This sucks - Osteonecrosis of the jaw

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  • First I want to thank all you brave women out there who are sharing your journey. ~ I’m looking for experience/ideas of what to expect from ONJ. First diagnosed with BC in 2005 stage 2, ER+ HR-2neg, then lumpectomy+chemo (ACT)+radiation+hormone therapy, with two recurrences and double mastectomy along the way. MBC diagnosed 5 years ago. 3.5 years on Ibrance + faslodex, 1.5 years on Xeloda, a few months on Afinator + exemestane, and now 6 successful months on Truqap + faslodex, shrinking liver lesions and CA 15.3 down to 60. I take good care of my teeth but was having pain in my upper left jaw when chewing crunchy food, and could feel one painful tooth in my lower right jaw. My regular dentist took x-rays and found the jawbone was receding from the painful teeth and there was pus in two pockets - yikes! X-rays at a regular check up in April had shown none of that, so the damage had happened within 5 months. Dentist has me on a week of Clindamycin and clorhexidein mouthwash, and recommended a periodontist and I have an appointment in two days. No idea what to expect !! Advice on how to proceed and what to expect would be greatly appreciated.

  • @jredfern2. Were you ever on bisphonates or Xgeva? Otherwise, you might be experiencing regular dental issues unrelated to your cancer treatment. No matter what, it's great that you are on top of your dental health.

  • jredfern2
    jredfern2 Posts: 5

    No, never on bisphonates or Xgeva.. Did a periodontist treat you? What type of exams and treatments? My onc says it could be long-term effects from previous chemo.

  • @jredfern2 Yes, I am currently being monitored by a periodontist. Before my ONJ was diagnosed, he tried to solve my tooth pain without extraction. Deep cleanings and a trip to the endodontist for a root canal. He finally had to take out the tooth and sent me to an oral surgeon. So far, I have not had any treatments other than regular cleanings. I hope your appointment goes well!