Enhertu

good morning wondering how many people lost there hair on enhertu ?

Comments

  • moderators
    moderators Posts: 8,699

    @lori5mulholland - Welcome to the BCO community! Until you get responses from other members here, you may also post your question in our popular Anyone starting brand drug, Enhertu? discussion, where you'll find lots of posts of members sharing their experiences there with this drug, and you might find some helpful information and tips.

    Feel free to share more about your diagnosis and treatment if you’d like. We’re glad to have you here and hope you find the support and answers you’re looking for!

    Sincerely,

    The Mods

  • ruthiestribling
    ruthiestribling Member Posts: 1

    Hi, Lori5. My hair was already thin from my first round of chemo in 2020. Once I started enhertu in 2023, The hair came out in patches, so I shaved it off (a little more than a year ago). It is growing back slowly and still thin, but the top/crown is still patchy and the scalp is visible. My oncologist says it will grow back. Eh... I have lost hope for hair in my future.

  • txmom
    txmom Member Posts: 221

    I had a lot of hair fall out but it’s growing back. I cut it short and like it. I’m struggling with appetite, depression, fatigue, and motivation on this med. Anyone else and if so, what helps?

  • moderators
    moderators Posts: 8,699

    @txmom We're so sorry you're struggling on Enhertu. Many have similar side effects but if you haven't already, you may want to talk to your MO about reducing your dose to see if it improves. How long have you been on Enhertu? Are you on an antidepressant?

  • pdlc1989
    pdlc1989 Member Posts: 1

    Hi!

    I'm on my second Enhertu and losing so much hair I don't think I will have any in a few months. I am on the lowest possible dose after the first one was unmanageable with nausea, depression and extreme fatigue.