TRIPLE POSITIVE GROUP
Comments
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Hmm.... How come my MO never mentioned anything to me about my Vitamin D score. I will need to talk to my MO and PCP. Maybe I need to take a blood test or something to find out what vitamins I am lacking of? Any advise!!!
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I'm the last person to give advice, but tell them u r concerned and u would like a blood panel for all of these numbers so u know about them and they do too. unless u've had one recently, then it should be on it. Just tell them, see how brave I am with u'r Drs.
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I was always taught that 25-45 was a normal range for vitamin D. I better go look things up because they must have changed.
Gout, one theory about the vitamin is that if you are overweight, a lot of it gets stored in your fat cells. I know I was surprised by being as low as 10 because I took supplements and am a sun worshipper to the max. If I see one photon, I'm in it asap!
Fluff, try Trader's Point vanilla low fat yogurt (it is liquid). That is dang good drinkin'
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Vitamin D (25-Hydroxy) 21 ng/mL 30.0 - 100.0 L Vitamin D (25-Hydroxy), D2 4 ng/mL - N Vitamin D (25-Hydroxy), D3 21 ng/mL - N These were my Vitamin D Results and I was put on supplements of 2000 mg daily. These were taken in October 2013 prior to commencing chemo. Onc said would retest in 6 months. She told me it takes a while to go up.
From what I am reading I am going to ask about taking more.
Vivian
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Sorry about the delete, I copied and pasted the below from a test and it was too much type because of box.
Vitamin D (25-Hydroxy) 21 ng/mL 30.0 - 100.0 L
Vitamin D (25-Hydroxy), D2 4 ng/mL - N
Vitamin D (25-Hydroxy), D3 21 ng/mL - N
These were my Vitamin D Results and I was put on supplements of 2000 mg daily. These were taken in October 2013 prior to commencing chemo. Onc said would retest in 6 months. She told me it takes a while to go up.
From what I am reading I am going to ask about taking more.
Vivian
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pbrain - there is normal on the D level, then there is what is desirable for a cancer patient - naturopaths and integrative docs like to see closer to 70 for cancer patients. Mine was pathetic - in the teens after chemo. I have managed to raise it but it is a slow process, I still fall into the "normal" range so I would like it to be higher. I have to avoid the sun (probably one of the reasons it was so low even though I am in Florida) because of rampant skin cancer, so supplementation is the only way for me. There is also discussion on which came first (chicken and egg) - did the low D contribute to the breast cancer, or was the low D caused by breast cancer. The answer is unclear since most of us were not checking our D level prior to diagnosis.
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My vitamin D levels were at 39 after chemo. I was told that was not high enough so I was put on a liquid vitamin D-3 drops. It must work pretty good because it raised my levels about 30 points in a little over 3 months. I will have my D tested again in April when I see my MO for 6 month follow up. I do the drops about 5x a week, so hopefully my numbers will still be good.
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looking around this morning i found this on benefits of vitamin D. i didnt finish reading it, myself, but bookmarked it to enjoy later, after im done with everything else! http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3166406/ ....hope this helps!
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......actually, this one is more like it! a good thing, and i think why they want us to have good #'s. i can't figure out how to copy and paste that part, if you go to page 8 of the monograph, and click on the pubmed free article #3, on chemoprevention and treatment, it is short and sweeeeeet!
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at last testing in November, mine overall vitamin d was 86. I take 3000 d3 semi religiously.
Goutlaw-I was on low dose Effexor for a year as the said that one didn't interact, and it was supposed to help hot flashes. It did help some, but then I read where now they think there is a mild to moderate interaction. I weaned off also, as I was still having hot flashes. Not really sure I want to switch to an AI. I'm tolerating Tamoxifen well, except for the awful hot flashes, and I really don't want bone issues and hair thinning. I plan to have the conversation when I see him in March.
Pbrain-I'm putting that yogurt on my list. The chocolate milk is definitely not low fat. It is whole milk, but worth every sip. My husband is not a chocolate milk Dan, so if I buy it, I swig it right out of the bottle, lol. Cures my urge for something sweet.
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My D was in the single digits just before I was diagnosed. I got up to 70. Now it's only 43. Also found out my calcium is slightly elevated but I think that's because they didn't tell me not to take my pills before being tested. This was for a study so my PCP doesn't know. Will be seeing an endocrinologist in a few weeks. Will discuss it then.
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Well I dont know but Im sick of taking Vitamins& pills every day lolI Im just trying to fight this diease, I got my Total hysterectomy for April 7-2014 , I start radiation next week 2/12 , Im done with PT for now, I go to gym when I have a lil energy to go, I also on weight lose pills to get my wei ght down! I look as this a new lifestyle right now& a change of life Im going to have!
Im just wondering if u lose weight though does it really matter cancer cells if spread are in the tissues? You dont excrete them? Do they ever die?? I knowskinny ppl who in stage 4 yet? Please explain?
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goutlaw. As far as I know weight is an issue because fat cells make estrogen and that's a problem when your cancer is estrogen positive and grows with the estrogen.
Also, as far as I know everyone probably has cancer cells but they take off madly in some people for a reason yet to be found.
I just do the best I can. That is all anyone can do. Then I try to Forget it. Unless o get some stupid scare like a lump (fatty lymph node 4 centimeters- not cancerous) .
Much love.
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Anyone of did the detox cleamsing of the liver after u was done with chemo?
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....i was actually thinking about doing it. i have a follow up visit with my endocrinologist this coming week, she is just great, and i am going to ask her about that, and also ask her about what supplements i could take to boost my immune system, besides. or any thing else i could do, to raise energy level, and make me look like scarlett johanson. (Just kidding, about that last part, altho i wouldnt mind!)
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Yes since I started on Tamofen I been real B$$$$ & moody& just wanna be alone! Another problem is Im real weak& tired& lay on couch all day with no energy! Im also on lupron shot! Why do I feel thi way...I didnt feel like this even with chemo& radiation hasnt started? My bones are hurting
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Why do u all go to yhe endocroncologist?
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Key question, thanks goutlaw.IMHO, the present diagnosis by medical analysis process has the cart before the horse. Instead of having acquired a solid base of information about our various endocrine systems during our physical exams throughout our life cycle as they relate to the earliest developments of breast cancer, practitioners avoid measuring any of it until problems develop.
If we each had annual endocrine evaluation throughout our life cycle, any endocrine relationships between the various parts of the endocrine system (such as thyroid or pancreas) that relate to breast cancer as they interact with aging and hormonal balance, could be dealt with up front instead of after the fact of bc.
As it is, it is patients who are trying to get that analysis and protective approach against further bc after diagnosis, as preventive care.
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I'm the last one to answer this ut I do know that an Endro--works with hormones, estrogen, glands thyroid and certain diseases tha can come maybe later if not treated, they're a very specific group for a lot of things even BP problems and ovaries all kinds of different things---so I would think if u are concerned about any of these u'r Dr. would give u to an Endro.--I know I don't say things right ut it's something like that. LOL
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Oh I bumped into AA---who really knows.
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I will be seeing an endocroncologist next week due to my new diagnosis of osteoperosis.
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o my ....
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Aw, camillegal, we are all just here trying to figure it out...The PCP I'm seeing for urticaria (itching) is young and went to highly qualified institutions for his education, and did extremely well, etc. I had one derm doctor look me over, who eventually did a couple of biopsies that came back clear. I suggested that maybe, just maybe, a short course of low-dose estrogen might be a really good way to find out what the problem is or is not.
Instead, the PCP sends me to a different derm doc for another evaluation. The NP there says it is dry skin. They all want to refuse to consider the problem of dry, aging skin as being related to the bc, chemo, rads, tamoxifen, etc. Every last one of them shuts their eyes and ears and tiptoes around the problem, and uses the excuse that they "are not endocrinologists".
They want to pretend that they can treat us for problems, and yet never have to know anything about the endocrine part of us.
So, for example, if I itch like crazy going on 2 years now, and can't sleep more than 2 hours at a whack?
Derm NP's solution: Cut what little you have for fingernails and don't scratch. Put on lotions that work for 10 minutes at best. Take Zyrtec for at least 2 months, maybe forever. Continue to itch constantly, but don't scratch for a few months. See if it works or not.
I am doing everything she suggested, and when the next 2 months of sleepless torture are over, if the itching has gone away I will admit these people did a good job. If the itching isn't CURED, I will be hunting for bear with these well-intentioned, uneducated in endocrinology "professionals".
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AlaskaAngel I have had hives in the past that got so bad I couldn't sleep either. I feel for you. I know I got so bitchy. Itchy may not sound like a big deal unless you've been through it yourself. I put it right up there with shingles. It's awful. I hope the find a solution.
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Oh AA--I just was thinking I was giving an answer and u all know I know very little about all of this. But as I'm reading u'r last post--I agree there are so many unbalances and no one will give u a reason just kind of don't do this or that and see. And my skin gets so itchy in areas, I don't even realize I'm drawing blood from scratching, I know it dry, but I use lotion and what is called Surgeons lotion too, I have all the ususal painful back things going, but I never thought about an Endro. I just go to where they send me--Oh and I have thyroid problems I know what they do (kind of ) but just never went, maybe cuz I'm just tired of seeing so many Drs. I'm to lazy. But u explain it like it is, I just put it the way I think which gets all mumbled so goutlaw can understand U. Thanks for jumping in.
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Am avoiding all thoughts of BC at this moment and watching The Beatles 50th on TV. Showing my age-but can remember as a young one sitting cross legged watching Ed Sullivan and being certain Paul would marry me. And 50 million other young girls. That was prior to my Baryshnikov era when I was certain he would marry me if I attended enough of his ballets.
Take a break ladies from BC and remember The Beatles. Even the youngsters in the group. They did change music
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Susan I'm watching it too I love to see Ringo and Paul sitting by each other and yes I wanted to mary Paul to and never got the chance and I have two legs too.
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I had eyes only for George. But this week I read his bio on wiki, and I'm rather glad my world never got that big and complicated, music or no music.0 -
Oh I enjoyed the best with Ringo, and Paul alone and together, they looked so cute and now I'd marry Ringo. It was great.
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Thanks, Lago. It has been very puzzling. One night I was fine, no itching, and the next day it started and hasn't stopped. Did the last itty bitty drop of estrogen in me finally evaporate, or what? When the NP told me not to scratch for 2 months like that was so simple a thing to stop doing, I wanted to tell her I won't scratch if YOU won't breathe.
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