33, TNBC, skin mets, and chest wall recurrence.
Hi All, not really a point to make but at 33 this is an isolated club to be a part of. Just want to share my experience, thoughts and treatment incase anyone is going through what I am.
I found a lump in 2020 at 31. Was told it was nothing. 6 months later I was diagnosed with stage 3, TNBC. I did 4 AC, 4 Taxol, 1 failed clinical trial, DMX (nipple sparing Diep flap), keytruda (immunotherapy), radiation and 8 rounds of Xeloda. Aggressive year long treatment and I really threw the kitchen sink at it.
After treatment, I took time off from work, traveled and when I returned, not even 6 months after my last xeloda pill. I found bumps on my radiated breast skin. pathology showed it was positive for TNBC and (her 2 low) and a CT showed chest wall spots. To say I was devastated would be an understatement.
Now I have began Trodelvy. 2 rounds in and the bumps have flattened. In my wildest hopes, dreams and wishes I will get a complete response and they can remove the breast and I will never have to think about this again.
I still have my hair and I hope I am lucky enough to keep it. Trodelvy has been fairly easy for me (compared to AC and Taxol). No hangover like feeling, no mouth sores, no extreme exhaustion, no nausea and 0 diarrhea. I hope this experience continues. I just have severe constipation the firs few days but I am learning to manage it with miralax and senna.
Anyways, that's my story. If you have any experience or advice, please share.