Radiation for stage 4 very painful
On the eve of being 10 years cancer free after Stage 2 lobular I am now joining you in the fight of my life.
I am on Ibrance and letrozole and started radiation on my back and hip this week. There are innumerous tumors in my spine with the biggest around L2-L4. When I got home yesterday after radiation I thought I would die the pain was so extreme. A deep ache like cramp on back muscle flanks - I called my GP crying - my 18 year old daughter and husband were both with me - I’d taken pain meds ten mins before so she said they wouldn’t be working yet but she suggested hot shower on back which helped immediately.
It was explained that this is called pain flare.
I wonder if there’s anyone who has had this who could provide info or just good old moral support. This has been such a shocking diagnosis and I’m now trying to work fast to gather info on things I can do to extend my life.
I am really hoping to find anyone similar stage 4 lobular who I can share my diagnosis with. I am also doing what is quite normal in that I want to know what anyone else has done with any kind of food, nutrition or anything at all that is helping them stay well and survive. I have an excellent oncologist and GP and I am perfectly happy with conventional treatment but u won’t be surprised to hear me say I will do anything that I can to help my situation. I’m hearing about hyperbaric chambers, infrared lights, and my heart and mind is open! But where to start! I am having a consult with one of New Zealand’s leading nutritionists which will be really great.
But if anyone has anything they’d recommend I look into that would be so so great. I always knew I would beat breast cancer ten years ago and now I’m doing it again!
I remember how amazing this website was ten years ago and now I’m back with you now again. I hope I can also provide helpful information as time goes by, for instance I’m very happy to share information from my appointment with the nutritionist (she has strong interest in cancer).
As far as my diagnosis goes the tumors are in my spine, leg and hip, tummy, chest (not lungs) near kidney if it’s of use I can post scan results.
I am sending each and every one of you here the biggest hugs all the way from New Zealand. Without doubt we are stronger together.
Thank you. xo