Synchronous Bilateral Breast Cancer IDC

hello- I was diagnosed with Synchronous Bilateral Breast Cancer IDC in both breasts stage 1 (.5mm and .7mm). I really have not been given any rates of survival or dfs. Has anyone been diagnosed with something similar and would share their experience and any info? Thanks
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I had non-synchronous bilateral breast cancer (or at least, non-synchronously diagnosed).
My understanding is that every instance of invasive cancer by definition represents another opportunity for cancer cells to escape the breast and potentially one day metastasize. But I don't think it should make a difference whether it is bilateral or unilateral.
I think when a person has multiple tumors, they generally go by the risk profile of higher risk tumor (and also treat according to that).
Both of your tumors are very small, which is good, but to have a more clear idea of the risk profile and recommended treatment, you would need to know the genetic markers (usually comes after the biopsy and is confirmed after surgery).
FWIW, I was recommended to lumpectomy both times (plus radiation). But since my second tumor grew while I was on SERM hormonal therapy, I was recommended to switch ovarian suppression plus aromatase inhibitors. My tumor profile was ER+/PR+/HER- both times.
Have you had a first appointment with a surgeon or medical oncologist already?
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Thank you for the response. I have had Mammaprint test done, came back low risk. I have had a double mastectomy and reconstruction. Both were stage 1A, ER+,PR+ HER-. 0/3 nodes. Not much information has been shared with me about Synchronous Bilateral Breast Cancer other than survival is worse than unilateral and a poor outcome. I was never even heard about the name until I looked up about bilateral. Then doctors only response was “it’s not double the risk”. It looks as though it only accounts for 1-3% of all breast cancers. Most information I found only gives an over all risk for all s-bbc and nothing about individual stages like there is unilateral breast cancer. Very frustrating on lack of information and leads to a lot of anxiety without info. Hoping to find someone who has had this and what they know or have experienced.
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