University of Texas at Austin has started. Through this remote study, we hope to understand how individuals living with metastatic breast cancer, along with their partners, deal with cognitive symptoms during their everyday…
Podcast: The Guy With Stage 4 Breast Cancer
The Guy With Stage 4 Breast Cancer December 2, 2025 Male breast cancer makes up about 1% of all breast cancer cases. The numbers are small, but it does happen. Jake Messier is living with metastatic breast cancer after first being diagnosed with stage II disease in 2023. Jake has very active Tik Tok and Instagram accounts…
Clinical Trial Opportunity: Metastatic TNBC with EGFR expression and have lost HLA-A*02 expression
A2 Biotherapeutics is looking to recruit people with metastatic TNBC to a study on a CAR T therapy. The mTNBC must have EGFR expression and have lost HLA-A*02 expression. If you meet this criteria and would like to participate in this trial, you can email the study contact at: ClinicalTrials@a2bio .com Or, directly email…
Fenbendazole, Ivermectin, Mebendazole, Methylene blue for Breast Cancer
I’m curious if anyone here has tried any of these. I’ve read some success stories but would love to hear firsthand experiences. It seems like the medical community has been hesitant to share much information about how these options might benefit people with cancer, whether it’s breast, colon, or other types.…
Studies that prove early detection of stage IV recurrence extending survival time?
Can you please point me to any studies that show that early detection of metastatic stage IV breast cancer results in longer survival ? If this matters, I'm talking about ER+. HER2-. I know that it's a common opinion that early detection of such recurrence does not result in longer life, but are there any studies that…
2017 BC Diagnosis…how are you doing?
Hello Friends:💐 It’s been awhile since I’ve checked in. I’m curious how my 2017 friends are doing. Have you had a recurrence? Is all going well? I’d love to know how everyone from 2017 is doing. I’m doing well. This site has been a huge support to me and I just want to thank you all again for your support. I look forward…
Any studies that prove early detection of stage IV recurrence extending survival time?
Dear All, Can you please point me to any studies that show that early detection of metastatic stage IV breast cancer results in longer survival ? If this matters, I'm talking about ER+. HER2-. I know that the standard of care dictates that early detection of such recurrence does not result in longer life, but are there any…
Help progressed to Brain Mets and fighting for the right treatment
Hi All, Been lurking on the stage 4 forum for some time. Now I need help. I live in the UK and attend UCLH where treatment seems to adopt a more cautious approach. Originally on Breast 09 trial but randomised and receive standard of care😢 6 rounds Doxetaxel and H & P. Over 2 years later and progression to Brain Mets. Upper…
Important Stage IV Topics and Links for Stage IV Newbies
Here are some helpful resources if you've just been diagnosed with stage IV breast cancer, also known as metastatic or MBC. Join our free Virtual Support Groups for MBC! All with Metastatic Breast Cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST and Wednesdays at 4:00 PM EST…
Likely to be diagnosed with bone mets and need some advice in the interim
Nearly 14 years after my initial diagnosis, I'm back at the rodeo. My tumor markers are up, and some pain in my leg that I thought was due to gait issues or sciatica is likely bone pain. I saw my MO today, and she said that the description of the pain is consistent with bone mets. Tomorrow, I will get called about when my…
I was just now dx with skin mets
Hi, I've not had good news since forever—since suspected recurrence in August 2023 anyway, looks like I won't be getting any either. I had some red raised places — not bumps, not nodules, that would get red, then go away, etc. that appeared Nov. 23, the same month I was dx with St. IV. PET scan didn't show this. CTs-four…
Just diagnosed with ILC mets
Hi, all I had ILC back in 2008. Had radical mastectomy on the right breast and prophylactic on the left. Chemo AC→T, radiation and 7 years of Arimidex. 16 years later I am back in the game. Still in discovery phase. Had FDG Pet Scan that shows liver uptake, had endoscopy that shows little spot in the stomach consistent…

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Special Meetup: Navigating Grief While Living With Metastatic Breast Cancer
Join grief counselor Kelly Grosklags, LICSW for a special Virtual Community Meetup on the long-term grief that can come with metastatic breast cancer, including the loss of normal life, the loss of friends and companions, and the lasting emotional impact of living with ongoing uncertainty.

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