scanxiety and health portals
So a few issues- this has been a tough week. I feel great - no bone pain, better breathing and normal labs. I saw my ophthalmologist and my right eye mets have improved or resolved- GREAT news. Went for scans on Tuesday and had results sent to me through my patient portal today!!! The portal sent me an email and I looked - OOPS.
The bond scan showed marked expansion of bone mets throughout (as compared to a scan in March - chem started 6/10/2021) I was devastated and didn't understand as I felt so much better on chemo.
CT - MUCH BETTER - most lesions resolved or 1/2 the size in 3 months 2 weeks. The bone lesions were sclerotic, not lytic but still interpreted as worsening bone disease. Both tumors are ER/PR positive.
I sent an email to my oncologist and am waiting but I HATE bone scans and feel that the bone mets probably worsened in the 3 months before chemo (my clinic status certainly did) and that this scan reflects healing sclerosis in the setting on my chemo Paclitaxol. Did I already say that I hate nuclear (UNCLEAR) medicine.
1. any helpful hints not to drop down the rabbit hole into depression around scans. I lost my appetite and slept for 12 hours last night.
2. do people ignore the patient portal?
Any other helpful thoughts?