To Be or Not To Be - Challenging the Standard of Care
I started my "journey" a little less than a year ago. Through my "ordeal'" as another woman graciously posted on the boards, I have found that breast cancer patients tend to get dismissed in their so-called "journeys" for scanning or a diagnosis. I, too, am not a fan of the word "journey" in my cancer dx. I'd say my "journey" was more like PTSD or a lot of FEAR for some time afterward. I didn't know advocating for my care was necessary or required for cancer. What I found out was I had to learn to advocate for myself. I had to learn to keep searching for that "second or third opinion" until I was informed and accepting of the treatment path. I understand that my luck may run out at any time, and I could get another cancer dx. However, I move forward daily with the peace of mind that I have the right doctors to address it if needed. Once I found the right doctors, my PTSD and FEAR washed away.
So, as I looked back at my "ordeal," I pondered what I would do with it other than embrace my newfound peace of mind. So, I decided to CHALLENGE the standard of care. While it takes a lot of time, education, documenting, and patience, I decided to challenge it in hopes of changing it for another woman who walks that so-called "journey" after me. Today I am waiting for the Medical Panel's decisions which can take a LONG time. After the findings, I move forward with the next step of the process. May my new FIGHT change just one woman's standard of care moving forward. YOU ARE WORTH IT.
I believe every woman is worth the fight, and we all deserve the best care. XOXO to all the women who fight daily and to all those who fought and passed.