Refusing AI Treatment
I I have decided that I'm going to quit taking my AI medicines. I became suicidal, depressed, full of anxiety, feel like I'm going crazy, legs aching in pain. I am diagnosed with stage 1 ER positive invasive ductal carcinoma. I've had a lumpectomy and one month of radiation. I have dense breasts. I have decided that the quality of my life is more important than the quantity. Has anyone else made this decision?
In addition The side effects of the AIs are horrible jaw necrosis, fractures of the femur that can't be repaired. All from the biophosphates that you need to go on because the AIs suck the life out of your bones. Not to mention the risks of heart issues. I don't think it is worth it. The worry the anxiety. On top of the fact I don't trust the breast cancer machine in this country. Anyone go off their AIs and have good experiences?
Comments
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@rahini108, welcome to the community! We're so sorry you’re dealing with all these difficult side effects.
It would be great if some members could share their experiences on managing their symptoms. Until then, there’s also a discussion called "My Choice—Refusing Treatment" where many people have shared similar thoughts and feelings. You might also want to check out the Hormonal Therapy forum to see how others have dealt with the side effects of AIs.
Remember, we're here to support you in whatever choices you make.
Sincerely,
The Mods
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I had to stop taking endocrine therapy after trying hard to deal with it for a year. I'm 4 1/2 years out from my diagnosis so don't know how things will shake out for me ultimately.
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Hi. I am new to the group and after reading post, can totally relate. I also was diagnosed in Nov '24. Had lumpectomy in Dec and have stage 1 ER positive invasive ductal carcinoma. Cancer is estrogen positive. I'm just finishing one month of radiation. My biopsy's show no involvement of the lymph nodes or spread to tissue so Dr feel I have a "well behaved" cancer. Now I have to decide about whether or not to undergo hormonal therapy. From what I have heard and read, I am worried about the quality of life I will have if I take AI therapy. I am 70 years old and figure I have 10 more good years before the "wheels start to fall off the truck" so to speak. Don't want to spend five of the next ten feeling bad.
Anyone have anything to share on their experiences with AI therapy? Thank you for your time and sharing.
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