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Diagnosed last thursday, now in the waiting game for appointments

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lknickels
lknickels Member Posts: 3

Well I got the alert last Thursday that I had a new result in my MyChart and I looked and got the news there at my job. Looks like I have grade 3 IDC, triple negitive hormone test. The NP at my OB/GYN office called and asked where I wanted my referral sent. I gave them a few places and now I wait. Not having much infromation and wishing I could just get in to see a DR. The wait for a DR local to me is two months, I have sent appointment requests off to Wake Forrest, Duke, and Vanderbilt. Just waiting to see who will get me in quickest. Thanks for letting me vent, I don't know anyone who has ever had BC so this is so new and was such a shock.

Here Is my path report

Final Diagnosis:

Breast, left at 6:00 position, ultrasound guided biopsy:

INVASIVE MAMMARY CARCINOMA.

SYNOPTIC REPORT

Procedure: Needle biopsy.

Specimen laterality: Left.

Histologic type: Invasive carcinoma of no special type (ductal).

Histologic grade (Nottingham histologic score):

Glandular (acinar)/tubular differentiation: 3

Nuclear pleomorphism: 3

Mitotic rate: 2

Overall grade: Grade 3 (total Nottingham score: 8)

Ductal carcinoma in situ: Not definitively identified.

Lymphatic and/or vascular invasion: Not identified.

Microcalcifications: Not identified.

Ancillary studies: Pending, will be reported in an addendum to follow.

Additional pathologic findings: Brisk peritumoral inflammation.

Estrogen Receptor Internal Control: Absent (only neoplastic tissue is present).

Percent Positive Cells (invasive tumor): 0%

Staining Intensity: Not applicable.

Interpretation: Negative.

Progesterone Receptor Internal Control: Absent (only neoplastic tissue is present).

Percent Positive Cells (invasive tumor): <1%

Staining Intensity: Weak.

Interpretation: Negative.

Her-2/neu (Cerb B-2)

Score: 0

Percentage of cells with uniform, intense complete membrane staining: 0%

Interpretation: Negative.

Comments

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,072
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    Welcome but sorry for the reason you are here. Waiting for appointments, tests, results, etc. is frustrating but since breast cancer is not considered an emergency (really!) it’s something most of us experience. It’s stress inducing but because breast cancer is generally very slow growing, it will not affect your health adversely. For the sake of stress relief, I hope you can get an appointment sooner!
    I am a retired teacher and don’t feel qualified to interpret medical reports, though after 13 years with bc, I am familiar with many of the terms, but radiologist is definitely above my pay grade*. There will be lots to learn (bc is infinitely more complex and varied than most people imagine) but you don’t have to learn it all at once. Lastly, although Google can be useful for general info, it cannot say anything about you as an individual and there is also some bad info out there. Dr. Google is a terrible diagnostician and clinician!
    Things will likely unfold more slowly than you would like but that’s typical. Focus on what you know for a fact right now and try not to spend much time speculating over worse case scenarios that may never happen.

    *Some members are comfortable interpreting medical reports. Not putting them down, it’s just too far outside of my sphere of knowledge even with a huge amount of personal experience.

  • needs.a.nap
    needs.a.nap Member Posts: 195
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    I’m so sorry @lknickels. It being a shock is so true!!! One year later I still can’t believe it all happened some days. And I understand that feeling of no one I knew had ever had breast cancer so it was a completely foreign thing for me. (Yet my grandmother had had breast cancer when I was young, I just don’t remember her ever talking about it so I wasn’t educated at all about it. On a positive note, she survived another 30+ years!) It’s all been a lot to learn and digest and go through … but you just do it. Getting on this forum and connecting with others can be such a valuable help! Welcome!!!

  • lknickels
    lknickels Member Posts: 3
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    Thank you! I got a call today and have been scheduled for next Friday the 12th with a team of doctors, so just knowing I have an appointment has made me feel so much better!

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,072
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    Hooray! I am so glad your wait will be short 😊.

  • needs.a.nap
    needs.a.nap Member Posts: 195
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    That’s so much better @lknickels … two months did seem a bit excessive of a wait. I’m glad you’ll get things in motion sooner.