TNBC MBC Stage 4
Comments
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Hello @cookie54 and @rlschaller.
We've finally gotten out of the heat wave here, at least until the next one! What a relief. Lying low, indeed.
Is it any cooler out on the water Andrea? It looks lovely, as do your summer plans. I'm not actually in the Carolinas; "sc" is the name of my old home town, nowhere near here, though I realized after picking my screen name that it did look like "South Carolina". A bit confusing!
I did get my dental surgery done on the 25th. Next thing is to get re-biopsied on the slim chance that my markers have changed, in a bid to open up other treatment possibilities. Has anyone else had that done? Otherwise it's on to what is likely my last-ditch chemo possibility of carboplatin + gemcitabine. My skin mets have been going rather crazy: lots of spots, so no more eribulin. Even though a recent CT was relatively good, my skin says otherwise.
A recently found genetic mutation meant I might be able to get immunotherapy, but now my MO says that wouldn't be possible as I already had pembro, and the various immunotherapies are pretty similar. Disappointing.
Rhonda, good thing that your skin is better. When will you find out what's going on with the hot spots? Yay for improved fatigue. It is certainly my nemesis. Your "rolling with the changes" (punches?) is about the size of it.
Take care all.
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Hey @scgal08 Well you fooled me lol, I for sure had it in my head you lived there. Well I'm certainly sorry to hear the skin mets have been going crazy, it down right stinks! I think it's a good idea to re-biopsy on the chance that your markers have changed. I have not done that yet but I have read others on the forum that have. I did have Gem/Carbo when I was Stage 3 and I'm glad to hear it's a possibility for you. I will continue to pray and remain hopeful that this biopsy reveals additional treatment possibilities. BIg hugs and strength your way💕
Yes there is a little relief if there is a breeze on the water but not in the extreme heat that we had!
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@cookie54 - Thanks for sharing this opportunity and for sharing your own interview experience with the community.
For anyone interested, you may also consider posting this in our
Thanks again for thinking of the community and sharing this resource.
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