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How high is "high risk"?
When I have looked online at the forums here and on other websites, I'm frequently seeing people who mention being high risk because they have a lifetime calculated risk somewhere between 20% and 45%. I'm not seeing anyone mentioning a risk higher than that. I have a Tyrer-Cuzick model 73.2% calculated lifetime risk. I…
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Swelling
Hi, this is for anyone who has had abnormal swelling - and I’m not saying I think it’s cancer but I know a lot of you have had other breast abnormalities, too. The area above my breast from my nipple to shoulder/clavicle has been swelling for the past year and I’ve had some clear discharge. I finally made an appointment…
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Radial Scar
Hi All, Just looking to connect with people who may have had similar experiences or diagnosis. I went for my first breast check, age 32 due to a concern on my right side. This was clear on imaging, however the ultrasound found architectual distortion on the left. This lead to a mammogram, mri, core biopsy and lumpectomy.…
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PASH
Hi Just wondering if there is anyone that is dealing with PASH and would love to discuss whom they are seeing and what direction their surgeon is taking. If you know of other websites or physicians that deal with PASH in the Chicago or the NorthShore area would like if you could provide that info. Found lump two years ago,…
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2017 BC Diagnosis…how are you doing?
Hello Friends:💐 It’s been awhile since I’ve checked in. I’m curious how my 2017 friends are doing. Have you had a recurrence? Is all going well? I’d love to know how everyone from 2017 is doing. I’m doing well. This site has been a huge support to me and I just want to thank you all again for your support. I look forward…
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Prophylactic Mastectomy
Looking for anyone with shared experience. From my 1st mammogram 15 years ago at 40, I have had issues. Multiple biopsies and lumpectomies, tons of scar tissue as a result. I have extremely dense breast tissue, complex cysts, breast disease, multiple bilateral papillomas and just recently diagnosed with LCIS. I do not have…
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Recent diagnosis
TNBC stage 4 Ductal metastatic 6.9 cm tumor in right armpit breast tissue, 3 cm on right breast, clavicle, possibly groin left side. Palliative taxol chemo & immunotherapy since the large one in my armpit is protruding out & would grow outside of my skin. 6 mo-1.5 yrs is what they gave me. Diagnosed 6/2024. Just finished…
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Opinions on MRI, Biopsy and Overall Worry
I'm looking for opinions or similar situations. Every year I get my mammo and since cancer they appear hypervigilant. The first few years they wanted to biopsy everything they saw. I had a couple of bad experience with the first two biopsies so I later took charge and said no if it was something that could be watched.…
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MRI Radiologist Has Me Terrified
I was recently diagnosed via an unconventional route, dermatology, due to spots on my nipples. I've since seen a surgical oncologist and a medical oncologist. Initial thoughts were likely stage one as they could feel no swelling in my lymph nodes and my mammogram and ultrasound were clear. But my MRI came back a couple…
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MRI Radiologist Has Me Terrified
I was recently diagnosed via an unconventional route, dermatology, due to spots on my nipples. I've since seen a surgical oncologist and a medical oncologist. Initial thoughts were likely stage one as they could feel no swelling in my lymph nodes and my mammogram and ultrasound were clear. But my MRI came back a couple…
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Mammo and Ultrasound With Birads 4
I haven't been here for sometime as I am 13 years out. I go for my mammos each year and personally I hate the place and do not trust them. I should have switched, but felt once a year I could deal with it. The issue is they did a biopsy in 2011 where I was dxed. Then after treatment they were biopsy happy. I had two bad…
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Biopsy or not
Supposed to schedule one. But worried about it making it spread. They are concerned it could be cancerous. But my lymph nodes look fine. Why not just take it out then send it off for testing? Also my breasts are also very dense. Should I look for a doc to just take it out? Or is that too risky wait? The doc I visited just…
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Breast lump found
I found a pea sized mobile lump in my breast earlier this week and have a mammogram with ultrasound scheduled for the 19th. I’m high risk due to having NF1 so started mammos at 35. My first mammo at 35 they found a small lump in the same breast opposite side diagnosed as a BIRADS CAT 3 fibroadenoma with monitoring at that…
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TNBC for my Birthday! Scared and Confused.
I've been searching everywhere to find a peer to peer group, to maybe find someone who has been diagnosed with my same form of breast cancer as I figure out what treatment path to take. I was diagnosed with TNBC on September 18th. I have since been on a whirlwind ride of getting doctors to respond etc. Here are my details:…
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Asymmetry on first screening mammogram. Scared. Please help.
I'm 40 and got my first screening mammogram (3D) a few days ago. They found a "small lateral asymmetry best seen on CC tomosynthesis" on my left breast. They didn't see any microcalcifications. They captured a few extra images, so I'm guessing they saw it on multiple ones. The BIRADS score is 0, which means they need…
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LCIS, ADH, ALH, Family History, Dense Breasts
Last week I had a central duct excision for bloody nipple discharge. The results came back today and show LCIS, ADH and ALH. I have a family history of breast cancer (my mother, twice IDC) as well as my sister (DCIS). My breasts are very dense and nodular which means i am constantly having ultrasounds. MRIs etc. Given…
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Mammography Plus Ultrasound Better Than Mammography With AI for Dense Breasts
Mammography Plus Ultrasound Better Than Mammography With AI for Dense Breasts Aug 9, 2023 A mammogram plus an ultrasound was better than an AI-assisted mammogram at finding cancer in dense breasts. Read more…
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Dimpling in left breast at 26, worsened over time, ultrasound scheduled
Hello, Thank you for providing this space. I am 26 years old with no history of trauma or surgery to the breast. I also have no children and have never breastfed. As I am in between insurance during the midst of all this (recently lost my job), I do not have a PCP and paid out of pocket to be seen as soon as possible. The…
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Breast Ultrasound Screening Advice Missing Many Women Who Would Benefit
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Need encouragement and support
Hello everyone, I posted here about a month and a half ago about some concerning symptoms and received some lovely responses which I really appreciate. I did follow up on my symptoms with a mammogram ( negative results) but I have very dense breasts and after all my reading on here and research it appears that mammograms…