Post Mastectomy Peau d'orange - IBC Concern and Questions...
I had a mastectomy in October 2023 following a DCIS diagnosis. It is now Feb 2024 and my swelling has not subsided. Despite asking why my swelling had not gone down and being told by my plastic surgeon that there was no cause for concern, my gut told me to cancel my final reconstruction surgery and demand a look at my still swollen orange peel skin.
The plastic surgeon now 'recognizes that this is an issue' and has sent me back to the surgical oncologist. I won't see her until Monday, but I'm seething with anger that my gut was right and I wasn't listened to. Is it common to have post-mastectomy swelling when the spacer is too large for your breast? I know Monday will come, and all the fun biopsies will begin again, but I'm feeling so defeated, alone, etc. I was fired from my job for all of the surgeries, it ripped up my family dynamic, and just when i thought things were over, i feel like I'm going to have to go through everything again.
I never got radiation; they opted for mastectomy and reconstruction. I don't have the braca gene, and the mastectomy tissue tested negative for cancer… is it likely i still somehow have iBC. I know no one here is a doctor, but I'm just at such a loss… I don't know what else to ask, do, or say and wanted to turn to anyone for insight.