IDC turned out to be ILC after surgery - confused
I'm new here, two weeks post-surgery, 47 years old, and confused about a change in diagnosis after surgery
My original DX in December was 2.1cm stage 2 IDC + DCIS in the left breast. I had a tumor biopsy and a lymph node biopsy on the left, an MRI on both sides, and an MRI-guided biopsy for a lump on the right (that turned out to be a benign papilloma).
Two weeks ago I had oncoplastic surgery, and I'm pleased with the results. I had a reduction + lift, and the option allowed my surgeon to remove generous tissue. The path came back great, with clean margins all around -- the DCIS and the tumor are gone. My sentinel nodes were also clear. However, at my follow-up earlier this week, I learned that the IDC was actually ILC. And both breasts have LCIS. I did also have DCIS, but that's gone. The surgeon said ILC and LCIS put me at higher risk than IDC/DCIS, and now I am kind of freaking out.
All my research suggests that ILC is a wily bastard and very hard to see on imaging. I had a 2cm tumor that got biopsied. How did it come back as IDC and not ILC? Is this just how it is sometimes? Did someone miss something? Like so many of us, I've had to become a junior scientist since DX and am really grateful for any insight.
The surgeon's plan is radiation, then the endocrine therapy will be "really important" for the LCIS. I feel like I'm walking around with ticking time bombs on my still-healing chest. Thank you!