Regrets about not being better health advocate
I wasn't sure where to post this, but I wanted to put this out there in case anyone is in a similar situation. So, last summer I was concerned about breast changes and I looked at the letter from my previous mammo and noticed that they mentioned dense breast tissue and said that I "might benefit from supplementary screening tests." I realize that language is pretty standard, but an ultrasound seemed logical so I made an appt with my primary to get a referral.
When I met with my (now former) PCP, he told me that I don't need an ultrasound because my symptoms were common during perimenopause and gave me the all clear. Fast forward 6 months, and you guessed it, IDC. The rest is history.
So now that I'm past active treatment I've been thinking about all the what ifs, as in what if this could have been caught earlier if my PCP would have just given me the damn US referral! I decided to call his supervisor, to at least make him aware and try to prevent this from happening to someone else And although I shouldn't have been surprised, he defended the other doctor and said the letter from my previous mammo didn't "recommend" an US, only said that I might benefit from additional tests, so basically it was up to clinical interpretation. Additionally, prior to actually being diagnosed with BC, I was considered low risk (5% lifetime risk LOL). I think I was asking for that kick to the head, but it still hurt. Now I'm back to blaming myself for not being clearer/more insistent about my symptoms. Lesson learned. But Ladies (and Gents), if you feel like something is off, tell your doctor and if she/he won't listen, find someone who will. Don't worry about being a bad patient, just be a good advocate for yourself. Soap box dismount 😊