Where are you now?
Comments
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tangandchris, my heart did a little jump when I saw you name. I realized I hadn't seen it in quite a while. I'm glad to "see" you here, but glad you're taking time away from the boards and FB to keep yourself mentally healthy.
Carol
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Hi everyone,
I'm looking for others who are using PISQRAY. Just started. I've been active on Death and Dying, Bone Mets. Just wondering what's next in store for me. I've been at this since Feb 2013.
Sally
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I'm here but mostly lurk. If I'm looking for advice I check the archives first. I haven't seen posts from some members and found them posting on different threads.
I really really dislike fb. Seems more public to me using your real name. But then I'm not aprivate person. Didn't care for other online groups either. This is the best. Sometimes it's all the socializing I can handle. Someday I may join a zoom.mtg.
Actually i kinda like a smaller group cause it's easier to remember everyone's details and know them on a more personally level. Yet with our circumstances changing the way they do its hard to do that too. No doubt the zoom mtg would help. I wonder how many participate.
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pearl-girl, there is a thread for Piqray: https://community.breastcancer.org/forum/8/topics/... It is not very active but people pop in and out from time to time. If you just want more reading material you can check out this older thread about Piqray: https://community.breastcancer.org/forum/8/topics/... There's also a Facebook group that's slightly more active but most activity seems to come from the people who are experiencing bad side effects and looking for help.
I can't speak for others but I don't post much in general and rarely post about Piqray or other treatments I'm on simply because there's nothing to report most of the time. I'm just out here living my life and swallowing these pills and hoping they keep working for a long time. I post more in the threads started by new people because they usually have questions I can answer. I don't post much in the older threads because everybody seems to already know each other and I don't have much to add that isn't too personal for these public forums.
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I just ran across Bezzy BC and started to create a login. Only 2k stage 4 members and they wanted so many personal details I uninstalled the app. I miss the robust advice BCO members used to provide before the "improved platform" in March when we all lost patience with it. FB isn't for me either
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