Advice 15 years out
I was diagnosed with invasive lobular carcinoma in 2008. I had a bilateral mastectomy and lymph nodes removed (a few did test positive). I underwent chemo, radiation and reconstruction. Unfortunately, my original reconstruction with implants failed and so I then had a DIEP flap.
I do not allow blood drawers, IVs or BP on the involved arm. Recently, I had foot surgery and the anesthesiologist nurse said that is not the current theory, but did respect my wishes. I also wear a compression sleeve when flying.
Can anyone tell me if there are new thoughts, especially this far out from surgery? Years ago, I thought I read that there was still a risk of lymphedema even 20 years post-op, but could be wrong. Also, the surgeon who did the DIEP flap said that this type of reconstruction decreases the risk of lymphedema.
Are people still using compression sleeves when flying? Should I still not allow needle sticks or BP on the involved arm? (Both even though I am 15 years out?)