TRIPLE POSITIVE GROUP
Comments
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Texas, Taxotere0 -
ashla - Thank you for taking the time to answer all of my questions! Yep, I posted the question on TCH as well.0 -
JKOmaha I had THC every 3 weeks given at the same time as chemo then continuing till the year was up after surgery. I'm 3+ years NED. I have seen people do weekly here on the is forum but I see more doing it every 3 weeks like I did.0 -
JKOmaha
My T was taxol. You are very welcome. That is what these forums are all about. Ask lots of questions! Best wishes to you . We all hear you!0 -
Hi JK--I'm just poppin in, I probably didn't quite understand but I remember having Herceptin with some T thing for 4 months weekly then after having surgery I had more chemo ??? and at one point for whatever reason with one of the chemos I didn't have Herceptin, then my next chemos I had Herceptin and then finished off with Herceptin and finished off with H only--weekly, but I had all my stuff weekly. I just started my coffee so this might come out all silly.
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Camillegal you probably had Adrymicin. Adrymicin can have heart issues. Herceptin can too so they don't give it at the same time your doing the 4 cycles of Adrymicin. The AC-TH regiment is probably what you had. That's another common regiment and was the first they tested with Herceptin.0 -
JK - I am only aware of a few people who posted on TCH and Triple Pos threads who had weekly Herceptin - with weekly until chemo was done, then switched to every three weeks, and one weekly all the way through for the year. I think the majority of us who have TCH have had the Herceptin every three weeks with chemo, then continued on the every three week schedule for the year. Those on this thread who had AC-TH usually do the AC dose dense first, then switch to Taxol and Herceptin, either weekly or every two weeks, then continue the Herceptin after their Taxol is complete.0 -
Thank you all for your responses. I am feeling a lot better now! Camillegal you always make me smile when I read your posts.
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Anyone here not have clear margins?
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jk, I was one who had the weekly Herceptin with the 3 weekly after the main chemo. I did have issues with my EF and had to stop H after 7 months. EF rebounded after I stopped.0 -
Chicka D ...shall continue to pray for a speedy and complete recovery.
I am currently on TCH x 6 with weekly herceptin in between and to continue weekly after I finish TCH.
Cami..my name was taken, so I went backwards.
naiviv vivian0 -
chicka
well wishes for you and your hubby!
Have a good weekend everyone!0 -
oh and I picked up my tamoxifen prescription about two weeks ago but have yet to muster up the courage to take it! After everything you would think it wouldn't be a big deal...0 -
I had surgery, then adjuvant TCH every 3 weeks x6 with herceptin weekly (weekly Herceptin only took 1/2 an hour after premeds), then starting on the 4th week after the end of TC (taxotere), I went to herceptin every 3 weeks for the balance of the year (these took 1 1/2 hours plus premeds).0 -
OMG u guys are so confusing and now backward names (clever ) I certainly wouldn't have thought of that, Naturally. Anyway my Muga never waivered at 70 so I went the full yr, But now I do have a slight problem, who knows my heart used to be big now it's 3 times to small--like the scrooge, no wonder why I can make eggs and ham so well--but not green. OK my heart didn't shrink for those of u who do not know me--my actual heart muscle is OK, but a valve is enlarged someway and I take a med for it, or something like that. IDK
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Goutlaw: I had a positive posterior margin.0 -
You are too funny cami. just too funny. please do not ever stop! ChickaDee, Like lago said. OMG... freakish thing to happen, was he outside on one of those scaffolding Things when it happened? i shudder to think. i hope he is alright. i think on tuesday i get my las herceptin. i had to stop for awhile. i had it every three weeks.0 -
Welcome Karkar-but sorry you have to join.
I finished the nasty chemo in March. Still have occasional mouth lesions and use the MM or swish and spit with salt water. Both help. But I keep getting the lesions. My toe nails-8 of them fell off during Taxol and Taxotere. Thought that was the end-but in the past couple of months several have crumbled off-like little piles of sand. My chemo nurses and MO are puzzled as to why this happened again-but are saying it falls under my standard "rare and unusual side effects" or another curve in the BC road. Am guessing I will NEVER have a pedi again. I didn't go often before-but would be a nice treat now.
Bren-conratulations on saying Good-by to your port. I am about to name mine and consider it an unborn twin after almost 17 months. My MO wants it to remain as does my SO-in case I qualify for a clinical trial to make up for loss of Herceptin. I now go in every 4 weeks for a flush.
All 4 of my children will be in the same place Christmas-for the first time in years. My third and her husband are expecting their first baby (Cora) and my first grandchild in April. And my 4th child-Sarah-decided to take the LSAT a month after graduating from UNM in May-and did very well-scored in the 91st%. My oldest daughter is seeing someone she really cares for and my 2nd-my only son has completed almost 12 years in a scary scary part of the border patrol without injury. I am actually looking forward to the holiday this year-and hopeful I will not have to play referee for the adult offspring! Since the #$^$# ex-husband is out of the picture will be an even better holiday! Apparently he thinks he is engaged (despite being in dating sites-shades of our marriage) but the woman won't wear the ring in public. Bless her heart.
Love to all. And still can't find spell check0 -
SusanHG123 my nails, all of them fingers and toenails continued to get worse after chemo. They continued to lift and eventually became thick, hard and brittle. The color was yellow/brownish although that has improved quite a bit the color is still off. Yeah I too was told the nail issue was not only rare… I got a really bad case of it. To be honest I rarely think about it anymore.0 -
susan, what's the trial about herceptin? Did you get pulled off it?0 -
Moon. My EF started at a lovely 66. Dropped to below 50 after finished the nasty chemo's and rallied to above after a bit of a break. Then dropped to 35. Am off for good-as I believe you are. Finished infusion count of 20 of 52. My MO would like be in a trial due to the ferocity (his words) of my cancer. He and my RO and SO refer to me as an outlier with a very aggressive and one letter shy of inflammatory BC. We actually measured growth over a 5 day period of testing as it went up to 6x6.6 and pulled my breast down with a line of demarcation and pulled my nipple to point to the right. Showed new growth after 4 DD rounds of AC and 2 new growth after 7 weeks of Taxol and herceptin. Had 1st MX then.
Have I mentioned I am not fond of BC?
But-it is snowing in Roswell! I love snow. Being from Iowa I miss seasons. I miss snow. I do not miss it being dark at 4 in the afternoon but I miss snow and seasons. Am cooking bean soup. From real beans-not the really good cans of beans that makes a delightful soup. But real hard beans. Generally go not cook but my vegan daughter Sarah will be here tomorrow or Monday.0 -
Eileen - I sent you a PM, but you might want to remove your email address from your post and PM it to chickad.0 -
I never answered your question Moon. Chemo brain remains. My MO would like me to participate in a clinical trial if possible-with a new drug-again if possible-that does not impact the heart and works on HER2. Thus far, all we have found impact the heart or require no previous Herceptin or rads.
But, BC is not an emergency. So my mantra goes. Unless something rears its ugly head will continue as is. I did call the drug company and try to "cut a deal". Maybe 1/2 or 1/4th dose of Herceptin. My MO had comletetly declined. Talked to clinical pharmicist, research doc, and someone else. All declined. And said I would never have their drug again. And they needed to speak with my MO thank you very much. And someone from the FDA would be contacting me for info. Already knew that. Have not heard from FDA but have had a research doc call twice about SEs.0 -
Susan, ok. I was wondering if there was a trial for those of us who weren't able to Stay on H. Guess not! LOL yeah I only finished 20 maybe 21 rounds. My EF at start was 59. Went to 57. Then after chemo my last EF dropped to 42. Pulled me off. It's back up to 62 now. Although I heard H can affect you even after you've been off it for a while. But I see a cardiologist for my pacemaker anyway so he checks me every 6 months or so. You can make a lovely vegan stuffed acorn squash for a dinner. They are so pretty.
I've been eating a lot of beans to up my mag level. Cooking beans is weird. One book says never to salt them or they don't get soft. I once added ketchup too early and they never got soft at all. LOL.
Much love to all.0 -
Moon-stuffed acorn squash is on the menu! She eats a few non-vegan items here-eggs and cheese. But no meat in about 4 years. All my girls went off soy when I was diagnosed.
I am now seeing a cardiologist. Got extremely short of breath-could hardly make it from my office to a classroom without stopping to lean on a wall. Am on a beta, ACE, and diuretic. Within 10 days felt so much better. Had a 2-part non-treadmill nuclear med stresstest when EF dropped to 35. As a nurse an former HCP I hated that day the most. Had my cardiologist, cardiac tech x2, CNP, and several other people floating around. Eyes glued to the screens and me. I asked them to adjust a screen so I could see it and they looked @ me like I had grown a second head. Reminded them I did a cardiac cath with minimal diazapam so I could watch. And watch I did. And pointed out that despite my lack of experience in adult medicine I was smart enough to know they expected me to infarct or crash on the table. Then all calmed a bit and quit guarding their language.
Will let you know if they find a trial.0 -
susan, LOL. When I got my pacemaker I was a HUC. I went down on the floor. ( would you believe med/ surg /telly floor?) LOL they stuck me in a wheelchair and took me straight to ER. Because heart rate was, um, 30! LOL. .i was in heart block. Pretty bad but I really felt ok and wondered why I had to go to ER. LOL of course I took it more seriously when I heard the cardiologist say that if it dropped to 25 they'd do CPR. It was at 27. LOL then I was thinking, hey you can't do cpr on me I'm wide awake! That was at 5 pm. But at 9 or so I converted back to normal. Watching them watching the telly monitor was hilarious. They looked like they couldn't believe I was talking to them and asking them if they were enjoying the show.... i mean when 4 of them were clustered around it in my room it was pretty obvious the they're waiting for something in particular an infarct. LOL its really funny to talk about now. But that was how I started 2011. I ended 2011 with a BMX. NOT my best year! LOL sometimes you just gotta laugh....0 -
ChickaD,
I'm so sorry to hear about your dh's accident, I'm only catching up now. The two of you are in my thoughts and prayers, I'll be watching here for any news. Look after yourself. (((((((Hugs))))))))
Nicky0 -
Camillegal... You have quite a bit going on with your name too.....
Camille. Gal. Camil. Legal. Cam. Illegal. C. Am Illegal. C. A. Mill. Egal (s)
V0 -
John is resting comfortably...I duct taped him to the couch! This is going to be a challenge...my hubby is one of those men that has to be doing something...he rarely just truly relaxes. He got home and wanted to split wood...ugh. Needless to say..me and the girls are going to sit on him if needed.
We are looking at about a year to complete several eye surgeries on him...no paychecks in this household any more....ugh again. Cant even begin to deal with those issues yet.
For the next week or so John needs 5 medications administered every 2 hours into his eye...long nights....and visits to the clinic daily.
Did I mention I have a HUGE eye phobia? I can't even go to the eye doctor without throwing up or passing out...they hate my visits. So this "test" is going to cure or kill me.
Keep sending prayers...much appreciated!
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Oh Dana- So thankful that they were able to save his eye. Since this was a work related accident could workers comp help with some income? Not sure how that works but might be worth checking out. Thoughts and prayers ..0
