Invasive lobular carcinoma

pancake1
pancake1 Member Posts: 1

Hi there . I was diagnosed with ilc, had lumpectomy of right breast stated barely stage 1. Treatment: tested one of 2, it’s at 25 which means radiation yet sending back other sample to get tested because over 25 would be to do chemo , then radiation . Stated stats : with chemo 1% of returning , without 12% of returning I thought they said in 9 years . Also stating will need to do hormone treatment ( pill ) , not herr yet estrogen positive. I’m still learning so hoping my description is correct ! My thought is I’m good w 12% stat at age of 59 years of age yet wanted to ask group ? I will press my oncologist more though for help regarding ! Thoughts and thank you !

Comments

  • moderators
    moderators Posts: 8,637

    Dear @pancake1, welcome again to BC.org! We're bumping your discussion with our post to see if anybody can help. While waiting for responses on this thread, we encourage you to explore other discussions. You'll find a wealth of knowledge and support here, and your contribution could spark meaningful conversations and give others valuable perspectives. We're all here for each other!

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  • beckywilson2024
    beckywilson2024 Member Posts: 2

    I hate to be a downer here. My sister had stage 1 a or b ILC. She opted for a double mastectomy and reconstruction. They said 7% chance of recurrence. She was in her mid-50s. 6 years later, stage 4 MBC. The cancer was very resistant to chemo, with a new regimen every few weeks. She may have been an outlying in terms of how it came back so consider getting a 2nd and/or 3rd opinion if necessary.

  • moderators
    moderators Posts: 8,637

    @beckywilson2024, we're so sorry to hear about your sister’s experience. Seeking a second opinion can be incredibly valuable, especially when making such important decisions. If you're interested, here is an article from our main site about getting one:

    https://www.breastcancer.org/treatment/second-opinion/asking

    Good luck, and please, come back to let us know how you both are doing.

    The Mods