Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

In Treatment Zoom Meet-Ups: Place to keep chatting

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Comments

  • bailey.boo
    bailey.boo Member Posts: 235

    That’s such great news! I’m so relieved to hear there are no new masses. Wishing you the best as you work through the lymphedema PT—hope it helps with the pain.

    I’m sorry I haven’t been able to attend group lately, but I’ve been thinking of everyone!

  • wrngler
    wrngler Member Posts: 1

    Hello all, so glad to have the support of this group! Because of you, I was able to advocate for myself and get a new surgeon. This was after another confusion about appointments and what comes next and the sudden realization that it had been four weeks and I had only a little idea of how it all worked together. I made the switch by calling my radiation oncologist and asking which surgeons he works with and doing some research on health grades. And now I feel like I have a little more of a "team". Preop, etc., is tomorrow, then surgery Wednesday, the 20th. Hope to see you all this Tuesday!!

  • moderators
    moderators Posts: 8,744

    @wrngler - Welcome to the community! We're so glad you’ve joined us here too. Wishing you all the best with pre-op and your surgery on the 20th. See you on Tuesday!

    The Mods

  • livewithloss
    livewithloss Member Posts: 1

    For the Tuesday group, it is Linda Powell. I started dense dose abraxane on Wednesday with much trepidation after two previous allergic reactions. It’s maybe too soon to report but I’m doing great!!! I took lorazepam last night for sleep and to fight potential nausea. I haven’t had anything since! I went to a two hour appointment with an architect and then the grocery store! Tomorrow I have first lymphedema PT appointment. I was very skeptical about being able to make it two days after infusion but now feel good about it. My nurse said most women to much better on abraxane but taxol is still standard of care for many reasons, including cost.

  • moderators
    moderators Posts: 8,744

    @livewithloss Linda, this is wonderful to hear! Thanks for keeping us posted! We look forward to seeing you on Tuesday, and hope you continue to feel well!!

    —The Mods

  • maahxxxx
    maahxxxx Member Posts: 1

    Hi all, Megan here, thanks for the encouragement to call the scheduler again. I am now on to start TC on January 8th. Now I am relieved and terrified!

  • moderators
    moderators Posts: 8,744

    Megan, this is great news! Way to advocate for yourself. We're so glad you have a date — we'll all be here for you as you navigate your treatment!

    Hugs!

    —The Mods