Just got IDC diagnosis - Triple Positive and SNB up next
Hi all! I've been reading through these boards since my biopsy on 2/25 and an original DCIS diagnosis on 3/3. I just wanted to say I've been so thankful to have found this community! I've been able to get so many questions answered even when I couldn't post due to some of the tech glitches.
I found out today pathology on my lumpectomy shows it's beyond DCIS and is also IDC. It's 6mm, stage T1B and grade 1 with 5 of 9 on Nottingham. I'm ER+, PR+ and HER2+. My HER2 was 95% and 3+ of 3+ staining. Margins were not clean. Surgeon called me this afternoon to tell me he's going back in for SNB and to try and get clean margins this time around. He also mentioned radiation is now pretty much mandatory for me (which is fine, because I was going to choose to have it anyway), but that now chemo is on the table too, and the MO would have to make that determination. The chemo scares me so much. I think I'm still trying to process all of this. I think I've overloaded my brain with trying to research everything at once.
The waiting between tests and results has been the absolute worst part of this. I know we have to take it one step at a time, but I truly wish I could start all of it tomorrow. I worry how I'm going to tell my kids. I wonder what to tell other people. Unfortunately a bunch of people knew the pathology results were coming in today or tomorrow, so I know they'll ask. We've (my husband and I) decided for now to hold off telling anyone about the IDC, and just say the margins weren't clean so surgeon is going back in for that. Once we get results of node biopsy, we will figure out what to say.
Anyway, sorry to ramble, but I feel like I'm just all over the place right now and needed to get some of this out. I hate to be a part of this group, but so very, very thankful it's here!