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"What a revoltin' development this is."

When I was very young, my grandparents and I would watch a TV comedy, "The Life of Riley." The protagonist would turn to the camera at some point and declare, "What a revoltin' development this is" when something untoward had occurred. It always brought a big laugh from the soundtrack.

Several weeks ago, I had a bone scan that confirmed I have mets in my shoulder, sternum, sacrum, hips, humerus, and a rib, along with worsening mets in my lungs and arthritis in the rest of my skeleton. My last bone scan was in January and showed nothing!

I am over the considerable initial shock of reading the scan report and discussed this latest turn of events with my oncologist just two days ago. She wants me to stay on my latest treatment of daily Affinitor, Aromasin and Zometa every three months, plus consult with a radiologist for the worsening pain in my spine. I have been using a walker since I was hospitalized last March with pneumonitis, heart failure and damaged kidneys from Piqray. My balance is off, my left knee needs replacing, and PT was not helpful.

In short, I'm a physical mess. My oncologist is very matter-of-fact, which I mostly appreciate. But it's difficult to hear her say " If you can get yourself dressed and in here, you're doing well" when I hurt all over and it takes me forever to get things done.

Feeling sorry for myself gets boring very quickly, so I'll stop here. I just wanted to bring you up to date and, in the process, get some insight into living with bone mets. I also hope to reconnect with some "old" friends on this forum.

Tina

Comments

  • threetree
    threetree Member Posts: 1,157

    Tina, I'm real sorry to hear about your latest results and situation. This disease is absolutely unforgiving. We are all here, and there is much you can learn on the bone mets thread. Interesting about the "if you can get dressed and get here" you are doing well. I'm really ruminating on that one! (I remember the Life of Riley. My brother and I used to watch it together after school. I hear it now from time to time on an old radio show that I listen to.)

  • irishlove
    irishlove Member Posts: 420

    Hi Tina, I'm glad to see you reconnecting, but not liking the reason at all. You MO has an "odd" sense of humor, maybe gallows humor is a better description. You've been thru so darn much that stability sure would have been nice to hear. I'm not sure, but do you have faith in your MO, or is it time for 2nd opinion? I know in my insurance situation, I have to stay put with the cancer center I'm with and 2nd opinion would just be the partner.

    Not good news for me either, so I sure can commiserate. Thinking of you and you make your way forward.

  • moderators
    moderators Posts: 7,683

    So incredibly sorry to hear this, @tina2, thinking of you.

  • exbrnxgrl
    exbrnxgrl Member Posts: 4,644

    hi Tina,

    It’s good to hear from you but I’m sorry that you’ve had progression. I have no insights or words of wisdom but you have all of my positive thoughts 💗

  • tina2
    tina2 Member Posts: 753
    edited December 2023

    Update:

    I had a radiation simulation and tattoos today, with very attractive target marks all over my nether region and hips. The pain in one hip just getting onto the scanner bed was pronounced. According to the patient portal, some appointments for treatment have been arranged. However, they are scattered on the calendar, but sooner than I'd assumed they would be, so I'm a bit confused. Maybe the holidays are messing things up. I will call the doctor's RN tomorrow for clarification.

    Those of you who are Boomers will appreciate that the music in the CT scanning room was Motown. I slid into the scanner to the legendary Gladys Knight and the Pips singing "Midnight Train to Georgia." Hope I'm not the only one here who find this amusing.

    Tina