History of Multiple, Bilateral Rapidly Growing Fibroadenomas
Hello everyone!
I am mostly looking to hear of similar stories and to get advice for monitoring strategies.
A brief background of my history:
Don't have much breast cancer family history, besides my grandmother who got diagnosed when she was around late 70s.
I found a lump in my breast when I was 14, further testing with ultrasound came back as BIRADS3 as a probable fibroadenoma. After that, I have had bi-annual ultrasounds to monitor fibroadenomas. After that first one was found, I developed 6 more in the right breast, and 4 more in the left breast. Two of these were rapidly growing and doubling in size, so a lumpectomy was done when I was 17. Ended up that all masses were able to be removed, and came back as fibroadenoma. At my next follow-up a year later, I had developed 8 new masses on one side, and 3 masses on the other.
As of then, none of my tumors have shrunk/gone away. The previously found masses have remained stable but present, and I have since developed more. One new mass more than doubled in size, BIRADS4, and was biopsied (came back as a fibro). Later last year, a new mass that had been found tripled in size, developed hypervascularity, BIRADS4, and some other red flags. So, at 23 I got another lumpectomy (which confirmed fibroadenoma for that tumor).
As of now, I have at least 16 tumors in both breasts, of varying sizes. I am grateful that so far they are all benign, but the fact that I develop so many so quickly can be nerve-inducing.
I personally find peace of mind in the bi-annual ultrasound monitors, as even if previous biopsies have found benign masses, I get worried that new growths will make it confusing to detect between something usual and something concerning. But, it can be frustrating dealing with various biopsies and surgeries at my age, when I have more time to go to develop even more.
Is anyone else with similar history of multiple, fast-growing fibroadenomas? How has your experience been so far? Do you get worried about future breast-cancer risk?
Comments
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@secrettrees , we are sorry there haven't been any responses to your post yet — we are bumping this up to receive some more views. In the meantime, here are some informational resources on fibroadenomas, which we hope may be of some help to you:
Please keep us posted on how you're doing, and let us know if there's anything we can do to help!
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