Tamoxifen 5mg side effects

sue380

Hi

I am wondering if anyone else on here his post menopausal and on tamoxifen. I started last week and have had debilitating headaches every afternoon and brain fog. My doctor said it should taper off in 6 weeks seriously. I am taking at dinner wondering if it would be better to switch it to mornings interested to hear anyone's experiences.

veeder14

Hi Sue380

I would suggest drinking lots of water/liquids, Tamoxifen is very drying to the system and that could cause headaches.

sue380

Hi

Thank you. I have decided I am going to stop this for now. 6 days and feeling like I am going to die no thanks plus wicked tinnitus. I am still recovering from radiation fatigue. I question why they don't let you recover from 2 surgeries then radiation and shove another drug in you. I will have a good chat with my radiation oncologist apr 30. I want to know my percentage of recurrence. I have asked both oncologists without an answer yo date.

moderators

@sue380,

We're so sorry you're having such miserable side effects. Have you considered talking to your doctor about switching to another type of hormonal therapy treatment called Aromatase Inhibitors? You can read more about them here: https://www.breastcancer.org/treatment/hormonal-therapy/aromatase-inhibitors

Also, you might find this article helpful:

https://www.breastcancer.org/treatment/hormonal-therapy/refusing-hormone-therapy

We hope this helps and that you find some relief (and a treatment that you can tolerate!) soon!

—The Mods

sue380

Hi

I am not switching brands or trying an AI I have decided for myself I am not doing any other therapy surgery and radiation for dcis hopefully is enough I'm going to a naturopath to see if there's anything natural that can help other than that I'm just going to live my life. Drug companies own doctors and pharmacies and they push everything I worked in the medical field so I am not going to drink the Kool-Aid

zen1028

Good for you sue380. I too cannot take 5mg. But then I also have Lupron still active in my system so that makes all the bad stuff magnified. Why cant the drug companies use some of their dollars on a preventative vaccine instead of a "drug"? The profits?

sue380

I met a women last week she has stage 3 invasive she's on an ai for 4 yrs . Her rib cage is collapsing, her hips have real bad osteoporosis, she has wicked fatigue. Where is the quality of life these med's take your quality for what no guarantee whatsoever that you won't have a recurrence. I respect the fact people need to make their own decisions.i hooe she has success. I think it's sad .