Just diagnosed, trying to make surgical decisions
Hi. I was just diagnosed with IDC, ILC, E+, P+, HER2-, 1.3cm & 1.7cm tumors (left breast only), 7% growth rate, Grade 2, staging to be done with surgery. Was initially considering lumpectomy with radiation, but am concerned that I have had ILC for a while and it hasn't shown up on imaging. I have had multiple mammograms, breast u/s, and an MRI with and without contrast. The radiologist was concerned that he can't really see what is going on in my breasts because they are so dense. I am trying to minimize my future risk of recurrence and metastasis and other unintended downstream consequences (radiation), so I am leaning towards a bilateral mastectomy followed by an aromatase inhibitor.
Trying to find doctors that are well versed in ILC is a challenge - they seem to want to treat it just like IDC. Hoping for guidance on how to talk to my doctors about minimizing my risk, even if it means more aggressive surgery up front. Friendly, gentle input appreciated!