Multiple Organ Mets and on Kisqali/Ribociclib (3+yrs)

neikka_cat

I always hear amazing stories from those with dx’d with bone mets de novo on this drug. Curious to hear from those with multiple organ mets or were dx’d secondary who have done well long term on the Kisqali/Ribociclib combo. Where were your mets, and how long have you been on this treatment?

missmonty

Hi Neikka_cat,

I was diagnosed DeNovo with lung Mets in 2017.

Kisqali/letrozole/Zoladex was my 2nd line treatment after Xeloda. It worked successfully for me for 3.5 years. I have since had progression and moved on to different treatments, but 3.5 years was a pretty good run. It was a very manageable treatment for me.

Hope this information helps.

Anna

moderators

Thank you for sharing, @missmonty !

moderators

Bumping this thread for @neikka_cat — can others weigh in?

Also neikka — check out the Ribociclib/Kisqali and letrozole for MBC thread for some experiences from others.

We hope this helps!

—The Mods

seeq

Hi @neikka_cat, I'm not on Kisqali, but I'm on a different CDK 4/6 inhibitor (Verzenio/abemaciclib) and anastrozole. It kicked my large/numerous liver mets in 7 1/2 months and I'm still hanging in there on the first line treatment just over 3 years later.

laguna24

hi, @seeq

I was recently diagnosed with liver and stomach mets. 16 years later after my initial dx with ILC in 2008. Started Kisqali/Femara.

Wanted to ask how are you doing on Verzenio with your liver mets 4 years later? Is it still working?

Hugs

seeq

@laguna24 hi, and thanks for thinking of me. I will have been on Verzenio/anastrozole for 4 years next week and I'm still good. I have scans tomorrow - looking to add another 3-4 months to my run.

I hope the Kisqali is working wonders for you.

laguna24

@seeq Good luck with your scans.

Many years to come