Anyone take Tamoxifen after Uterine Cancer

bennybear

just wondering if anyone out there has taken Tamoxifen after a hysterectomy for uterine cancer.

got2run

I am also interested in the same question. I was on Tamoxifen for 3 1/2 years and tolerated it quite well. It was not recommended that I switch to an aromatase inhibitor as I already had mild osteoporosis. Last year I developed endometrial adenocarcinoma and had a hysterectomy. I was switched to arimidex because of concern that the tamoxifen was the "cause" of the uterine cancer. I have been on arimidex for 9 months and have horrible joint problems. I would like to return to taking Tamoxifen.

bennybear

@got2run my nurse navigator told me she knows of someone who had a hysterectomy so they could continue with tamoxifen. So worth asking your team. Hope others chime in.

alicebastable

https://community.breastcancer.org/en/discussion/884469/anyone-take-tamoxifen-after-uterine-cancer

I had endometrial/uterine cancer in 2008, with a very thorough hysterectomy. After getting breast cancer and having a lumpectomy in 2018, my MO prescribed Tamoxifen. I took it for about nine months, but quit for reasons unrelated to cancer.

fme

I’ve been on tamoxifen the last 5.5 years since bilateral mascetomy for ductal and lobular cancer (one on each side). Have been getting worse and worse periods last 6 months. Waiting for results from pelvic ultrasound yesterday. Kind of freaking out right now thinking if uterine cancer a thing.

bennybear

@fme I hope that’s not the case. But best to find out, fibroids are also a common cause. Mine was caught very early and fortunately the hysterectomy was all that was needed. Hope all will be well, b