Newly diagnosed & frustrated
so, I’m new here. Hi.
I’m 37, I was diagnosed on January 26th by reading my own pathology report, the lab emailed me the results before the Dr called. I was diagnosed with IDC, ER+/PR+ both at 100% HER2- and grade 3 on the left side.
I met with a surgical oncologist within the same hospital system, but is technically An outside surgery team that contracts with the hospital. The Dr was great at explaining everything & I was scheduled to have a bilateral mastectomy on 2/28. There’sa strong family history of breast cancer in my family and I had questionable calcifications in the right, according to one pathologist, but the other one didn’t agree, which has me concerned. I have been reading up on here about the DIEP vs implants for reconstruction and with my active lifestyle and working out the DIEP seemed to fit me better, but according to that Dr it was only available clear across the state at Vandy (TN). So, I did some research and come to find out that the UT Hospital does it as well, so I requested them to fax me stuff to that Dr because I wanted a 2nd plastics opinion that might open up more options for me. At 1st the MA tried to strong arm me into choosing this other Dr, but I did my ground on the PS Dr I researched and knowing the other PS didn’t do the DIEP, not others here according to my surgical oncologist. They called me back about 5 min later and told me it I wanted that 2nd opinion that I could no longer see my surgical oncologist and my surgery would be canceled. I felt like everything imploded again. I decided to stick to what I wanted because it’s my body & not I have to start all over, minus the testing, to get anywhere again. So here’s to another 2 weeks of waiting for them to review everything and get back to me with a visit date/time off when I’ll be scheduled. They need time to get all of my records sent to them and review it with their team. So very frustrating, but I feel I made the right decision for me, and I don’t do well with feeling like I’m being backed into a corner. I’m already mad enough because I’m having to deal with this right now as it is.