Refusing AI Treatment
I I have decided that I'm going to quit taking my AI medicines. I became suicidal, depressed, full of anxiety, feel like I'm going crazy, legs aching in pain. I am diagnosed with stage 1 ER positive invasive ductal carcinoma. I've had a lumpectomy and one month of radiation. I have dense breasts. I have decided that the quality of my life is more important than the quantity. Has anyone else made this decision?
In addition The side effects of the AIs are horrible jaw necrosis, fractures of the femur that can't be repaired. All from the biophosphates that you need to go on because the AIs suck the life out of your bones. Not to mention the risks of heart issues. I don't think it is worth it. The worry the anxiety. On top of the fact I don't trust the breast cancer machine in this country. Anyone go off their AIs and have good experiences?
Comments
-
@rahini108, welcome to the community! We're so sorry you’re dealing with all these difficult side effects.
It would be great if some members could share their experiences on managing their symptoms. Until then, there’s also a discussion called "My Choice—Refusing Treatment" where many people have shared similar thoughts and feelings. You might also want to check out the Hormonal Therapy forum to see how others have dealt with the side effects of AIs.
Remember, we're here to support you in whatever choices you make.
Sincerely,
The Mods
0 -
I had to stop taking endocrine therapy after trying hard to deal with it for a year. I'm 4 1/2 years out from my diagnosis so don't know how things will shake out for me ultimately.
0
