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Multiple Organ Mets and on Kisqali/Ribociclib (3+yrs)

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neikka_cat
neikka_cat Member Posts: 1

I always hear amazing stories from those with dx’d with bone mets de novo on this drug. Curious to hear from those with multiple organ mets or were dx’d secondary who have done well long term on the Kisqali/Ribociclib combo. Where were your mets, and how long have you been on this treatment?

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  • missmonty
    missmonty Member Posts: 63
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    Hi Neikka_cat,

    I was diagnosed DeNovo with lung Mets in 2017.

    Kisqali/letrozole/Zoladex was my 2nd line treatment after Xeloda. It worked successfully for me for 3.5 years. I have since had progression and moved on to different treatments, but 3.5 years was a pretty good run. It was a very manageable treatment for me.

    Hope this information helps.

    Anna

  • moderators
    moderators Posts: 7,900
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    Thank you for sharing, @missmonty !

  • moderators
    moderators Posts: 7,900
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    Bumping this thread for @neikka_cat — can others weigh in?

    Also neikka — check out the Ribociclib/Kisqali and letrozole for MBC thread for some experiences from others.

    We hope this helps!

    —The Mods

  • seeq
    seeq Member Posts: 1,084
    edited October 2023
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    Hi @neikka_cat, I'm not on Kisqali, but I'm on a different CDK 4/6 inhibitor (Verzenio/abemaciclib) and anastrozole. It kicked my large/numerous liver mets in 7 1/2 months and I'm still hanging in there on the first line treatment just over 3 years later.