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Tamoxifen and incontinence
Hello, I am on Tamoxifen for almost 2 years now and now starting to experience incontinence. I made an appointment with the urologist but was wondering if anybody had the same experience.
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Allergy due to Tamoxifen?
I have developed a few allergies symptoms since last year. I really believe it's due to taking tamoxifen (for 3 years) that changed my body (gut health maybe). I want to see if anyone experiences something similar…. In the beginning of few months when i started to take the tamoxifen, i had night sweats but that was gone…
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Anxiety about coming off Tamoxifen
Hello! I haven’t posted in a while, but I have been on Tamoxifen for almost 5 years (May of 2024 will be 5 years) and my oncologist has talked about me coming off in May, and all of the sudden, the anxiety is real….. I feel like this drug has been like a security blanket for the last five years. I also understand that…
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Switching from AI to Tamoxifen - Bone loss
Hi, I just met with a new oncologist after the retirement of my previous one. I have been on an Aromatase Inhibitor for six years with worsening bone loss. Taking Fosamax. The new oncologist suggests switching to Tamoxifen. Total treatment time would be 8 years vs. target of 7 if I stay on AI. Has anyone had or considered…
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Anyone take Tamoxifen after Uterine Cancer
just wondering if anyone out there has taken Tamoxifen after a hysterectomy for uterine cancer.
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How many of you are taking Tamoxifen indefinitely?
I'm going into year 8 of my BC diagnosis. I've always handled Tamoxifen well, it's like a sugar pill to me… minus the fact I have zero sex drive now. :) In any case, I'm still in my 40s and my oncologist wants me to just stay on Tamoxifen indefinitely. I plan to readdress at the 10 year mark, which would make me 50. I'm…
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I'm considering a unilateral mastectomy following DCIS diagnosis
Hi. I'm newly diagnosed with DCIS following a biopsy to my left breast. Two areas of DCIS found (located near each other), 8 mm each, 1- ER+ graded intermediate, 1 - ER Neg. graded Advanced. I'm trying to decide between a mastectomy of my left breast or radiation followed by tamoxifen. I'd like to connect with women who…
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Oophorectomy & hysterectomy experiences
Hello! I'm due to have a hysterectomy and oophorectomy due to the damage 7 years on Tamoxifen has done. I'm 48 so not quite hit menopause yet although the Tamoxifen has given some sort of menopause. My question is has anyone else had the procedure and how did they get on? I made the mistake of googling ...I'll never learn!…
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Tamoxifen - encouragment to keep going?
I know there are a lot of posts around tamoxifen. I've been on it for a year and I feel like I should feel lucky because I don't have a lot of the long list of side effects. However, I do have severe depression that started after maybe a month of being on it. I went off after 3 months to see if it really was the tamoxifen…
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Tamoxifen Side Effects
How long were you on Tamoxifen before you started to notice any side effects? Also, what was your age when you started Tamoxifen
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Long-Term Results Confirm Benefits of Ovarian Suppression With Tamoxifen
Long-Term Results Confirm Benefits of Ovarian Suppression With Tamoxifen Nov 21, 2023 Ovarian suppression plus tamoxifen lowers recurrence risk. Read more…
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Endo thickening and heavy bleeding 2 years after Tamoxifen
I'm 56. Had bilat mast, chemo in 2011, then tamoxifen for 10 yrs ending 11/2021. Hadn't had a period since chemo at age 43. Had routine screening pelvic/tva in Feb. not because of symptoms, but mom died of ovarian ca, and because I was concerned about years of Tamox. It should 12 mm abnormal thickening. Uterine bx in Mar.…
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Starting Tamoxifen: What are the Side Effects
Hello, I will be starting Tamoxifen in about a month's time. My doctor advised to take aspirin everyday as there is a risk of developing blood clots. Have you been taking aspirin with Tamoxifen? What are the usual side effects that you've experienced?
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What Helps Women Stick to Hormonal Therapy Treatment Plans After Surgery?
What Helps Women Stick to Hormonal Therapy Treatment Plans After Surgery? August 25, 2023 Lowering medicine prices seems to be one of the best ways to help women stick to their hormonal therapy treatment plans after breast cancer surgery. Read more…
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Tamoxifen Users
Hello, Have any of you experienced polyps in your colon or precancer/cancer in the colon related to tamoxifen use??
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Did anybody get tinnitus from taking Tamoxifen?
I have been on Tamoxifen for 1 month and start to get tinnitus which occurs all the time (not occasionally), when it's night it's worse 'cause it's much more quiet; and at day time when it's not very noisy I can feel it as well. Tinnitus is not mentioned on the material about SEs from Tamoxifen I got from the clinic....but…
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Liver damage with Tamoxifen?
Hey, peeps. Context: A little over a year ago, shortly before my BC diagnosis, I had skyrocketing ALT and AST levels and was sent for a liver biopsy. I was diagnosed with liver damage of unknown origin (they theorized I'd been exposed to something chemical somehow), NASH and NAFLD. I had mild scarring on my liver and lots…
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Tamoxifen after 5 years?
Hi :) I am 54 years old and was on Arimidex for 1.5 years (side effects were too much for me) and Tamoxifen for 3.5 years. I was not menopausal when I started, but I am now. I assumed after five years that I would be done, but my oncologist has now said I should stay on for at least two more years. I'm seriously…
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Bottle o Tamoxifen
Dear All, (and Layne are you there?) Got my Tamox today and will start in a week. Where are my tamoxi pals? It says weight loss for one of the side effects. Now that's a good thing. Basha Edited by Mods to add content from the main Breastcancer.org site's section on Tamoxifen in Pill Form (Brand Name: Nolvadex): Benefits,…
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Beginning 5th Year on Tamoxifen
Hi All, I'm 2 1/2 months into my 5th year on Tamoxifen and my patience is wearing thin for dealing with the side effects. The worst one is stomach upset/pain. I'm taking a ton of PPI medication and have been since day 1, but apparently it's not enough on some days. I've only skipped one pill in March and one in May as I…
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Any POSITIVE stories about AIs or Tamoxifen?
I am seeing a lot of posts seem to indicate that AIs are frequently stopped due to side effects that are not bearable. I am on Tamoxifen and expect my onco to recommend me changing to an AI. I have gained at least 10 lbs since starting T just shy of 2 years ago. I do have joint pain (specific to the hip area) but am sure…
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Older Woman HRT
I am looking to connect with similar patients. I was on HRT for 30 years. Oh God bless Estrogen. Stopped when diagnosed. I suffered, Three weeks radiation and on Tamoxifen for 2 months. Ive been miserable more and more depressed and sick feeling. just quit. I'll be searching this forum for older posts. One of my questions:…
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After stopping tamoxifen, how long before night sweats stop?
My last dose of tamoxifen 5 mg was May 26, 2023. I am getting better sleep most nights, but still waking up with night sweats several times each night. How long does it take before it’s finally out of your system?
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Tamoxifen and bleeding
I am 44 years old and premenopausal. I have been taking Tamoxifen for 8 months. I stopped getting my period in December right after starting the Tamoxifen and have not had a period for 8 months, not even spotting. This week I was at work and started what I thought was my period but after a couple hours turned into…
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Please give me any advice - Paying for Lupron no insurance
Hello. I am writing this from abroad. I am 44 and stage 1 Luminal B (HER2-negative) breast cancer and was diagnosed so 2 years ago. I went through a surgery, chemo for 12 weeks, and radiation therapy for 30 times. Now I am undergoing treatment with Lupron depot - 3 month 11.25mg) and Tamoxifen (10mg). I am an American but…
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Life after finishing Tamoxifen
I was diagnosed with stage 1a breast cancer in 2018. Having lost my sister to the same disease at a young age, I chose to have a double mastectomy and went on a 5 year Tamoxifen regimen. I just came off tamoxifen in October after taking it for 4 1/2 years. Last gyno appointment showed endometrial thickening (benign,…
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Anyone on just Taxotere and Cytoxan?
I just started a regimen of taxotere and cytoxan for four rounds. I really need to talk to someone who has been on just this regimen. My first session did not go well. It dropped my sodium levels too low and I had a couple of seizures. They kept me in the hospital for two nights. I have been achey and weak since. Does it…
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ASCO 2023 BCO Coverage
Check out our continuing coverage of the 2023 American Society of Clinical Oncology Annual Meeting here:
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VIrtual Menopause Talk on managing the sexual, physical and emotional effects of BC
Hi All, Let's Talk Menopause, a national nonprofit organization, is hosting this free virtual event this Friday 6/9 at 12:00pm EST. There will be a Q and A period as well as information on how to treat the sexual side effects (vaginal dryness, painful sex, etc.). Please join if you can and spread to your networks! Thanks,…
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Virtual Free Menopause Talk this Friday 6/9 at 12:00EST
Let's Talk Menopause, a national nonprofit organization, is hosting this event with Dr. Laila Agrawal and Dr. Deepa Halaharvi. Registration is free. Please share! Thanks, Donna