My oncologist and disability opinion
I was originally diagnosed with 2B (++-) in 01/2014, 8 dose dense chemo, and 45 rads treatments. In 11/2021, I was diagnosed with MBC to pleura. They started my on Faslodex in 11/2021 and added Ibrance 9/2022. I’ve had a treatment failure and now have started Xeloda. The oncologist ran a Guardant 360 and the results returned no mutations and no recommendations for clinical trials.
When I was 1st diagnosed with MBC, she was so positive and told me that many treatments were available. After this latest failure, she said that my next course of treatment would be IV chemo unless new drugs became available.
Prior to this latest development, I asked them to fill out short-term disability paperwork. I was told by the oncology team that they EXPECTED their cancer patients to work. Of course, that send me into a world of pissed off I haven’t seen in a long time. I was told that I needed to talk with my HR team to see if they could move me to a job that required less mental concentration. They finally agreed to 3 months STD and completing my paperwork.
I feel like my oncology doctor doesn’t understand how the ‘real world works’. (At least my real world. . . ). She suggested that I 1) ask to go part-time (which immediately makes me lose all benefits)
2) ask to be moved to a less stressful job (huge pay cut)
I’ve talked with my HR team and if I can get my doctors to fill out Long-Term disability paperwork (and it is approved) that I could retire at the same time and keep additional benefits. This would allow me to get 60% of my pay until age 65. My PCP is encouraging me to apply and is more than happy to assist.
I’m beyond angry about the cavalier responses to my concerns. I’ve worked for the same company for 30 years and don’t like being talked to like a lackey.
I’m just curious if other oncologists have this same mindset. If you are on disability, when did you make this decision and did you have support from your medical team?
My apologies for the long post and hope I haven’t violated any posting rules. I’m just been stewing on this for months.
Thank you in advance for any input you are willing to provide.