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Her2+++ ER- PR- novo stage IV

I’m her2+++ ER-PR- novo stage IV, had multiple tumors in both lungs. I started in 08/2022 with Taxol Herceptin Perjeta. Stopped Taxol after 18 rounds and still continue every 3 weeks with Herceptin Perjeta. December 2022 after I completed Taxol all my tumors were gone so for the moment 2 years NED. Anybody longer than 5 years NED?

Comments

  • moderators
    moderators Posts: 10,541

    @warrior1964, welcome to the community, and thank you for posting! We're glad to hear that you’ve been NED for two years. There are definitely some members here who’ve been NED for longer, so we're sure you’ll find others to connect with.

    Let us know how we can help. We’re so glad you’re here, and don’t hesitate to reach out!

    The Mods

  • mzlaurie
    mzlaurie Posts: 1

    Hello Warrior! That’s what you are is a warrior, survivor doesn’t really tell the tale does it? I am new to this site and go by MzLaurie. In May 2014, I was diagnosis’s with MBC HER2 + met bone(lumbar-sacrum) It took two years to get into remission and then follow-up for 11 years. I stopped herceptin over a year ago against doctors orders as my body is deteriorating too fast. I am an outlier, a respondent that’s exceptional, blah blah blah. Don’t set a time limit on yourself as your spirit may be much stronger than your body and have its own plans. I am testament to that. You or anyone else can contact me any time once I figure out how to set this up correctly. Be well warrior1964. Btw I am a warrior from 1963. lol.
    MzLaurie

  • moderators
    moderators Posts: 10,541

    Hi @mzlaurie! Welcome to the community, and thank you for posting.

    Since this is an older discussion, you may also want to start a new thread in the Stage IV forum to introduce yourself and connect with more members. We'd love to hear more about your journey and how you're doing now.

    We're glad you've found us, and we look forward to getting to know you better.

    Warmly,
    The Mods