Bottle o Tamoxifen
Comments
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abaaonson....see above....that won't help you sleep either!!
I was up all night last night despite the melatonin. May need to take something a little stronger tonight. I'm starting to feel some tammy side effects. I've really started having joint pain and leg cramps and the night sweats are getting really uncomfortable....I keep waking up and last night I could not get back to sleep. I started my tamoxifen last July 1st. I've also started gaining some weight in my stomach and hips after initially losing weight. Yuck! I just keep telling myself that it must mean it is working if I am feeling these side effects.
June, good to see you back. Jo, how are you feeling today? Sherry, how are you today? Tink, how is your daughter? Welcome newbies.
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1openheart - Getting better each day. Have my first follow up for my PS tomorrow at 11:30. I already know that my drains are not coming out - still too much drainage. They are such a pain and are starting to really hurt where they come out of my skin. In spite of these and the setback, it was all very well worth it.
Welcome back June - any chance you would share the eye candy?? LOL!
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1 Open Heart - I think being awake at night wouldn't be so bad if he was my company! I think it's a never ending circle of side-effects. One stops, a new one starts. I have fat on my stomach now as well, never before... I have had the joint pain, water retention and as a matter of fact, after tapering off, my hot flashes are back. I have had success with supplements and herbs for the joint pain!
To think, prior to BC, I never wanted to take an aspirin!
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I thought after 1 yr all the dang SE would have leveled of. I can't complain the joint pain has gotten better. The mood swings have also leveled out. Oh and lets not talk about the belly bulge Im gettn. But the dang hot flashes are driving me to the edge!! I have to keep telling myself that this will be worth it in the end. I look at that white pill and say you will someday be no longer. I shouldn't complain, but I really am tired of all this crap. If I woulda known this is how it really was gonna be I don't know if I really would have choose this path to go down.
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mimito and Irw33 best wishes with your biopsy!!!!
Pauls.. hugs sista... it is frustrating and complain away!.. it is just us wanting to feel ourselves again and sometimes that feelslike light years away!!!. sending you cooling thoughts and hugs!
Thank you for all the well wishes for my DD.
Open heart... thanks for asking.!.. she is doing better with the medication they gave her. We are still waiting for blood work results and we go Tuesday for the Pelvic US ti check out what they saw on her uterus. Hoping it all stays under control and we figure this out soon.
Jo... good luck today at the PS... thinking of you!
Sherry... glad going back to work went well!!!!
Junie... welcome back missed you!
welcome newbies!! great ladies here for sure!
sbaaronson... aaah sleep yes that has been an issue for me since the beginning. Still is . I either have a horrible time failing asleep but almost always staying asleep. good luck and hope you can get some rest soon!
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This afternoon at 2 I see my eye Doc. I think my last appointment was just before my diagnosis but no sure. The last couple of months my eyes have gotten very dry and my sight has blurred considerably. Kind of doubt it is caused by Tammy but think it could be accelerated by it. We'll see.
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chabba, Sure hope Tammy is not messing with your vision. This damn drug gives us enough to worry about. Will be thinking about you this afternoon.
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Mumito and lrw333 good luck on your biopsies
June welcome back we missed you but so glad you had a good time
chabba good luck with your eye appt hope all goes well.
Been back on tammi since monday and I hate this drug. I have had insomnia and wild dreams since day one. Last time the wild dreams went away after a couple of weeks so I hope that it will this time too. The insomnia never went away. sbaaronson I know how you feel. I have to take lunesta every night or I would not get any sleep at all. I hate taking it but I hate no sleep worse. Also my hot flashes returned day 3 of tammi. Not liking this at all. But will stick to my commitment for three months. I see my MO next Friday so we will discuss all this. Thanks for letting me whine about it here. Oh it is friday maybe I should have some cheese with that whine!!!! Guess it will have to wait until I get off work this afternoon. I am sure Jo can whip me up some cheese, crackers and wine. she is always good at that.
Jo I hate that you won't get those drains out today, they are a pain in the you know what.
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Paula I soooo love my eye candy, thank you honey.....
Jo Jo you can have my eye candy anytime as I love to share with my friends and girl after all you have been through you so deserve all the men Paula has been so kind to share.....
Okay so I hope I can have you all there for my 5:00pm CT scan tonight and it is Friday after all so let the party begin.....
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June - Jumping in the pocket and bringing the eye candy - LOL!
Back from PS - drains for at least another week. Go back next Friday. Got cleared to drive and go back to work half days. I am so bored at home. Feeling really great. My recon was not extensive - just fixing a lumpectomy defect - no implants. Just have to keep up with my 2 new friends - the drains. At least I have figured out how to sleep on my back in my bed and not on the recliner or cough.
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Yea....Friday Happy Hour in June's pocket. Hope it goes well.
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Junie.. hope we didnt make to much noise in your pocket and everything went well.
Jo.. so sorry those drains didnt come out, i know the are a royalpain, but thrilled to hear you are feeling well awesome on that!
Sherry... so sorry sleep issues are happening again. Mine seem to come and go but I havent had a solid night sleep in I dont know how long... hope this se passes quickly for you this time... hugs!!!
Hope all you wonderful aldies have a great weekend!!!!!
hugs to you all and I have said it before but it is worth repeating... I am so grateful for each of you and all the support that is found with all of you!!! you all are the best!
Maria
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Awe Love to you too my Sista!!
Junie I hope all comes out ok!!
Jo bummer on the drains. Sounds like you have a good attitude about them.
I am so ready for the weekend!! Got lots of sewing to do so Im gonna put on a pot of java and spend the night sewing until my eyes get to tired. My machine had to go into the shop for some repairs, grrrrr. It wasn't that old to have this happen and now I'm upset that I had spent the $$$ on it. Well since my daughter is back, I will start a new sewing machine for me fund.
Heres to a mild to no SE weekend ladies, hugs for you all!!!
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I had 2 doctor's appointments this week and 2 next week! Ugh!
Monday I went to the ENT for the first time in about 20 years and Tuesday I went to the eye doctor, also something I never had to do prior to cancer. I went to the ENT because my ears have been buzzing (tinnitus) and also wanted to talk to him about how Tamoxifen can affect your hearing. He had the audiologist test my hearing - which was good - and he said we can use that as a baseline and to come back in a year and be re-tested.
Then Tuesday I went to the eye doctor for the 2nd time. I went last year about this time because for the first time in my life my vision was blurry. I don't know if it was the Tamoxifen or the chemo or just because it's time for my eyes to get worse but I sure don't like it after a lifetime of perfect vision. Last year, he told me I had the beginnings of a cataract so I knew I better keep an eye - no pun intended! - on that. He took a look and said it remains unchanged, so after 16 months on Tamoxifen that was a relief. He was so nice to me this time, practically flirting, so that was a nice bonus since he's so cute!
Then Monday I have the dentist and Tuesday the MO - that one always makes me nervous. This time I have the added pleasure of taking my 86-year old mother with me. She had BC 10 years ago and went to the same doctor I'm seeing so she wants a check-up. She's really VERY difficult to get along with so it's going to be more stressful than usual. My brothers are sooo bad - they say what difference does it make if it came back? She's so old that even if she had it she would probably die of something else first. I said if she had something they could at least do surgery and radiation. Chemo would be too much, but the other two would be doable. She's a tough woman, that's for sure. Oh, boy, I might have to take an Ativan for Tuesday's appointment.
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Heartnsoul you have your hands filled with appointment after appointment, damn girl nothing like getting them all over in less than a weeks time. I am so glad that your first 2 went well, keeping my fingers crossed for the next 2. And why is it men are so insensitive, what a horrible thing to say about your Mother.
Jo You are one strong cookie and I bet the boob is going to look marvelous once you heal and those darn drains are out. Still thinking if you can do it then maybe I should consider it myself. I too and lopsided big time as they took 18cm's total out and my nipple is way to left as there is nothing left there so it pulls to the caved in side......hmmm, maybe one day I will be strong and brave like you......love ya hun and miss you!
Sherry how long have you been back on Tammi? Are you taking your pill in the a.m? I remember insomnia being huge in the 1st few months of being on Tammi, hopefully it goes away quickly.
Ok so CT scan was quick and easy and Paula and Tink were trying to steal my drink cause they thought I was drinking booze.........boy do they have one track minds. I will get results Tues or Wed, so fingers crossed it's nothing.
Well I have to run and hide as I think Paula is after me looking for the 1st pillow fight of the night.
Love ya ladies.
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June, this is STUPID... I hear about PET scans & CTs, what are they???
Whatever it was, I'm glad it was easy & I hope it comes back good!!!
OK, I looked up CT, which is still a CAT scan. I know my Dr wouldn't do one for 2 reasons. 1 - not a good enough read on the brain and 2 - I've had rads and that's to much radiation.
OK< Good Night!!!!! Forget the Lunesta butterfly, I've got the Alien !!!!!
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Well hi ladies
I've got a few questions for you all. Sorry lol
I've been on tamoxifen for just over a year I'm 47 and feeling like 67 my joints feel arthritic
Sore feet when I get up to walk from sitting down even if I've been sitting for 5 mins is it just an age thing or meds
Now question 2
After finishing 6 x fec my periods haven't returned now I'm just noticing a discharge simillar to ovulation time and every few weeks a migraine comes on which I used to get a few days before a period so I boiled it down to hormonal ,what's going on ? Will my periods return ,am I now starting to produce er and pr or does this sound normal
Thanks for any imput
Princess jojo0 -
And also if u ladies post any more half naked men well I'm gunna have to just pop in a bit more often hehehehe
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Joanne, I can't speak for the periods because Tamox helped a fibriod grow and lead to a hysterctomy. BUT I can definetly agree with the aches and pains!!! I go up a set of stairs at work, and I'm done. I can go on a walk and even do hills, by my knees and hips on stairs.... How old am I ??? 46 or 86? It's hard to remember, Oh yea, that's part of it too.
Ok, I'm done before I don't make anymore sense!!! Ambien is now kicking my butt!!! YAH,sleepy time!!!
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Joanne, I'm 48 and haven't had a period since 9/13/12 the day of my bilateral mastectomy, did chemo, second stage surgery and now on tamoxifen and have been having muscle and joint pains like crazy along with insominia and blurred vision. Tamoxifen is a b$&#h!!!
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June,
I have to tell you, this surgery was sooooo worth it. I don't know about the brave/strong part. For me, it was do something about the deformed boob and I did not have to face it every morning or when I was naked in front of the mirror. It is so amazing what a good PS can dio. My nipple is back where it belongs - not pointing down and to the left. In my mind, I can now really move past this BC crap. If only I could get rid of that little white pill. I will send you a link to a recon site that shows a lady with a very similar lumpectomy/rads defect. You will see the before & after which is very close to what I had done.
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High all!! Did someone mention half naked men?? Hmmm looks like today is your lucky day!!!!
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So...how bad is the hand/joint pain on Tamoxifen? I started on the AIs Sept. 2011 and had to switch to Tamoxifen in March 2012 because of the severe pain in my hands. I had six weeks of total bliss on this med...and last week the hand pain came back with a vengance. Is this a SE of the tamoxifen too? I'm afraid everyone is going to think I'm crazy!
(Never had the pain in my hands before starting the femara.)
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No bangotti your not crazy. I had pain like you and it finally leveled out. Its hard to put a timeline on the SE since everyone is so different. Hang in there it gets better. Mine comes and goes still after being on it for almost a year.
Junie just know that I am getting to the pillows tonite and you will get a double no make that triple whack for the lol on fb, lol!! Just when you least expect it, EXPECT IT, lol!!!! OH and I am blaming Tink for my behavior in the pockets, lol!
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Joanne.and Bangotti... welcome... yes aches and pains !!!! when I sit for awhile my knees kill when I first stand back up. I have CARPal Tunnel syndrome in my hands but I find it odd that I never had a job that I used my hands all the time and since being on Tamoxifen all of a sudden if flared up... strange to me. As far as periods grow. I am 43 and have been irregular since starting Tam, also has cuased some thickening of the uterus on the upper limitsof normal they are watching!!! .. hope it levels out for you both!
Paula... now THAT is the kind of pic Ilike to wake up too!!!! heheheh hugs
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I really started to experience a lot of hand and joint pain in the past two or three weeks. I started taking 20 mg. of Tamoxefin last July 1st. My ankles, toe joints and feet hurt a lot too. And the night sweats are getting much worse and more frequent as well. I keep reminding myself that it has a job to do and maybe all of these SEs mean it is doing what it is supposed to be doing.
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I'm SOOOOOO glad to hear I am not the only one!!!! I usually try to blame my muscle & joint pain to arthritis, but at 46, hmmmm, not so sure! A for blurry vision, eveytime I have surgery, I can't see straight and my eyes have gotten worse. I go back for my eye appt soon, but they also have me seeing a Rentinal spec. just in case because of something she heard about.
Ambien works great for sleep!!!
I don't get what makes them decide on Chemo or not. Your onco score was like mine, my tumor was almost 5cm and I was node pos. The only thing that kept from chemo was the onco and that my dr. told us, that if it were his wife, the reaction far out weighs the benefits.
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1openheart I know what your saying about the SE. Thats what I have to tell myself each day. I still get abit discourged sometimes because of them. I just hold out hope that this is all worth it in the grand picture of it all. I have noticed a big change mentally once I started weaning myself off of all the drugs I was taking. I do feel that is why I was feeling the way I was feeling. Each day never seemed to get better. Once they all got outa my system, things started looking different to me. Now if the joints and HF would just follow suit I would be peachy!
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Hello my lovelies!!!! Missed you all this past month but email and access was dodgy so after a couple of attempts I decided to go technology free. How lovely to not have obligations except work for a month!...and that didn't even feel like work because I did not have any other obligations...weird...realized in the Newark airport, however, that it might have been a good idea to bring my cell phone with me as all my phone numbers were in it and my flight was delayed...ah well...
Came home to mail saying I have a scheduled appointment with my breast surgeon (which I am going to reschedule as here is no point in seeing her without the mammogram results..which takes place a week after I am scheduled to see her) and another saying 'yay you are 50...now give us a stool sample to check for colon cancer' ...wouldn't that be a rude awakening! I also have my second phone interview on Wednesday for this Qatar job and if they are happy, they will start calling my references....all of whom are at the school I currently work at so won't that make for a tense month while we all wait to see if I get the job....June will be interesting I suspect.
Missed a whole bunch of pocket parties this past month...so for those of you who had some, hope they went well. Sherry. Hope you have recovered and are feeling better!...I have 10 pages to catch up on so know that you are all in my thoughts:) hugs
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Oh Junie where are you, hmmmmmm! I went to the pillow factory and look what they gave me
Guess What that means ya you guessed it right WWWWWWWWWWWWWHHHHHHHHHack!!!!
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