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Feeling the "Imposter Syndrome" - Early Stage Cancer - Do I really count?

nightengale1 Member Posts: 6
edited July 5 in Stage I Breast Cancer

Okay this may seem weird and self serving. I know that I am fortunate to have my cancer caught early. Invasive Ductal Carcinoma. Had a lumpectomy and will start radiation this week. Not a long course from what I understand but I'm getting radiation and then hormone therapy, Estrogen +. I know how incredibly fortunate I am at this time to not receive chemo. I'm trying a support group but I continue to feel like I don't belong. I'm "not sick enough". Feeling the "imposture syndrome". I want to say, even though I'm an early stage I have stress and fears of where this can go. I've gone down the rabbit hole of what if I'm that percentage that does come back, get worse. I almost feel like my cancer doesn't count. Maybe it doesn't. But does anyone else in my situation feel like this? Or am I being just a whiner? Which is fine, I can accept that. Again, just putting this out in the universe to see if anyone else feels like this. Thanks for listening.


  • mavericksmom
    mavericksmom Member Posts: 996

    Let me assure you that you ARE NOT alone in your feelings! I have had breast cancer three times, each was a new cancer not a recurrence. I felt, and currently feel, the same as you do! I just had an appointment with my breast surgeon a couple of weeks ago, told him I felt a small mass on my breast bone which is painful. It is in my most recently reconstructed breast, and he completely blew me off! He never even felt the area I was talking about and told me I shouldn't be doing self-examinations, I should let that up to the experts, like him! I told him I have bone pain and he blew that off too!

    It is bad enough to have friends/family make us feel as if our cancer doesn't matter, but when doctors do that, well, suffice to say, that is probably the last time I will see that doctor!

    My second Dx of ILC, was caught early, I had Oncotype testing on my surgical tumor but due to my age, my score, which would have indicated chemo would help in a younger woman, said it wouldn't benefit me because of my age. After both of my last two diagnoses, people would ask "are you getting chemo?" When I say no, but I'm on a hormone therapy pill, they kind of go "oh, then I guess your cancer wasn't that bad!

    Like you I AM so grateful to have had small tumors, but I don't want to even mention the words breast cancer to anyone. I'm already have trouble dealing with the trauma, I don't feel like I should also need to justify my cancer treatments, or my feelings, to others.

    Imposter Syndrome! Yes, that sums it up exactly!!!! I definitely feel that way.

  • nightengale1
    nightengale1 Member Posts: 6
    edited July 5

    Well Mavericksmom let me tell you that you do matter. Your cancer "counts". It's real and I "see" you. It's odd that the ones that make me feel like I'm an imposture have been the other patients in my support group. Most are in a more advanced situation with a couple like me. But's it these peers that really have been the ones to make me feel this way. Why can't they see we are "sisters" in this because we really are no matter what stage you are in.

    Anyway I support you. I see you. And, yes you count!😊

  • tb90
    tb90 Member Posts: 278

    Nightengale1: This is commonly expressed amongst women affected by breast cancer and due to the differing issues experienced by different stages, it is not surprising. Stage Four forums are restricted for exactly that reason. What should not be lost in all of the differences, is that each individual has their own fears and challenges and these realities should not be minimized by others. Early stages went through the same terror waiting for their final dx’s. PTSD results from the first mention of cancer. It is helpful though to find support from others who can relate to your situation. A support group for breast cancer is just too broad. No one should ever feel that their issues are not serious enough to be acknowledged and respected. And what may seem minimal to one may be catastrophic to another. Find a place where you feel heard, supported and respected. You do matter and your issues are real. No one should feel that they are not justified to feel as they feel. I hope you find the right place to be you and feel justified to address whatever you need. All the best!

  • heavenly12
    heavenly12 Member Posts: 1

    I was diagnosed with IDC, stage 1 HER2+, ER, and PR+ in my right breast last month and am scheduled for surgery on 6/ 24/2023. I work in the mental health field making it a little easier to divulge my diagnosis and get support from co-workers. When I told them one of them stepped up stating they had not ever told anyone that they had a mastectomy in the past and had a history of BC in their family. They have reached out to me as a shoulder to cry on but I feel like an imposter because I feel like I am not sick enough and should be able to "put on my big girl pants and move on". My fear, confusion, anxiety, and anger are the same as those who are in stage 4 or have had a mastectomy and should be validated and treated the same.

  • gailmary
    gailmary Member Posts: 382

    Nightingale, yes you are justified in your feelings whatever they are. Get this. I felt the same . No chemo for me either. Same concerns... fast forward XX years and now I'm stage 4. Still no chemo. Still much anxiety. Still hormonal therapy. It can still be hard. Cancer is a slow grade 1. I assume it makes the difference. But I feel like a fraud. I'm not sick enough. Friends think I'm cured and through with treatment.

    Best of luck to everyone here.

  • moderators
    moderators Posts: 7,206

    Welcome to our community, heavenly12. As you can see, you are not alone! We're so glad you've found and joined our community, and as nightengale1 said, we see you.

    The Mods

  • denton10
    denton10 Member Posts: 4

    I was diagnosed with 6mm IDC grade 1 Hormone +, HER - in March. I’ve had a lumpectomy, sentinel node biopsy, radiation (5 treatment accelerated partial breast) and will start on ALs shortly. And a whole lot of testing with a couple different types of biopsies thrown in. Plenty of waiting and a fair amount of frustration mixed in.
    i completely understand. I feel the same.

  • pcbdreaming89
    pcbdreaming89 Member Posts: 1

    I am so glad to see your posts. I felt like an imposter when they told me they were going in for surgery LCIS and ADL. After the lumpectomy they found stage 1cancer…

    I have another surgery this week to get clean margins from Invasive Ductal Cancer and will have a sentinel biopsy.

    I am scared, don’t have anyone to talk to that isn’t “I am sure it’s fine”vs those in my family that won’t speak of it at all to friends who say “whatever you need” but don’t know what that is… because I don’t. I go from good and solid to mad and sad a bit later….

    anyway… hope this post helps someone that might be feeling like me.

  • mandy23
    mandy23 Member Posts: 68

    Hi @pcbdreaming89 !

    Sorry you had to join the club no one wants to be part of, but we're really glad you found us.

    You are NOT an imposter! You are going through this every bit as much as any of us. None of us knows what the future holds and once dxd, that future becomes more full of fears.

    This forum exists exactly for the reasons you posted. You're frightened and no one 'gets it'. I ran into someone a few months back after I finished my chemo. They said oh, you're 'done' now, so you're 'good' now. I just didn't know what to say exactly. I think it's them that wants to be assured that if they get cancer, they will be ok. They don't want to hear about that maybe not being true.

    Take all of this one piece at a time. The fact that it sounds like it was found early means in all likelihood, you will be 'fine'. Take comfort in that. Don't let others reactions get to you. Who cares? It's all about you now. How are YOU feeling? We're here for you. I think it's important to post your feelings so others can help support you.

    We DO 'get it' and we care. We're here to listen.

    Take care!

  • moderators
    moderators Posts: 7,206

    @pcbdreaming89 - Hello and welcome to, we're glad you found us!

    It's completely okay to feel scared, and you'll find a space to express your feelings without judgment in this wonderful community. Whether you need someone to listen, share experiences, or simply be there, we're here for you.

    Good luck with your surgery! Please, come back to let us know how you're doing!

    The Mods

  • needs.a.nap
    needs.a.nap Member Posts: 80

    Hi @pcbdreaming89. I appreciate your post! I’m so sorry for what you are now going through. One surgery is plenty! I hope your next one goes very well and you have a good recovery. This is definitely a process and an emotional rollercoaster! It hasn’t been fun, it’s doable but no one’s idea of a good time, that’s for sure!!

    And thank you @mandy23 for your kind and helpful comments!! I completely understand the feeling like an “imposter” and still feel funny even saying I had breast cancer, despite having had a mastectomy! I felt way too healthy to have cancer (besides fatigue). All these months later it still is surreal.

  • rancar
    rancar Member Posts: 3

    This is exactly why I joined. I've been feeling weird because I went in for a preventative masectomy and they found DCIS. I feel relieved to have followed my gut and had surgery. My surgeons were super supportive but some of family doubted if I needed such a serious surgery. They found DCIS on labs from my tissue that was removed. It wasn't on pre-surgery imaging. I feel like I'm in the in-between because they are saying I don't need further treatment but i'm afraid I might in the future. I struggle with a fear of dying young because my mom died at 49 and my grandma at 55 from stage 4 metastatic breast cancer. So the diagnosis scares me but I am relieved to have had my bilateral masectomy. I hate that we all have this but grateful for people who get it.

  • needs.a.nap
    needs.a.nap Member Posts: 80

    I’m so very sorry about your mom and grandma @rancar ! The more I’m learning about breast cancer, the more I appreciate and respect the decision for preventative mastectomy. How are you doing? Are you healing well?

  • gailmary
    gailmary Member Posts: 382

    Rancor, the fear is real just don't drive yourself nuts over this. Looks like you did the right thing - in time. Hopefully you will never have an issue again. Be glad you found us. Often family and friends dont get it. At least until their staring cancer in the face.

    Best of luck to you