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Advocacy smorgasbord-Advocate 4 breast cancer, healthcare causes
I think that many of us want a way to advocate for breast cancer and health care related causes. Sometimes we aren't sure where to begin. Sometimes the cause is ...or is not...a good fit. Recognizing that our time, energy, interests and other available resources vary, I thought it might be beneficial to start a thread that…
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Podcast: GRASP: Helping Advocates Understand Research
GRASP: Helping Advocates Understand Research, Helping Researchers Understand Patients Dec 14, 2022 Patient advocates and researchers who are part of GRASP talk about what they've learned from the program. GRASP – Guiding Researchers and Advocates to Scientific Partnership – connects patients, doctors, and researchers to…
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Podcast: Helping Patients Advocate for Themselves
Helping Patients Advocate for Themselves Dec 2, 2022 Dr. Jennifer Griggs explains her research into how "activated" patients can get more equitable care from their doctors. We know that disparities exist in healthcare, including in breast cancer outcomes and in general care before someone is diagnosed. Evidence suggests…
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To Be or Not To Be - Challenging the Standard of Care
I started my "journey" a little less than a year ago. Through my "ordeal'" as another woman graciously posted on the boards, I have found that breast cancer patients tend to get dismissed in their so-called "journeys" for scanning or a diagnosis. I, too, am not a fan of the word "journey" in my cancer dx. I'd say my…
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Dreading Pinktober and Looking for Advice on Advocacy
I know I’m not alone here in the dread I am feeling as October is looming… I have been doing a lot of thinking in what I can do to make it positive for me. Giving back has always been a big source of fulfillment. Even before being diagnosed, I’ve volunteered with ACS. But, I’m looking for something more. I think the answer…
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Podcast: Why Health Literacy Is Important for People With BC
Why Health Literacy Is Important for People With Breast Cancer January 6, 2021 Dr. Jenni Sheng is assistant professor of oncology at the Johns Hopkins University School of Medicine. Dr. Sheng mainly treats people diagnosed with breast cancer and helps them live with, through, and beyond cancer by working with her patients…
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Sign the Petition Against the new Mammography Guidelines
Welcome the Petition! It is a unique place to not only add your name, but tell your story in brief. However, to add a Post to this petition, You will need to Register with the Community if you aren't already. Below are the directions to register. If this is too difficult though, please send your name to…