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Adding Ibrance Stops Growth of Metastatic Triple-Positive Disease for More Than a Year
Adding Ibrance Stops Growth of Metastatic Triple-Positive Disease for More Than a Year Dec 18, 2024 Progression-free survival was 15 months longer when Ibrance was added to standard treatment. Read more…
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Zoom Meet-up for Those With MBC: Place to keep chatting
This is a space held for our Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! For those with a diagnosis of metastatic breast cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 1:00 PM EST, and Wednesdays at 4:00 PM EST Young (45 and under)…
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Starting Letrozole
Hello everyone. I was here in 2018 and reasonably active for two or three years. I gradually drifted away due to confusing changes in the site, plus other members I'd gotten to know either dropping out or dying. But now I'm back because I've been diagnosed with bone mets. Apparently there are a lot of them, but they are…
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De Novo Stage IV
I'm wondering if there is a topic just for de novo Stage IV. I'd like to know how people found out. Did you have symptoms that led you to the doctor for an answer? Was it found out of the blue when you had another issue and how was it found? Are there others like me who have never shown it in your breast but only where it…
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Breaking News: Camizestrant Approved for Metastatic HR-Positive Breast Cancer
https://www.breastcancer.org/treatment/hormonal-therapy/camizestrant We hope this provides some hope! —The Mods
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The Long Middle - Does the idea of “the long middle” reflect your experience?
Check out this article and let's discuss. I have stage four cancer – there will be no cure, but death isn’t necessarily imminent: this is how it feels to live in the long middle | Death and dying | The Guardian The author describes living with stage 4 cancer as being in “the long middle”, a space where there is not a cure,…
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19 years later - reccurence in supraclavicular lymph
19 years ago (43YO) - DCIS, Uni Mastectomy, no further treatments Now - Postmenopausal (3 years), swollen supraclavicular lymph node (same side as initial mast), PET scan also found 2 other lymph nodes - intramammary at 2nd rib, and mediastinal node (near spine and heart). ER+, PR+, HER2- Dr says it is a unique situation…
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Very ill newbie asks about long term use of perjeta
Hi, first I'm very sorry that these things might have been adressed already, but I am very ill with ME and after had perjeta/herceptin treatment for more than 9 years now, my body and brain feels like it is breaking down and I have a hard time thinking, searching for info etc. I'm bed bound from ME, and have been so prior…
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How Will Health Insurance Changes Affect People With Metastatic Breast Cancer?
How Will Health Insurance Changes Affect People With Metastatic Breast Cancer? February 3, 2026 Triage Cancer CEO Joanna Doran answers questions about Medicare, Medicaid, and metastatic breast cancer. Float RightMediumAccessibilityDelete The changes to federal- and state-run health insurance programs can be confusing,…
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Stage 1a to Stage 4 in 6 years. 39 yo. Mets to liver & bone. Chek2+
Hi everyone, my first dx was in 2018 (age 32) after self discovery. I had a Bi-lat mastectomy and had been on tamoxifen. Oncotype 11 so no chemo recommended. ER+/PR+. Chek2 positive. Feeling great with no symptoms, I did a Galleri test this October 2024, which came back with positive breast signal. CT scan w contrast…
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Multiple skeletal Mets Strongly ER positive BC originally now showing as TNBC
originally diagnosed IDC grade 2 , stage 3A HR+ with Allred score 8/8 and HER2- at the age of 46, 10 years back . Surgery, chemo and radiation therapy done as part of treatment followed by 5 years of tamoxifen followed by 5 years of letrozole and Zolenic acid. Now got bone pain few months back. When done pet scan and MRI…
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Proton Therapy Better Than Traditional Radiation for Leptomeningeal Disease
Proton Therapy Better Than Traditional Radiation for Leptomeningeal Disease Jan 6, 2026 When treating breast cancer that’s spread to the cerebrospinal fluid, proton therapy controlled the cancer better than traditional X-ray radiation. Read more…
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Adding Tukysa to First Treatments Delays Growth of Metastatic HER2-Positive Breast Cancer
Adding Tukysa to First Treatments Delays Growth of Metastatic HER2-Positive Breast Cancer Dec 22, 2025 Delaying cancer growth may keep people out of the chemo chair. Read more…
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Podcast: The Guy With Stage 4 Breast Cancer
The Guy With Stage 4 Breast Cancer December 2, 2025 Male breast cancer makes up about 1% of all breast cancer cases. The numbers are small, but it does happen. Jake Messier is living with metastatic breast cancer after first being diagnosed with stage II disease in 2023. Jake has very active Tik Tok and Instagram accounts…
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Clinical Trial Opportunity: Metastatic TNBC with EGFR expression and have lost HLA-A*02 expression
A2 Biotherapeutics is looking to recruit people with metastatic TNBC to a study on a CAR T therapy. The mTNBC must have EGFR expression and have lost HLA-A*02 expression. If you meet this criteria and would like to participate in this trial, you can email the study contact at: ClinicalTrials@a2bio .com Or, directly email…
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Fenbendazole, Ivermectin, Mebendazole, Methylene blue for Breast Cancer
I’m curious if anyone here has tried any of these. I’ve read some success stories but would love to hear firsthand experiences. It seems like the medical community has been hesitant to share much information about how these options might benefit people with cancer, whether it’s breast, colon, or other types.…
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Studies that prove early detection of stage IV recurrence extending survival time?
Can you please point me to any studies that show that early detection of metastatic stage IV breast cancer results in longer survival ? If this matters, I'm talking about ER+. HER2-. I know that it's a common opinion that early detection of such recurrence does not result in longer life, but are there any studies that…
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2017 BC Diagnosis…how are you doing?
Hello Friends:💐 It’s been awhile since I’ve checked in. I’m curious how my 2017 friends are doing. Have you had a recurrence? Is all going well? I’d love to know how everyone from 2017 is doing. I’m doing well. This site has been a huge support to me and I just want to thank you all again for your support. I look forward…
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Any studies that prove early detection of stage IV recurrence extending survival time?
Dear All, Can you please point me to any studies that show that early detection of metastatic stage IV breast cancer results in longer survival ? If this matters, I'm talking about ER+. HER2-. I know that the standard of care dictates that early detection of such recurrence does not result in longer life, but are there any…
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Help progressed to Brain Mets and fighting for the right treatment
Hi All, Been lurking on the stage 4 forum for some time. Now I need help. I live in the UK and attend UCLH where treatment seems to adopt a more cautious approach. Originally on Breast 09 trial but randomised and receive standard of care😢 6 rounds Doxetaxel and H & P. Over 2 years later and progression to Brain Mets. Upper…