Fill Out Your Profile to share more about you. Learn more...

Recurrence after Mastectomy, then positive margins


I am hoping to connect with people who might have a similar situation to mine, although I think (?) my situation might be on the rare side. Six years ago I was diagnosed with Stage 1B IDC. I am BRCA2. I did a double mastectomy with reconstruction (implants) and was told chemo/radiation not needed since my tumor was so small (5mm). Then this summer I felt a lump, same side on the underside of my foob (inframmatory fold). After scans, biopsy, etc. they said it was a local recurrence of IDC. Pet scan was clear. I had surgery last week to remove the tumor. Just found out that I have positive margins from that surgery. While typically this would require further surgery, the surgeon is saying he would not recommend surgery because it would be "incredibly dangerous" - a full chest wall resection where they would have to remove ribs, muscle and implant. He said I would be in the ICU and on a ventilator. Yikes! I still have not met with my oncologist yet but am very anxious about what the recommended treatment will be. Has anyone been in this situation or might have any experiences to share? I am ER+, PR (mildly pos), HER-. Grade 3, they are saying cancer is Stage 2. Margins involved are "Superior Multifocal, greatest continuous involvement in one focus 6mm).