Introduction and impact of drug shortages - Carboplatin
Hello to all. So glad to have found you! Cancer is a lonely place.
I found a lump in my right breast in January and went to my primary care doctor the following day. She wasn't able to feel it but ordered a mammogram and sonogram. After calling the breast centers recommended by primary care doctor, I was given an appointment 5 weeks away. With some pushing and self-advocacy, I was able to find an imaging center that could fit me in in 3 weeks. The radiologist called the surgeon directly and set up an appointment for the following day. A biopsy was done on site and within a week I had the pathology results - TNBC. The surgeon ordered a bilateral breast MRI for the following week.
Some friends and neighbors suggested that I get a second opinion so I booked an appointment with a practice that came highly recommended. It was suggested during that appointment that I consider a drug trial. The rabbit hole included a new biopsy, a new bilateral breast MRI, an eye exam, a CT scan and more bloodwork. The CT scan revealed some nodes on my lungs so I was sent for a PET scan. The PET scan showed my hyper-metabolic breast cancer and mild uptake in one of the nodes. After a couple of weeks of deliberating, the trial wanted a CT guided lung biopsy. I highly recommend you think twice before having one. I complied and the biopsy showed that the node, while a concern, was not metastatic breast cancer. The following week I was told I was not accepted into the trial.
Three months have passed and I am finally being treated. I started Carboplatin + Paclitaxel + Pembrolizumab (Keytruda®) followed by Cyclophosphamide + Doxorubicin + Pembrolizumab (Keytruda®) last week. I had my second infusion this morning. During my visit with the Oncologist, she told me that there's a national shortage of Carboplatin and that we might need to change our treatment plan.
I'm trying so hard to be brave. I'm trying so hard to do everything my doctors ask. I'm feeling a bit exhausted and defeated and the journey has just started.