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Diagnosed with MBC!

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casey714
casey714 Member Posts: 10

10 years ago, I was diagnosed with breast cancer. I had a lumpectomy, chemo, a mastectomy, radiation and reconstruction. In April of this year I was diagnosed with MBC. I am on Kisqali. After initial side effects, I have adjusted to the meds and have been asymptomatic. Physically I am doing okay. Emotionally I am a roller coaster — happy, scared and sad rolled up. I try to live each day fully but am haunted by the unknowns. I would love to hear from others about their experiences. Even better, I am in MoCo in Maryland in case anyone wants to meet for a walk or coffee.

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  • aprilgirl1
    aprilgirl1 Member Posts: 779
    edited November 2023
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    Hi Casey -I'm sorry about your stage IV dx. I had a recurrence after 11 years had past from my original stage 1 cancer dx and treatment (chemo, rads surgery and femara for 6-7 years )..... so I understand the roller coaster of emotions you describe !

    I have been on Ibrance and fulvestrant for 4 years and am doing pretty well. Look in the stage IV only area and there is a Kisquali thread . You'll find lots of support - many people are doing very well on the cdk4/6 drugs (kisquali, ibrance verzenio) and some for 4 plus years .

    I live on the west coast so can't meet you for a coffee in person ;)

  • salamander2023
    salamander2023 Member Posts: 4
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    What is MBC?

  • exbrnxgrl
    exbrnxgrl Member Posts: 4,958
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    metastatic breast cancer, i.e. breast cancer that has spread beyond the breast. Typically, but not exclusively, to bone, brain, lungs , or liver.

  • moderators
    moderators Posts: 8,211
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    @salamander2023, here is a list of abbreviations seen throughout the Breastcancer.org Community discussion forums: Guide to common abbreviations. We hope this is helpful!

    The Mods

  • moderators
    moderators Posts: 8,211
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    Also, @casey714, welcome again to you! We're so very sorry for the reasons that bring you here, but we're really glad you've found us. As you can already see, our community is full of amazing members always willing to offer advice, information, encouragement, and support — we're all here for you!

    While you're sure to get some wonderful responses here, we also wanted to point you to the Kisqali for Stage IV thread, where you can talk with others about any side effects you're experiencing and get tips to help manage these.

    We hope this helps and look forward to seeing you around the community! Let us know if you need anything at all!

    —The Mods