Anyone take Tamoxifen after Uterine Cancer
just wondering if anyone out there has taken Tamoxifen after a hysterectomy for uterine cancer.
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I am also interested in the same question. I was on Tamoxifen for 3 1/2 years and tolerated it quite well. It was not recommended that I switch to an aromatase inhibitor as I already had mild osteoporosis. Last year I developed endometrial adenocarcinoma and had a hysterectomy. I was switched to arimidex because of concern that the tamoxifen was the "cause" of the uterine cancer. I have been on arimidex for 9 months and have horrible joint problems. I would like to return to taking Tamoxifen.
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I had endometrial/uterine cancer in 2008, with a very thorough hysterectomy. After getting breast cancer and having a lumpectomy in 2018, my MO prescribed Tamoxifen. I took it for about nine months, but quit for reasons unrelated to cancer.
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I’ve been on tamoxifen the last 5.5 years since bilateral mascetomy for ductal and lobular cancer (one on each side). Have been getting worse and worse periods last 6 months. Waiting for results from pelvic ultrasound yesterday. Kind of freaking out right now thinking if uterine cancer a thing.
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Hello All,
Did any of you have repeated thickening even after D&C? I am also a tamoxifen user..Waiting on results from endometrial biopsy for the 2nd time since taking tamoxifen
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Me! I briefly tried letrozole after my hysterectomy, and the joint pain was so bad that I asked to go back on tamoxifen. Now I’m on anastrozole after 5 years of tamoxifen, and the side effects are wrecking my quality of life, so I’m again asking to go back on tamoxifen. I think they’ll let me, as the alternative would be quitting entirely.
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I started tamoxifen in January 2019 after lumpectomy and radiation. I was postmenopausal (I thought), but the doctor said my estrogen levels were too high to be on arimidex, so I was on Tamoxifen. I did not experience any obvious side effects. In retrospect, I did have some brain fog when it came to sorting out complicated problems that was something I used to be able to do quite well. I did NOT switch to an aromatase inhibitor because a bone scan showed that I already had osteoporosis. In August of 2022 I was diagnosed with endometrial cancer, detected early because I was on the lookout. After a hysterectomy/oophorectomy I was put on arimidex, despite my bone health. I toughed it out for one year. My osteoporosis got worse, although I am strong and "healthy" and don't feel any bone symptoms. HOWEVER, I experienced crippling joint pain on the arimidex. I felt 20 years older and had problems with the most basic movements. In August 2023, with the OK of both my oncologists I went back on Tamoxifen. I have returned to running marathons. This time around, however, my brain fog is much worse. I can't remember anything. I lose track of sentences mid stream. Most of the memory issues I can correct by taking notes and checking and double checking myself. Four and a half more years to go on the tamoxifen. I think the bad brain fog is related to even lower estrogen levels post hysterectomy together with the tamoxifen. I had to read through a lot of forums and research articles to get anyone to even consider my switch back to tamoxifen.
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