Recurrence after 10 years
Well such terrible news. I had lobular ten years ago just about to celebrate getting to ten yearsthen due to back pain and tummy pain had pet/ct which shows ten bone Mets big one base of spine, Mets to chest wall, retroperitineal - GP thinks it will be stage 4. I'm seeing my oncologist in two days will let you know.
But he has said he will treat it with hormones letrozole and ibrance not chemo. Also said ideally wants to biopsy but because of locations not advisable. I've been vomiting terrible bile like brown liquid - can't keep food down - and my tummy is beyond uncomfortable and painful. It is so true how many of you say trust your instincts I knew that it had come back because I'd lost loads of weight and had been so so unwell. I was terrified PET CT would miss it so I sent radiologist a clinical paper on the difficulty of imaging lobular as well as key bullet points from Prof Gary Ulamer's presentation on lobular and FDG avidity.
Anyway very disappointed and just keeping everyone up to date. Chat soon